Thoughts on Cimzia

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NJGirl04
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 7/5/2010 8:00 PM (GMT -7)   
Hello,

I just started taking Cimzia (after Remicaide for 4 years and Humira for 1 year have failed).  I just took my 2nd dose and so far have experienced side effects such as intense migraines & hives but no Crohn's relief which I don't expect to see for another month or so.
 
Has anyone had Cimzia work well for them after they tried Remicaide and Humira? If this doesn't work, my next step is surgery :(
 
Thanks!!
 
~Robin~
 
Crohn's since 2000 / Lyme Disease 2009
Currently on: Prednisone (30 Mg), Cimzia & Bentyl 
Previously was on: Pentasa, Asacol, Flagyl, Remicaide, Humira, Entocourt
Hospitalized more times than I can count... I could probably glow in the dark if you turn off the lights from all the tests!!!!!!!
 

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 7/5/2010 8:08 PM (GMT -7)   
I have a close friend who has been on cimzia for about a year and a half (i think) and it has been working very well for her. Hopefully some others will come along with personal experience with the medicine.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 7/5/2010 9:04 PM (GMT -7)   
I've been on it for 2+ years and I have no issues...
My crohn's isn't well controlled anyway, but Cimzia (and biologics in general) make it more manageable and less painful, but then again, I am somewhat atypical in presentation...
"The earth laughs in flowers"


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 7/5/2010 10:16 PM (GMT -7)   
Cimzia has gotten me most of the way, but I still have some D, and now have moderate headaches usually every day.
Cimzia, Asacol


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/6/2010 2:48 PM (GMT -7)   
Remicade put me into remission for 2 years when I lost it. :-( I failed Humira mostly because I tried it *right* after it was approved and really needed shots every week. When my insurance didn't approve that, I tried Tysabri (this was before Cimzia was approved). I was too anxious on Tysabri, so I have switched to Cimzia. I can't say it puts me anywhere near remission, but I do think it's helping to some degree. Like my doc says, maybe it's keeping me out of the hospital.

Oh yeah, my doc added mtx about 6 months ago, because Cimzia alone wasn't helping enough. Tomorrow I have a scope to see what's up in there, and to determine whether I continue the mtx. I will stay on the Cimzia though. Even if it's only helping a little, it's better than nothing! My next step is an ostomy (either temp or permanent, I'd probably try the temp).

Good luck with it!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


NJGirl04
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 7/7/2010 7:53 PM (GMT -7)   
Thanks for the input. I am really hoping it works although now I feel worse than I did before I even started taking it!! I am hopig that once I am to the point where I am taking it once a month, the migraines will subside, they are really terrible :(
 
~Robin~
 
Crohn's since 2000 / Lyme Disease 2009
Currently on: Prednisone (30 Mg), Cimzia & Bentyl 
Previously was on: Pentasa, Asacol, Flagyl, Remicaide, Humira, Entocourt
Hospitalized more times than I can count... I could probably glow in the dark if you turn off the lights from all the tests!!!!!!!
 

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/8/2010 7:30 AM (GMT -7)   
I took Cimzia for a year on a clinical trial and it was the best year I'd had in quite a while.  When the trial was up, I decided to switch to Humira, just because I was still having some arthritis problems.  Cimzia kept my Crohn's in remission.  I tried Humira for about a year and switched back to Cimzia because of worsening arthritis problems.  Moving twice in a month and fixing up a foreclosure has put me in a worse arthritis flare and started causing stomach and Crohn's problems as well, so now I'm switching back to Humira, just because I'm out of options.  So, Cimzia works about as well for me as anything else (except Mtx, but I can't take that due to elevated liver enzymes).  And, it's less painful than Humira!  I will say, though, that it wears off before the 4 weeks is up for me, so we tried doing just one shot every 2 weeks and that's not any better.  I got the full 400 mg every 2 weeks on the clinical trial and it worked so much better then.  
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 7/8/2010 5:28 PM (GMT -7)   
I have been on Cimza almost a year (sept) and at first didn't really think it was doing anything.
But I have been pretty good for some time now.  The only thing I don't like is usually within a few
days of my injections I get really bad gas for a few days and almost like it flares my crohns up
and puts me in the bathroom. But this only lasts a few days and then I'm good again.  I also
have put on a lot of weight and not sure if it is from the Cimzia or if it's because I am feeling
better so eating better.
Living with Crohn's Disease since Jan./2000 
I'm a true Crohnie with IBS and Arthrities too. I have Crohn's very mild compared to a lot of Crohn's people.
 
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               Cimzia Injections. Just started on 9/30/2009                      
No Surgeries
 


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 7/8/2010 5:46 PM (GMT -7)   
I was also wondering if your prednisone might be causing some of the headaches, especially if are tapering down...I know it did for me...Your signature states that you are on 30mg, and I also know that I also had issues with low potassium while on prednisone...I was on the steroids for over 3 years...the Cimzia allowed me to get off it...but it DID take awhile, with some setbacks...
Good Luck
"The earth laughs in flowers"

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