why would they want to do that!

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crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 7/9/2010 4:25 AM (GMT -7)   
Since october 09 I have been fighting to get on some meds for crohns the docs keep fobbing me off with " you don't need anything right now but, if you get a flare up we will zap it with steriods!" what the hell, I don't want to wait for  a bloody flare up I want to be on something  to help keep it at bay. I have had 19 months of hell with ops,  reversals and right now I feel ok and thats the way I want to stay where do I go from here? I have a GI appointment today what do I do if they say no again to meds? any info would be great thanks so much Bev x  
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.

“I may not be where I need to be but,
I thank God I’m not where I use to be “


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/9/2010 4:52 AM (GMT -7)   
i'd be looking for a new GI personally. The damage is still going on microscopically, even though you may have no symptoms. Stupid doctor!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 25mg prednisolone, calcium supplement,
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/9/2010 5:18 AM (GMT -7)   
Yep I would tell the GI just what you told us and if he still gives you the run around I would find another GI. You dont need another flare...Let us know what happens...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 7/9/2010 9:42 AM (GMT -7)   
Thanks for yor replies, well I got the result  I have been waiting for at long last am being put on Humira had chest x-ray to along with blood test for TB check should be starting next week, a little apprehensive about injecting myself  Don't know if I will be able to do it has I hate needles but, ill give it a go thanks again. Bev X  
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.

“I may not be where I need to be but,
I thank God I’m not where I use to be “


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/9/2010 2:52 PM (GMT -7)   
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