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ATHENSGIRL2
Regular Member


Date Joined Apr 2010
Total Posts : 81
   Posted 7/5/2010 1:02 AM (GMT -7)   
Unfortunately I have been hospitalised twice in the past 3 months, first time with a partial obstruction and second time with inflammation in the TI.  Spent 4 days each time with IV antibiotics, and doctor told me that I have a stricture of 30 cm in the TI which is very thin, and I should watch what I eat, because he doesn't think it's time for surgery yet, or to put it in other words, he says since surgery is not a permanent solution, we have to try and wait for as long as we can.  He specifically told me that he has many Crohns patients who live with these kind of strictures for years.....  He is one of the more specialised Crohns and UC doctors in Athens, and the best part is that I like him very much, because his bed-side manners are excellent and whenever I call him, he is always there to listen.  So to the point:  I asked him if smoking affects my Crohns, and he told me no!  could this be true?  I mean I trust him, but I have also heard from many people, articles, etc that smoking is a big no for us.  Anyway, just wanted to know what everybody else thinks, because smoking for me is like an anti-depressant, although I wake up some days wishing I would never smoke again in my life....
 
P.S. My husband is still yelling at me for smoking, because he says even if it does not affect my Crohns, there are so many other diseases caused by smoking (so true...)
 
Thanks,
Christina

andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 7/5/2010 2:07 AM (GMT -7)   
Hi Athensgirl,
I was always told nicotine was a good treatment for UC not Crohns. I have had crohns/colitis for 22 years and had an ileostomy done a little over a year ago now I did smoke for many years but gave up about 7 years ago now and I must say I honestly felt better not smoking and still do. That horrible smoking cough was getting to me and didn't need that on top of this lousy disease. I always said once I gave up smoking that I wouldn't preach to anyone about giving up and I don't but if I had realised how much better not smoking made me feel I would have given up long ago. I also used to make excuses to not stop smoking but the benefits of not smoking far outweigh anything else. Good luck and take care

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 7/5/2010 3:18 AM (GMT -7)   
The www.CCFA.org (Crohn's Colitis Foundation) website clearly lists "stop smoking" as the number one thing to do if you have CD -- doesn't sound like it's a good thing.
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 7/5/2010 7:48 AM (GMT -7)   
It sure doesn't help anything.

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 7/5/2010 8:00 AM (GMT -7)   
yeah smoking is a risk factor for developing crohn's and can induce a flare
as far a UC, smoking prevents the development, but it's not been proven to be a good treatment once you already have it
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/5/2010 8:26 AM (GMT -7)   
I have heard exactly the same as the above, the number one rule is not to smoke. I smoked for 29 years and I had had Crohns for almost 20 of those. I read that smoking was bad for Crohns after I had my first flare up of Crohns in nearly 20 years and I stop smoking then. But I still ended up having an emergency surgery a couple of years later. But part of the cause of that was I didn't take my meds like I was supposed too. I am still smoke free and so glad I did stop as I am doing much better now. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 7/5/2010 9:38 AM (GMT -7)   
Smoking is a known trigger for crohn's (including second-hand smoke), smoking for UC is known to calm inflammation in the colon, due to the effects of the carbon monoxide...your GI isn't on the ball if he says that smoking does not affect CD.

That said, I have crohn's (affecting my colon aka; crohn's colitis), I quit smoking for 3 yrs and went through major hell with my CD, I started smoking again and it definitely (along with things listed in my sig below) helped calm things down....so although it's a "golden rule" about crohnies being advised against smoking, nothing is written in stone and with IBD being so individualistic that should be taken into consideration as well...BTW, smoking doesn't necessarily help every UCer either, so that also goes to show nothing is written in stone (but it is for the majority that smoking is a negative for CDers causing more issues with the small intestines, as well as it is a benefit for
UC). All in all, it makes me nervous for you that your GI isn't aware of smoking regarding crohn's.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/5/2010 2:09 PM (GMT -7)   
Athens:  I think quiting smoking is always the better thing to do - yes hard to quit but look at it from the whole body perspective -all of your health is negatively affected.  Most people know about lung affects, increased colds, pneumonias, chronic lung diseases, increased cancer risks etc. 
 
