Update from Nanners (updated)

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Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/11/2010 11:05 AM (GMT -6)   
Hi all!
Well surgery is over and I finally made it home late Friday night.  They were able to do the surgery via laproscope, but not so sure what difference it made as I am still in extreme pain.  I cannot walk upright yet, kinda walk around hunched over all the time.  I move really really slowly.  I am still on Dilaudid 2 mg every 3 hours in order to keep me reasonably comfortable.  I have had 3 prior laproscopic surgeries before, and NEVER have I been in this much pain.  My side and back are black and blue from where they inserted their tools.  Its still very hard to get up and down from either a sitting or lying position.  I think the bad pain is because they did it from a retroperitoneal approach (side and back) instead of the traditional abdominal approach.  They couldn't do the abdominal approach because of the multiple open abdominal surgeries I have had.  My side and back are black and blue and very swollen.
The good news though is that the type of cancer I had removed, will not reappear again, so I don't have to ever worry about having a repeat of this surgery.
When my bowels woke up it was much like when you have a resection then have the explosive diarrhea afterwards.  I still have to be VERY close to the bathroom at all times.  Why do these doctors never believe you when you say you have a very delicate system and that the meds ALWAYS mess you up?  I am currently re thinking on whether or not to go forward with my knee replacement.  I can't imagine having that explosive diarrhea and nausea/vomiting with a bum leg.  I am going to make an appt with the ortho doc to discuss these fears before I agree to going forward. 
I will only be around hit and miss for awhile.  I am still very weak, in alot of pain, and still need to sleep alot.  My wonderful husband is taking good care of me.  But I still have a lot of recuperating to do.  I will talk to all of you again soon.

Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
*~* http://www.healingwell.com/donate *~*

Post Edited (Nanners) : 7/16/2010 8:49:27 AM (GMT-6)

Regular Member

Date Joined Jan 2010
Total Posts : 37
   Posted 7/11/2010 11:41 AM (GMT -6)   
Hope you get to feeling better soon! I will be praying for you :-)
32 year old female
diagnosed with Crohn's disease July 2006
12/09 discovered I had 2 fistulas and an abscess

Recently started Remicade 12/09 in hopes to avoid surgery

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 7/11/2010 1:17 PM (GMT -6)   
A big gentle hug ((Nanners)) Glad the operation went well  and that your now home in the comfort of your own home to recover. sounds very painful what you have had done take it slowly and rest up I wouldn't even think about the knee op right now you have enough to deal with for a while. take care  Bev x   
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.

“I may not be where I need to be but,
I thank God I’m not where I use to be “

Veteran Member

Date Joined Jan 2010
Total Posts : 794
   Posted 7/11/2010 1:21 PM (GMT -6)   
Glad to hear that the news is good, albeit you are suffering!!
Take one day at a time and concentrate on today and let the tomorrows take care of themselves
gentle ((((((hugs))))

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 7/11/2010 1:42 PM (GMT -6)   
I'm glad the surgery is over for you, but so sorry to hear you're feeling so terrible after it. Hopefully you'll progress from here and feel better soon.

gentle (((hugs))) to you and well wishes.

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Regular Member

Date Joined Apr 2010
Total Posts : 69
   Posted 7/11/2010 2:39 PM (GMT -6)   
Get Better Soon!!!!
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently on: Monthly B-12 injections, 6MP, Calcium, Multi-Vitamin, Vitamin D, Prilosec, just starting Humira
Surgery scheduled: August 19 2010 - small bowel resection in TI

Regular Member

Date Joined May 2010
Total Posts : 266
   Posted 7/11/2010 2:43 PM (GMT -6)   
Naners: Thank God this is all over and you are on the mend. I am so thankful nothing more aggressive had to be done, am sorry that you are still in so much pain but it sounds like your docs have got you well covered and supported. Thanks for the update, glad you are on the mend and take care of yourself! Barb

Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson

Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 7/11/2010 2:51 PM (GMT -6)   
I am so glad you are home, and that you have some wonderful help as you recover!

Now is not the time to even be thinking about it, but I think I wrote before that the knee surgery might not be that bad. My dad had his in November and recovered very easily. He is 70, and although he doesn't have IBD he does have sensitive bowels. We joke that the change of water from one town to the next upsets his stomach. It is probably IBS. However, he used pain medication for about 2 days and then he had been so accustomed to living with knee pain that the recovery pain was nothing much in comparison. Apparently moving around will be fine. It is the standing that will be hard at first.

Anyway, I'm just saying that you shouldn't worry about that now. You should relax and recover for a while. Get lots of rest.

Take care :-)
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Nexium, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.

Regular Member

Date Joined Feb 2010
Total Posts : 403
   Posted 7/11/2010 4:30 PM (GMT -6)   
hugs to you .. sending you gentle hugs..
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 7/11/2010 7:12 PM (GMT -6)   
Oh, Nanners. Leave it to you to think of us. Thank you for letting us know the GOOD news about the cancer!!!! What wonderful news and load off your mind and ours. (((hugs)))
My computer says I need to upgrade my brain to be compatible with its new software.

