Neoplasia - just read report

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sr5599
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Date Joined Aug 2007
Total Posts : 1202
   Posted 7/9/2010 11:05 PM (GMT -7)   
So I finally found the written report for my scope. I knew he'd taken a biopsy - that seems pretty standard. But it just read the biopsy was from a colonic neoplasia- the photo shows an ulcer that looks very different. It's like lips around it ... I'm scared of cancer now, of course. I'll call my GI on Monday but I thought I'd see if anyone on here knows what that means?

Thanks in advance. Guess it's fair to say I'm scared and near overwhelmed.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


CrohnieToo
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   Posted 7/10/2010 11:07 AM (GMT -7)   
From Taber's Cyclopedic Medical Dictionary, 18th Edition, 1997
 
Neoplasm = A new and abnormal formation of tissue, as a tumor or growth. It serves no useful function but grows at the expense of healthy organism.
 
Tumor = A swelling or enlargement. Swelling, one of the four classical signs of inflammation. The others are calor (heat), dolor (pain), and rubo (redness).
 
Bear in mind that many tumors are benign.
My computer says I need to upgrade my brain to be compatible with its new software.


sr5599
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Date Joined Aug 2007
Total Posts : 1202
   Posted 7/10/2010 1:02 PM (GMT -7)   
Thanks CrohnieToo. I guess I'll know when I get the biopsy result. Until then, I'll let it leave my mind. In some ways, it would make the ostomy easier...
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


ivy6
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Date Joined Sep 2005
Total Posts : 10404
   Posted 7/10/2010 2:33 PM (GMT -7)   

grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/10/2010 3:24 PM (GMT -7)   
sr5599: Ok, deep breath, don't panic. Its a shame really that these types of words are released in any form to the general public without the benefit of discussion with the ordering or treating physician. I am attaching a great reference that helps to sort through the verbiage and hopefully will calm your fears. Remember we all have cells under different stressors and sometimes they can begin to mis-code themselves. This doesn't automatically mean a cancerous condition -so read through this article. I hope it helps and holler if you need more assistance. Just copy and paste this web address into your browser it should be a direct link. Best always, Barb

Reference:

http://www.helium.com/items/1354248-difference-between-metaplasia-heteroplasia-dysplasia-neoplasia-hyperplasia-anaplasia



Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/10/2010 6:28 PM (GMT -7)   
Hi, your response triggered a prompt to provide another link for you -abberent cells are staged and graded and treatment adjusted accordingly. Most often one hears of cervical cancer staging but it is true for any abnormal cell line. An actual diagnosis of cancer is a hijacking of blood vessels and nutrients by cells that are being reprogrammed to take over and run amok. These cells multiply, develop their own circulation which increasingly hijacks the flow of nutrients and blood flow from the needs of surrounding tissues. The result is increasing interference with normal physiology. Some abberent cell lines progress so extremely slowly that no intervention is required because one runs out of life before the cancer is problematic (often seen in thyroid cancers) and other abnormal tissues need stepped up therapies -hence the need to discuss these issues with the specialist who see, understand and treat these issues frequently.

I know this is easier said than done but try to recognize how blessed you are to have found this early rather than later, that treatments have really evolved which gives you time to do your homework. I always google my providers and read extensively the research they have been involved with, their rating profiles (what other consumers say about them, how responsive the office staff are as well as to start querying my network of friends, peers and resources for best possible providers. One of my favorite web sites is ratemds.com . . . in using these web sites ya have ta remember that under the bell curve of normal the outliers are those that are motivated to post on this type of forum. What that means is that people are extremely happy or extremely pissed off -the "average" person isn't motivated to make a positive/negative statement. I always think that the more informed I am the better armed I am, but that probably is controversial! Sometimes there is prudence in just trusting one's provider and their recommendations also.

the following web site trustworthy -but remember in all of this - its a miracle that this has been identified early so take comfort in this. take care, Barb

Reference:

http://www.cancer.gov/cancertopics/factsheet/Detection/tumor-grade



Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson

Post Edited (grumpygi) : 7/10/2010 7:32:27 PM (GMT-6)


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/10/2010 9:16 PM (GMT -7)   
Thank you, Barb... And thanks for the hug, Ivy!! I am thankful it was found and biopsied. I don't yet know the pathology report, so I will hold it at a distance for now. Of course, it's still scary, but I recognize it's early even if it's "bad" news. I feel good that both my doctor and my surgeon have been rated in the top 100 local doctors. In fact, my daughter's step-mom is a surgical nurse and worked beside my surgeon. She says she's great. That makes me feel confident in her and my GI's opinions. I've switched GIs several times, this guy is great. My last was very competent, but bedside manner clearly lacking.

I appreciate your help, I really, really do. The article is very informative. For all I know, I'll find out it's a normal polyp. But, I've had polyps removed and biopsied and they looked different, I'm sure that's why the doc referred to this differently. It may be nothing. So I need to focus on not worrying beyond the usual. When the news comes in, I can make informed decisions. Maybe I need a push to do the "right" thing. I have a daughter that I need to be strong and healthy for. This vanity fear of an ostomy is something I need to work through. Geez, it's not as if the fistulas and tags are attractive! ;-)

I'll update you guys when I get the report in. My follow-up visit is not until 8/3, so I might see if I can move that up. I meet with my surgeon on 7/21 and I'd love my GI's opinion prior or around that same time...

Thank you again for the support and information!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia. Dx Osteoporosis 10/08 started Forteo 1/27/09

Post Edited (sr5599) : 7/11/2010 9:17:59 PM (GMT-6)


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/11/2010 1:23 PM (GMT -7)   
sr5599: Would you mind if I asked you a question or two? First-did you take your Iphone into the procedure with the knowledge of the staff (like where would you hide it under a hospital gown-and with a vivid imagination I can think of a variety of suggestions/methods). Uhhh . . .maybe shouldn't go there. Did your providers give you this report or is this what you heard on the recording? Thanks, hope your feeling better. Barb



Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/11/2010 8:02 PM (GMT -7)   
The report talked about the biopsy for neoplasia. It has not been confirmed, that's why the biopsy. Really, I was scared when I first read it, but I'm feeling much better. And, the ileostomy is something that's been recommended to me by several doctors for years...

ps - maybe the phone thing wasn't appropriate, but I figured it is my right to "remember" - since I wasn't really sedated for the procedure anyway, i was talking to them through almost all of the exam. I was glad to get to watch a part of the scope on the monitor. Lucky me even got to see the healthy parts!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia. Dx Osteoporosis 10/08 started Forteo 1/27/09

Post Edited (sr5599) : 7/11/2010 9:36:29 PM (GMT-6)

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