I saposse this is mostly just a vent....thanks in advance for reading. My brother has MS. He is 41 years old and was dx with MS at 24. He was totally wheelchair bound at 35ish and now has home healthcare daily 4-5 hours. He wears a bracelett that he can call 911 for assitance if he has too. He is divorced with 2 children. Does not have custody. But, to really top it off both of my parents have died so that doesn't leave much family support. I moved away from him 6 and half years ago because my husband had a job move. It was a hard decision to make but we had to put food on the table. Now, living 14 hours away from him... it is heart breaking. He is a Veteran so when we moved I moved close to a Vet Hospital assuming down the road he would join us. He goes in and out of the hospital/nursing home...back and forth...yada yada. His quality of life is just getting so bad! If he moved closer to me... he would not see his children...hardly at all and I feel this plays a big factor in him moving...and he's just scared of the change.
I guess with MY health situation (Crohns, Fibro, Diabetes, Depression).....I'm not a really good canidate to have him "live" in with me.
Matter of fact... he is a big man..and I could never lift him. His memory comes and goes. I think MS is starting to effect him neurologically. He is very stubborn and insist on living on his own as long as possible. How does a person go about getting someone in a nursing home who doesn't want to go? I would hate to go against him..but I feel for his saftey we may be at the point. Nursing homes are so sad though. Most of the people are older and he feels out of place. Right now he is getting 100 percent disability coverage through the service. For that I am thankful! If he did go to a Vet hospital...I fear they would take it all and he likes being able to give to his children.
Anyway...thanks for reading. Always feels good to get somethings out:)
"Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!