Need advice please. Cronie vs the healthcare system

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 7/9/2010 12:10 PM (GMT -7)   
Hello everyone I am in desperate need for some medical knowledge . I think everyone is aware of " crohns arthritis". I have been seeing a rheumy for this for over a year now. The problem is the VA wants a letter from my doc explaining how these conditions. I'm rheumy is not willing to write me a nexus letter because he says there is no way for him to prove crohns is what gave my arthritis. The problem is my labs always come back nomal. I once heard it is common for these tests sed rate, erp,etc can be inaccurate in crohns patients. So this doc won't vouch for me be he dosent mind taking my money every month. I'm 31 Years old and every joint in my body aches horribly. Does anyone out there have any knowledge about crohns arthritis 0
30yo male
Currently on LDN for Crohn's with good results
 
63cm resection in '08, exausted all meds except pred :)
Avascular necrosis of both hips, Degenerative Disk disease with 5 herniated disk, Asthma, etc etc....


crohnniedoe
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 7/9/2010 12:26 PM (GMT -7)   
See if your GI doctor will write the letter, and get a new rheumatologist. There are many conditions that go along with Crohns due to the inflammatory process of the disease. If the blood has the inflammatory process in it, and the blood runs through it, then it stands the chance of being inflammed and problematic. It's inflammatory disease 101. The rheumatologist just doesn't want to be held liable, which is his choice. If it were me, I'd get another dr to take my money every month,,,,,,I'd ask my GI if he knew someone who knew about crohns related arthritis first tho. Good luck
By the way, I'm an RN, have been since 93.

tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 7/9/2010 1:06 PM (GMT -7)   
I have Crohn's related arthritis. I thought it was common knowledge that you could get it? I'm sitting on my couch right now feeling crappy because my knees are killing me. I'm 28 btw. But I never had to go take any tests for it, they just knew it was from the Crohn's. They did give me celebrex but I think that stuff it worthless.

redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 7/10/2010 7:29 PM (GMT -7)   
Thanks

I made an appt with him next week to find out what his deal is. What could he be concerned with?
30yo male
Currently on LDN for Crohn's with good results
 
63cm resection in '08, exausted all meds except pred :)
Avascular necrosis of both hips, Degenerative Disk disease with 5 herniated disk, Asthma, etc etc....


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/10/2010 7:45 PM (GMT -7)   
Is your GI thru the VA?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 7/10/2010 8:10 PM (GMT -7)   
No the VA about killed me a couple of times. I stay as far away as possible when it comes to my medical treatment.
 
They have covered me for my crohns though.
30yo male
Currently on LDN for Crohn's with good results
 
63cm resection in '08, exausted all meds except pred :)
Avascular necrosis of both hips, Degenerative Disk disease with 5 herniated disk, Asthma, etc etc....


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 7/11/2010 11:23 PM (GMT -7)   
I am one of us that really has bad arthritis and we are about the same age. I am only 30 and for a long time my original G.I. would not treat the arthritis pain but my new one recognizes it. My primary care is the main person that has been treating the pain and sends me in for the majority of my scans and tests. If you do have arthritis, it should show up on a x ray or mri. I have really bad back issues and everytime we do a MRI they always send back my results with arthritis caused stenosis through the whole spine. Obviously this is not normal for a 30 year old man and that would be evidence for your medical treatment. My rheumy could see the arthritis but was baffled at how to treat it since I was already on the max dose of remicade and could not take nsaids. She tried me on methotrexate and 6 mp but it raised my liver enzymes to dangerous levels despite helping with the arthritis. I know use pain medication9 neurotin and hydrocodone 10's) to help me function and from time to time still take a nsaid if I am really bad.(not a good example but sometimes benefit is greater than risk)
Please realize that many old school G.I.s are stuck in the mindset that there is no such thing as Crohn's arthritis but now medical journals are starting to recognize it as a fact. Because it is just really starting to be heavily studied, there is not much known about it or how to correctly treat it. For me the arthritis pain is just as bad if not worse than the abdominal pain because it is a constant thing. Many days I feel like the tin man from the wizard of oz and wish that I could find an oil can. Please talk to your G.I. or atleast to your primary care doc about the pain and they can do the necessary mri or x rays to provide you with evidence for treatment. I would also speak to a pain management clinic about helping with your pain.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 7/12/2010 1:36 AM (GMT -7)   
My GI said that inflammation in the gut can cause joint problems. While I have a positive blood test for crohn's, it hasn't shown up on my biopsy, it's just garden variety inflammation. Either way, this year, I developed horrible joint pain. The rheumy put me on prednisone and it went away (so far.) Get to someone who will take care of your needs. Sorry you are going through this, but it happens to most of us at one time or another with docs. Good luck!
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil back on cymbalta for pain, nexium for reflux, wellbutrin
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA
Collitis doing OK for now, it's fatigue and joint pain that are plagueing me right now!!!

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