Anyone lost their voice?

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sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/5/2010 4:19 PM (GMT -6)   
This might be completely unrelated, but I figured I'd see if anyone has ever lost their voice due to Crohn's? I've never in my life lost my voice... It's not entirely gone, but very whacked out! But, I have absolutely no cold symptoms. Just thought I'd ask...
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


mtgman
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Date Joined Mar 2005
Total Posts : 1285
   Posted 7/5/2010 4:27 PM (GMT -6)   
i've been dealing with sinus issues for a while- i have a "lost" very scratch voice from that lots of times.
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/5/2010 4:56 PM (GMT -6)   
Thanks... I don't seem to have any cold symptoms. I get allergies mid-May through July, but not only have I been on 2-3 Allegra/day plus a steroid nasal spray, my allergies seem pretty much gone for the season. And, I haven't had a sore throat at all. However a couple of times in the night I've woken with a sharp pain near the adam's apple area. No typical sore throat swelling... I'm just worried since Crohn's can affect mouth all the way down, could it be affecting the area of my throat near the vocal cords?
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 7/5/2010 5:30 PM (GMT -6)   
Yes, I get sores in esophogus all up and down and in my mouth .. bad ulcers and when it flares it affects my throat and voice ... I sound real sultry and I'm in phone sales, ha! Hang in there! Either it will get better or worse. It can also be caused from side affect from prednisone or from acid reflux too .. hang in there!
44-single mom diagnosed with Crohn's 2004 via pill camera    6MP kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - now on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosed hemorrhoids (external as well as internal).
 
Fibromyaglia; migraines; herniated disks C5,6 and arthritis in neck; asthma; scolisis in back/arthritis.
 
 
 


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/5/2010 5:46 PM (GMT -6)   
champagnekindofgal:  Hi, sometimes people can have such severe heartburn (stomach acids moving up and out of the stomach) that it reaches the larynx and scalds the larynx resulting in essentially a swelling of surrounding tissues from the burning of the stomach acids.  The swelling causes failure of the vocal cords to close or move adequately resulting in people have a horseness or loss of voice. 
 
This moves it from Gastroesophageal reflux to gastroesophageal disease and needs to be evaluated by your physician.  If your GI dude doesn't address it appropriately  the next in line is ear nose and throat docs (ENT'S).  There are important reasons to control this through diet modification, exercise and medication adminstration/alteration as long standing GERD can cause Barrett's syndrome.  Over the counter proton pump inhibitors (ie priolsec) are not as effective as prescription) but will do until you can be adequately evaluated and treated.  In the meantime-do away with acidic foods -tomato sauces, spicy foods, alcohol etc.  Sleeping in a recliner can help or more upright. 
 
Take care, Barb
 

References:
 
 
 

 



Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/5/2010 6:10 PM (GMT -6)   
Thanks guys. Those are the things are worried of. I get heartburn occasionally, but not typically. Coincidently, I have both an appointment with my primary (Tuesday) and my GI (scope on Thursday). So I suppose I will get to the source of it one way or another. It's been this way for 5 days now without change. If it's still this way on Thursday, and my primary doesn't find a cause, I will ask the GI to stick something down my throat while I'm sedated. ;-) May as well take advantage of the situation!

Thanks for the input, I really appreciate the support!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 7/6/2010 6:56 AM (GMT -6)   
Oooh, glad you posted this. I started on Prednisone & Imuran 3 weeks ago and since then I've had this weird, raspy/vibrating/croaky voice. It's been driving me nuts. I've been worried that it's the Crohn's affecting my vocal cords. I literally JUST put on my TO DO list to go to the doctor to have it checked out. Since champagnekindofgal thinks it could be a Pred side effect, I may wait until I'm off the Pred to see what happens...
Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
38/F/SC
Current Rx's: Colazal (generic), Omeprazole (PRN), Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills; Slow Fe (PRN) 
Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
4/7/09: Gall bladder removal laproscopic surgery (gall stones)


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/6/2010 1:05 PM (GMT -6)   
So dusted off a few brain cells and started to post that prednisone makes reflux worse in some people and then thought hmmm, might just google it so that you have a reference to cite for your lovely doctor . . .just in case he tries to blow you off. Tums in the mean time . . .great source of calcium!

Here it is: (and from a reputable web site to boot!) http://www.medscape.com/viewarticle/506303



Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 7/6/2010 5:20 PM (GMT -6)   
Ok, my croaky voice turns out to be drainage...clear drainage that my doctor could see in my nose. Go figure. I'd never have guessed. Usually I can feel drainage. SR5599, maybe the same issue with you? Hope so. Drainage we can deal with! :)
Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
38/F/SC
Current Rx's: Colazal (generic), Omeprazole (PRN), Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills; Slow Fe (PRN) 
Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
4/7/09: Gall bladder removal laproscopic surgery (gall stones)


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/6/2010 9:01 PM (GMT -6)   
Nope - the primary doc took a look at the throat, tonsils, etc. No drainage, no sign of cold/infection. (didn't feel like I have a cold) Asked about heartburn and said to see an ENT doc in a week if it's not better. But, thought it was likely laryngitis, a virus of its own. Flex sig on Thursday... The primary said the GI wouldn't see anything because it's not the esophagus tube but they need to look down the "wind pipe."

KittiKatt (love your name btw) - I hope it stops for you soon! It's no fun to not have a proper voice and constantly answer the questions! ;-)
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 416
   Posted 7/7/2010 11:24 AM (GMT -6)   
I get close to losing my voice all the time. Mainly because I'll forget or skip a dose of my omeprazole. I always feel like i have a cold though. A cold that never seems to go away. But then again my mucous glands are secreting more than they're supposed to so that could be a cause. Everything is so scratchy now, I used to have a pretty singing voice and can barely sing now. :(
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008
Possible Rheumatoid Arthritis

Medication: Pentasa 6x daily, Imuran 50 mg, multivitamin, Vit B12 1 g, omeprazole. Sulfasalazine


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/7/2010 2:10 PM (GMT -6)   
I've talked to my GI about my voice before and he said it was probably the acid reflux and me talking too much.  He has Crohn's himself (and I guess reflux) and said that after he does dictation all day, he can barely talk.  I've watched and it does seem to happen after I've been training people at work all day.  Also talked to the endocronologist about it before to see if it could be my thyroid and she said it could be but referred me to an ENT.  I haven't gone...it's something I can deal with.  I haven't noticed the prednisone making it any worse, thank goodness.

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

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