Stopping Pentasa

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New Member

Date Joined Jun 2010
Total Posts : 8
   Posted 7/7/2010 9:37 AM (GMT -6)   
I recently had all my scans done and they showed that the Crohn's is still active, worse than my scans in the fall and is spreading...great news huh!  shakehead   am currently on remicade infusions and am waiting for plan B to happen with my docs. I have been taking 8 pills of Pentasa for 2 years and decided to stop that as well...that does not seem to be working either. I have to say, since stopping the Pentasa, I feel much better!!! I don't know if this is coincidence or not. Has this happened to anyone before?

Regular Member

Date Joined Nov 2003
Total Posts : 351
   Posted 7/7/2010 10:40 AM (GMT -6)   

Late last year I found a new GI that told me to stop taking Pentasa. He said that it did nothing to help maintain remission with the Crohns I had. I didn't ask him much about it, just happy that I wasn't taking 12 pills a day. So apparently in one way or another it's been determined that Pentasa does not treat Crohns at least in the area I have it (terminal ileum).


Glad I paid out all those co pays for something that serves no purpose. rolleyes

New Member

Date Joined Jun 2010
Total Posts : 8
   Posted 7/7/2010 10:50 AM (GMT -6)   
I have it in the terminal ileum! I also have heard that Pentasa is there to maintain remission---well I have not been in remission for the 3 years I have had it, so what is it maintaining?? I just know I have felt much better in the last 10 days since not taking it. We will see what they come up with i guess.
Diagnosed in 2007
Currently on Remicade and Pentasa
Tried Asacol and 6-Mp- which gave me Pancreatitis
Recent scans are not good- waiting for a new plan
" Life is not about waiting for the storm to pass, it's about learning to dance in the rain"

Regular Member

Date Joined Jul 2006
Total Posts : 73
   Posted 7/7/2010 11:12 AM (GMT -6)   
I have signs of active Chron's for the past 2 years in the terminal ileum but have still decided to remain solely on Pentasa. My Dr. keeps telling me that i should go on 6mp but i don't wanna go down that road as of yet.

27 years old
CD for 20 years
Bowel resection in Dec. 2006
Pentasa 4000mg

Veteran Member

Date Joined Jan 2010
Total Posts : 794
   Posted 7/7/2010 12:53 PM (GMT -6)   
Son has it in and around TI area too, was told he could come off the pentasa back in April, two weeks later he was back on it due to pain and elevated inflammatory markers in his blood sample.

Veteran Member

Date Joined Nov 2007
Total Posts : 4055
   Posted 7/7/2010 2:44 PM (GMT -6)   
I have read that the research seems to indicate that Pentasa does no better than a placebo pill to maintain remission, but my GI doc feels that he has many patients who seem to benefit from it. I am doing well so I'm trusting him and continuing to take it. It is very expensive, and I do often wonder about it though.
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics

Regular Member

Date Joined Sep 2007
Total Posts : 317
   Posted 7/8/2010 7:48 PM (GMT -6)   
I take 3 pills 4X a day. I stopped about a year ago and did have a flare, but it wasn't immediate. Now, have started again. My GI really believes in Pentasa (at 3000 mg/day taken 4x daily) as a way to maintain remission.

He thinks less than this dose is a waste of time. I have trouble getting the 4th dose in so am really trying to be more consistent, but I don't have a strong sense about efficacy.
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.

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