Bowel Obstruction and Remicade

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Skylardaisy
Regular Member


Date Joined Jul 2008
Total Posts : 36
   Posted 7/7/2010 9:09 PM (GMT -7)   
Hi.
I was just released from hospital after a week's stay. Had my second serious small bowel obstruction in 7 years (no surgery, thank goodness).
I have been on Remicade infusions since March with fairly good results but am wondering now if my GI doc will allow me to keep taking it. My CT scan showed swelling at the ileal coecal valve, which caused the obstruction. I don't see my doctor until July 23. Does anyone know what the protocol is ?
Thanks.

tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 7/7/2010 9:54 PM (GMT -7)   
Hi- I'm not on Remicade but Humira (since April). My big Crohn's issue is obstructions, with 6 in the past year with a hospital stay like yours each time. In my experience with my most resent one, my Dr suggested giving this type of medication a bit more time BUT is strongly considering surgery (my 2nd resection). Without more info on your situation, I'd guess your GI might suggest additional meds and giving remicade more time as well before anything more drastic. Feel better!

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 7/8/2010 6:36 AM (GMT -7)   
I'm going in for my 2nd infusion of rem. I have cd pretty bad in my throat and small bowel. I've noticed that my throat has cleared up abit, but not my small bowel, that seems to be protocal, give rem pretty legitamate chance to work. it's up to the patient to say it has worked or no relief. so far my protocal is 2weeks, 2 weeks, then 6 weeks. then gi visit to find out how it has been. if I have issues in between I have vicodin for pain, which I've needed. but it is nice to be able to swallow without feeling of choking. I also have not taken acid reflux since 1st infusion.thats after 10 years of prilosac.no acid burn

artist guy


Skylardaisy
Regular Member


Date Joined Jul 2008
Total Posts : 36
   Posted 7/8/2010 9:49 AM (GMT -7)   
Thanks for the replies. Artist Guy, I can't even imagine what it must feel like to have CD in your throat, my heart goes out to you !
I guess I really haven't been on Remicade long enough to know permanent (semi permanent)? results. I will wait and talk to my GI before getting too crazy about the whole thing.
Take care and thanks.

Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 7/9/2010 8:34 PM (GMT -7)   
Before I went on Remicade I had severe narrowing at the resection site. I was told by my GI that I could not take remicade at that time because it can cause narrowing of the small bowel. I had another resection then started remicade.

Julia

ShammyD
New Member


Date Joined May 2011
Total Posts : 6
   Posted 6/1/2011 6:43 PM (GMT -7)   
I am really suffering from long-term use of Prednisone, and I want to try Rewmicade. So does my Rheumy, for other reasons. But my GI says no, because I have Crohn's with a stricture, which caused a week long hospital stay recently (i ate a carrot!) and because of the stricture Remicade is contra-indicated. Julia, how are you doing now? I am desperate to get off the pred, real currently I have no GI doc. Advice or experience anyone?
-- Shammy
I am NOT my disease, but I do have: Crohn's, Sjogren's, Sero-Neg RA, Fibromyalgia, Breast Cancer, Diverticulitis, GERD. My mother, sister, and brother also have Crohn's. Biggest problem is severe stricture in my small bowel, and adhesions from multiple surgeries.

Post Edited (ShammyD) : 6/3/2011 5:44:55 PM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 12:37 PM (GMT -7)
There are a total of 2,735,435 posts in 301,303 threads.
View Active Threads


Who's Online
This forum has 151409 registered members. Please welcome our newest member, badnado7897.
339 Guest(s), 8 Registered Member(s) are currently online.  Details
Xfitmama3, tickbite666, Scaredy Cat, Girlie, reminder, ASAdvocate, InTheShop, Tim Tam


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer