I have been lurking here for months and finally joined. 65 years old female. I was diagnosed with Crohn's in 1998. So far only in the colon. Tried all of the medicines and the only one that didn't make me feel worse was prednisone. Went off all medication for years, took prednisone when I had a flare and it usually stopped it quickly. Out of nowhere last year I starting bleeding really bad and ended up in the hospital. Dr did a colonoscopy (prep while bleeding heavily was interesting) and cauterized the bleed. Recommended surgery to remove 2/3 of colon. Had open surgery last September and after recovery felt better than I had in years and no longer looked pregnant. Follow up with the Dr. in January and he recommended I start Lialda to prevent another flare. I did not realize that it was mesalamine which I had a problem with before. Within a week of starting med I started bleeding again. Had colonoscopy and Dr. said Crohn's was active again and was probably the Lialda. Started prednisone - up to 40mg per day. Still bleeding. Started Humira in May. Loading dose stopped the bleeding within 4 days and I felt great. Bleeding started again within 2 wks. Look like I am pregnant or swallowed a soccer ball. Pain, feel crappy! I think I want to have the bad part removed and start over. Any suggestions? Would increasing the dose of Humira help?
Dx Crohn's in 1998. Unable to tolerate most meds. Subtotal Colectomy last September. Currently on Humira and prednisone.