Regular Member

Date Joined Sep 2007
Total Posts : 317
   Posted 7/11/2010 7:43 PM (GMT -6)   
So glad you're home. Hope every day gets better and better. ((hugs))
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 7/11/2010 8:14 PM (GMT -6)   
So pleased it's over, and the news was good, I'm sorry you're suffering my friend, but you know time is
a great healer. Rest and relax, you've been in my thoughts Gail, ((((gentle hugs)))))

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Regular Member

Date Joined Jul 2008
Total Posts : 440
   Posted 7/11/2010 10:33 PM (GMT -6)   
Get better Nanners! You've been through so much. Perhaps they can delay your knee replacement surgery awhile until your good and recovered. I've had 13 surgery's and know that after each one... it takes me a little longer to come around. My last surgery I had I actually went through 2 bottles of pain killers which is alot for me. My Dr.'s just kept reminding me that it was o.k. and to sleep and relax. Usually, it takes me double the time to recover than most. I hope you just get better...sounds like they really jerked you around with your ribs n' stuff.
Good luck!
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 7/11/2010 10:39 PM (GMT -6)   
I'm happy for you that you've made it through and got some good news. I hope you are feeling better quickly!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia. Dx Osteoporosis 10/08 started Forteo 1/27/09

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 7/11/2010 10:45 PM (GMT -6)   
Geeeez Nanners, so sorry you hurt so bad. Hopes and prayers for quick recovery and a gentle hug ((Nanners)). You need to discuss lots of things with your doc before you have knee replacement too. Motherinlaw had both knees replaced and she says it was the most painful thing she has every done . She is a tough one too so when she says something hurts I believe. Plus she found out after that she would not be able to knell again so when she has fallen she has had to scoot along until she can find something to pull herself up on . I have installed grab bars all over for her for that reason. I'm not saying dont do it , just find out all you can first. Take good care of yourself and feel better soon...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Veteran Member

Date Joined Nov 2007
Total Posts : 4053
   Posted 7/11/2010 10:48 PM (GMT -6)   
I hope you are out of pain and feeling better soon!!!!
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics

Veteran Member

Date Joined Jan 2007
Total Posts : 656
   Posted 7/11/2010 11:16 PM (GMT -6)   
Oh, Nanners, I'm glad it's over--but I'm so sorry that you're in so much pain. Just know that our thoughts are with you and that everyone here sends you our love and appreciation, as well as our hopes that you'll be feeling much better tomorrow.

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 7/11/2010 11:20 PM (GMT -6)   
thinking of you! hope you're back on your feet real soon!!!!
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.

Veteran Member

Date Joined Feb 2009
Total Posts : 1810
   Posted 7/12/2010 12:16 AM (GMT -6)   
So good to hear from you again Nanners. Bless your heart. Sorry you are in so much pain!!!!!! Thoughts and prayers are with you for less pain and a speedy recovery!!! Hang in there!!! Glad you have a good hubby to help you. He sounds like a keeper.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil back on cymbalta for pain, nexium for reflux, wellbutrin
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA
Collitis doing OK for now, it's fatigue and joint pain that are plagueing me right now!!!

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 7/12/2010 7:16 AM (GMT -6)   
Glad the bad stuff is gone . . . take it easy and recover at your own pace!

Veteran Member

Date Joined May 2006
Total Posts : 1177
   Posted 7/12/2010 8:50 AM (GMT -6)   
(((Hugs)))). Ouch. Sounds like you're hurting a lot, but hopefully you'll heal up and stop hurting soon. I'm glad the surgery itself went without complications. I wish you the speediest of recoveries.

Worry about the knee surgery after you've recovered from this one, don't think about it now. One step at a time.

Feel better soon.

Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission

Veteran Member

Date Joined Jan 2010
Total Posts : 8414
   Posted 7/12/2010 8:03 PM (GMT -6)   
Well, I'm very glad that the cancer is gone and won't ever come back! That at least is excellent news. Sorry that you're in so much pain, though. Hope you get better soon. Take care.

Regular Member

Date Joined Nov 2005
Total Posts : 174
   Posted 7/12/2010 10:24 PM (GMT -6)   
Glad the surgery went well and you don't need any further treatment.  Sorry you're in so much pain and I hope you feel better real soon.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 7/13/2010 10:53 AM (GMT -6)   
I'm doing my happy dance! I'm sorry you are in so much pain, but better to get it all out now than have to worry about things for months or years to come. Feel better soon.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/13/2010 2:59 PM (GMT -6)   
Thanks everyone for your kind wishes. Still in alot of pain, so much so, that I thought I was going to have to go to the ER this morning. I didn't stay on schedule with my pain meds, and when I woke up I started throwing up. OMG I thought I would die from the pain it was so bad. But after 2 more doses of my pain meds I am feeling a little better. My husband thinks I was trying to wean off the Dilaudid too soon. So I will give it a couple of more days then try moving down to the Percoset.

I am just so surprised in how painful this surgery has been. I just want to see "some" improvement, and haven't just yet. It get frustrating after awhile, I am sure you guys understand. Talk to you all again soon.

Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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