The diagnosis of Crohn's disease indicates an interferance with normal nutrient uptake which causes marginalized nutritional status.  Smoking causes huge interference with bone health and results in significant bone loss and poor bone recovery.  As a woman ages its a double whammy- nutritional loss/malabsorption, menopausal changes/loss and coupled with smoking creates a perfect storm for horrible osteoporosis. 
 
Don't be distressed by this, just use this as motivation for change and use the resources out there that will help you be sucessful.  Some suggestions for smoking cessation -patches, gum, mind/body/relaxation techniques etc.  Hope this helps-and plus-do it for your family if not for yourself.  Take care,
 
Barb
 
References:



Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson

Post Edited (grumpygi) : 7/5/2010 4:33:08 PM (GMT-6)


mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 7/5/2010 3:16 PM (GMT -7)   
I have only one (well 2) problems with the thought of myself and quitting.  It is my stress reliever.  And I am under a LOT of that right now.   Trying to quit while the stress is huge is almost a guranteed fail.  Make sure the conditions are right for a better chance of success.  Something I am still striving to find.
 
And I am still overweight, and quitting smoking, I will put all the weight I've lost right back on.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/5/2010 3:32 PM (GMT -7)   
Ik-life is full of stress but maybe do substitutions.  Make a committment to exercise daily as a stress relief -double benefits - improved health and stress relief.  Great endorphin release just by a morning stroll or some type of consistent exercise where you get some time to think and be by yourself without the daily demands of life.  Its just subsitution really -we all find things to make ourselves feel better or cope with the daily stressors of living.  There is lots of research that indicates people are more sucessful if they have social support from friends/family/phone networks etc.  If your kids are small a daily walk in the park makes their morning (but might not be too relaxing for you!).  Good luck, am sure you will find great support here and in your personal life.  Take care, Barb 





Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 7/5/2010 8:00 PM (GMT -7)   
I agree you need to find something else to do even though you are under a lot of stress, when I gave up I had not long separated from my husband my daughters were giving me a hard time, my illness was always bad and I still did it. I replaced my smoking habits with drinking lots of cups of tea :-) and admittedly I still drink lots of tea but its better than lighting up. You really will feel much better not smoking. Good luck

ATHENSGIRL2
Regular Member


Date Joined Apr 2010
Total Posts : 81
   Posted 7/6/2010 12:39 AM (GMT -7)   

you are all so wonderful and supportive, thank you so much.  You are right, I quit twice in the past when I was pregnant with my girls, so I'm sure I can do it again. 

Thanks again, so hot cool here in Greece today doesn't help alot.

Christina

 


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/6/2010 4:35 AM (GMT -7)   
Christiina:   would love to be in Greece and "walking" with you . . . .dang . . .a place I've always wanted to visit. . . . someday . . . take care.  Barb



Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 7/6/2010 7:31 AM (GMT -7)   
My GI told me that cigarette smoking and taking Ibuprofen are the two biggest no-no's with Crohn's patients.

Angela 
Crohn's Disease for 18 years.. 1st Resection June 2009 developed anastomostic leak and EC fistula. 2nd Resection, April 1, 2010-to fix leak and fistula-feeling fabulous now.  Taking 100mg Imuran for maintenance. 


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 7/6/2010 2:10 PM (GMT -7)   
Forget the question of smoking....let's focus on your doc's comment that surgery isn't a permanent solution - did he say what WAS a permanent solution because a lot of us would really like to know. Surgery puts many people into remission for long periods of time - more than are getting long-term remission from any of the drugs we're using.

ATHENSGIRL2
Regular Member


Date Joined Apr 2010
Total Posts : 81
   Posted 7/7/2010 3:00 AM (GMT -7)   

cleo35: my doc says there is no permanent solution, that's why it's a long-life disease.  There are people who were lucky to have surgery and went into remmission for years, but there are others -according to him- that had a recurrence only 2-3 months after their surgery.  For me personally, it is not an easy decision to have surgery because I'm very scared of the procedure, plus I haven't used all the "big guns" in terms of medication, meaning I haven't tried azathioprine, Remicade or Humira yet, so he wants to see if we can use some of these first before deciding to have surgery.  Generally speaking here in Greece, surgery for Crohns is considered the last option.

Christina

 


JAB
Regular Member


Date Joined Nov 2003
Total Posts : 351
   Posted 7/7/2010 11:53 AM (GMT -7)   
I noticed that you mentioned Humira in the last post. My doctor says that smoking diminishes the healing ability that Humira provides. So this may be a consideration if you are put on Humira.
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