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Date Joined Oct 2008
Total Posts : 20
Posted 7/4/2010 7:21 PM (GMT -6)
Long time no post!
Since I was last here, they have moved me up to 6MP...going well on it so far. My colonoscopy didn't find any active CD: good news! However, they think I might have IBS in addition to the Crohns: and it has been the IBS causing the recent problems. Have any of you been diagnosed with something similar? And how did you deal with it?
Apparently the site of the resection has healed well. Whilst this is fabulous, it still doesn't explain the pain I have from the site, and the issues I am having with the external scar.
In other news, they found arthritis in my knees and sacriliitis in my back. Right now they are still working out what do about
it. How did/do you guys deal with it? For me it is quite terrifying: my mother had extensive, appalling arthritis, so I know what is coming: I just don't know how fast it will progress...as it stands, I can barely climb our (steep, interior) stairs unassisted, and sitting, lying and walking are becoming more and more uncomfortable, more and more often.
I am thinking of asking to be tested for Fibro, as well. A lot of my pain doesn't seem to have a physical cause behind it (or it is more exacerbated then what it should be).
Who will tell whether one happy moment of love or the joy of breathing or walking on a bright morning and smelling the fresh air, is not worth all the suffering and effort which life implies. ~Erich Fromm
discussing Crohn's Disease, infertility, fostering, fundamentalists, my family, and my babies with fur :)!
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Date Joined Apr 2005
Total Posts : 14995
Posted 7/5/2010 10:05 AM (GMT -6)
I would highly recommend a referral to a Rheumatologist. I have gotten alot of help from mine. I too have Fibro and it is painful. But I started adding extra vitamin D3 into my med mix, and it has really helped the fibro. Took about
a month, but it really helped. Good luck!
Co-Moderator for Crohns Disease
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles. We can take hold of it by the handle of anxiety, or by the handle of faith"*
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Date Joined Nov 2003
Total Posts : 7116
Posted 7/5/2010 9:40 PM (GMT -6)
If you have sacroiliitis you need to be seeing a rheumatologist. I have had several flare ups of sacroiliitis. Each time they have injected my SI joints at the hospital. This really helps because I usually cannot sit, stand or walk without a walker when the flares are really bad. I am also on a anti-THF med to try to keep the inflammation at bay. I took Remicade for 2.5 yrs, then Humira and am now on Simponi. These drugs work wonders on lessening the frequency of the flares.
The knee pain is likely from the same inflammatory process causing the SI inflammation. I usually will have a couple other joints flare up when my SI joints do.
Both of these problems are probably from you being one of the 30% or so that get spondyloarthropathy associated with Crohn's disease. My arthropathy problems are actually worse than my Crohn's disease. Go figure....
Moderator Crohn's Disease, IBS, and Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
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