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JulieFrances
Regular Member


Date Joined Sep 2009
Total Posts : 63
   Posted 7/12/2010 8:13 AM (GMT -7)   
This might be a silly question, but how did the dr know you had crohns/colitis?  What tests did the dr. do?  My doctor has only done colonoscopies and the prometheus blood test (which I heard was not really reliable).  I think most of my problem is in my rectal area.
I guess I need to ask my dr. more questions.  Do you ever look at your records and results?  I heard it was good to get copies.  Thanks
Melinda
 
Diagnosed with UC/crohns
Humira
Proctofoam


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 7/12/2010 8:37 AM (GMT -7)   
Yes good to get copies...a lot of it is from the bloodwork (ie. are your inflammatory cells elevated?), you symptoms (ie, losing blood with D. Having to go to bathroom 6+/day), and the colonoscopy(ie. are there areas of inflammation, narrowing. What comes back when biopsies are taken). They may also rule out other diseases or infections...not to mention your symptoms may rule out other infections...a differential diagnosis really... www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/gastroenterology/inflammatory-bowel-disease/ (which you can find under the "diagnosis" section of the article...

Do I look at my results? Yes...not all the time...but every so often...and yes, ask your doctor any and all questions...
"The earth laughs in flowers"


MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 7/12/2010 12:38 PM (GMT -7)   
Crohns/Colitis is more of the lower colon/rectal area. My Daughter's GI diagnosed her with Crohns/Colitis at first appointment with him at age 17. Just her symptoms alone was good enough indication of what was going on and then he did follow-up and confirm it with a colonoscopy.

Definitely get copies of your reports and keep them in a file. Educate yourself and definitely ask questions about anything you don't understand.

Prometheus can be a good diagnostic tool especially for young children.

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 7/12/2010 5:22 PM (GMT -7)   
Hi Melinda,
 
I was finally diagnosed with Crohns colitis when granulomas showed up in the biopsies of my colonoscopy.  Until then it was undetermined, could be UC, or bacterial, etc.  Because they only saw initially inflammation and ulceration on my first 3 colonoscopies.  It wasn't until the last one showed granulomas that it was diagnosed as crohns.  I did Ct scans, bloodwork, small bowel follow through, etc. but it was lab work from the colonoscopy that confirmed crohns.   My dr. said the prometheus test was not reliable.  Hope this helps!  My symptoms are more abdominal pain and bloody or mucousy stool.  I don't get D as much as I think others do because of where the crohns and damage is located, I think.  I heard that if its located in the small intestine this causes watery stool, which I do not have.  Good luck!
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain
 
 


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 7/12/2010 9:38 PM (GMT -7)   
I was diagnosed after having surgery. They suspected it was crohn's, but weren't positive until surgery was over. Pathology made the diagnosis 100%.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

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