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tez25
Regular Member


Date Joined Dec 2009
Total Posts : 65
   Posted 7/12/2010 1:41 PM (GMT -7)   
Does anybody have any tried and tested ways to treat mouth ulcers?! I'm at the beginning of a flare, and my bowels r being a little 'naughty', but nothing bad enough that i would want to take steroids for as my crohns seems to be quite resistant to steroids and i need very high doses, which gives me bad insomnia etc
Im therefore wondering if any1 has any methods to treat/ soothe mouth ulcers. iv got alot right now, iv never had them this bad and this painful b4!! I had a cluster on the inside of one of my cheeks, and now they seemed to have formed one giant ulcer: it actually looks a bit like the images of the ulcers in our bowels, which iv never had in my mouth before! Iv also got them over the entire of my mouth- even on the fleshy bit under your tongue!
any input wud b great!
thanks! turn

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/12/2010 3:00 PM (GMT -7)   
I use a med called Aphthasol. It's a creme-like med that you put on the ulcer (mouth) and it forms like a bandage. Cuts the number of days that you feel the pain in half, and the sore heals more quickly too. I find most of my doctors hadn't heard of this. I learned it because my step-mom is an oral hygienist and at first I had my dentist prescribe it. Now my GI does. It's really worth it...
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia. Dx Osteoporosis 10/08 started Forteo 1/27/09


chornsguy
Regular Member


Date Joined Jul 2010
Total Posts : 33
   Posted 7/12/2010 9:11 PM (GMT -7)   
gragling salted water worked for me

stella my labradoodle
New Member


Date Joined Jun 2010
Total Posts : 9
   Posted 7/12/2010 9:46 PM (GMT -7)   
Once when my daughter and I got hand, foot, mouth disease and I had sores all in my mouth, I decided to call the dentist and he gave me something as well that the dr hadn't thouth of that provided the best relief. I agree with sr55 that you might want to try your dentist.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/13/2010 9:59 PM (GMT -7)   
those buggers hurt like hell. i get them a lot. i try to gargle with listerine or something to numb my mouth- doesn't work very well...i'm going to look into that stuff mentioned above.
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


Former58D
Regular Member


Date Joined May 2009
Total Posts : 173
   Posted 7/14/2010 4:15 AM (GMT -7)   
I had them for two years in relation to Crohn's. Get a prescription for triamcinolone. It's a topical steroid and it helped me.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal and Canasa for 2+ years - developed an intolerance
6MP - elevated LFTs after 100mg, no effect after 9 months
Currently: Remicade (Nov '09), and Paleo Diet. Not quite remission, but so much better!


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 7/14/2010 11:49 AM (GMT -7)   
man I've had them since 1992, reallybad, pred was the only thing, I used rinses, lydocaine, nothing worked until remicade. that has helped my mouth area, but not so much on small bowel, I've had 2 infusions so far next one is 6 weeksfrom yesterday. my gi gut totally gave up on my mouth throat issues, he seemed really concerned more in my small bowel, but he defineatly said it was cd related

artist guy


tez25
Regular Member


Date Joined Dec 2009
Total Posts : 65
   Posted 7/14/2010 2:51 PM (GMT -7)   
thank you for all of your replies! I know that mouth ulcers are the least of alot of people's problems, and so i feel bad for complaining about them! but they do really hurt tho- so much so that it hurts to talk, and iv eaten very little today, depite actually having an appetite! im going to see my GP tomorro to try the get some tpoical steroid or something like that. My flare isnt bad enough for oral pred, so im hoping topical steroids will do the trick!
thanks again!

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 7/14/2010 3:09 PM (GMT -7)   
they truly are horrible, i feel for you

artist guy


busycrohnsmom
Regular Member


Date Joined Jul 2005
Total Posts : 43
   Posted 7/17/2010 5:23 AM (GMT -7)   
Try taking L-Lysine HCl supplements. It is an amino acid you are probably short on... You can buy it cheap at CVS or Walgreens. I take 1000 mg daily and have not had a sore in about 6 months now. There is also a topical mouth sore treatment made with Lysine that you can find in the oral med section, but it may be more useful for ulcers outside the mouth. I was getting tons of them, inside, but also these horrible craters on my lips that ruined my apprearance, almost back to back, until I found a post on another site about using Lysine supplementation. I'm also on Remicade, and I ahd always chalked the sores up to inflammations (like my bowels have), but while the Remi helped my bowel , it wasn't taking care of this issue at all... If you have open sores now, I would start to take 2000-3000 mg for a few days until they noticably start to heal up for you, and then continue to take 1000 mg daily. Hope it helps you - it helped me for sure.
37, dxd with moderately severe CD 6 years ago. Illness in small bowel mainly. Many meds have failed, no surgery yet. Remicade and Imuran user for 12 months now, with very little disease activity. Have one great husband and 6 great kids, including two sets of boy/girl fraternal twins!


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 7/17/2010 6:51 AM (GMT -7)   
I chew vitamin E capsules, 1 2x's a day. Works perfectly for me.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 7/17/2010 10:09 AM (GMT -7)   
Just got off steroids for a bad bout of with mouth sores that went all the way down my esphogus ... ask for "Magic Mouthwash" takes a while to work, but effective and inexpensive. Hang in there!  You will want to treat your Crohn's more aggressively as it will then help your mouth sores ...
45-single mom of 18, 20 & 22-year old sons, diagnosed with Crohn's in 2004 via pill camera    6MP kicked into remission (along with modified diet) so went off in 2006. Mistake.
 
2009/2010 ileitus and hospitalization - now on 100 mg Imuran. Currently taking 5 mg prednisone until increase in Imuran kicks in following recent dx of Crohn's in esophogus and mouth. Trying gluten free diet now.
 
Working and trying to date online!
 
 
 


mbw1103
Regular Member


Date Joined Apr 2009
Total Posts : 71
   Posted 7/17/2010 10:31 AM (GMT -7)   
You can also try taking folic acid (1 to 2 mg).  My rheumy suggested I increase my folic acid when i started getting an outbreak of mouth ulcers in response to methotrexate.  I've since found that it works mouth ulcers not caused by methotrexate as well.  You should be able to find it in the vitamin aisles of your local drug store, but the OTC version is sold in mcg (1000 mcg = 1 mg).
 
Hope you get relief soon.
Melissa
34 - Diagnosed with Crohn's in Nov. '05
Current Meds: Apriso, Canasa, Methotrexate, Pamine Forte, Aciphex, Domperidone, Folic Acid, Restasis, Plaquenil,  Xyzal, Zyrtec, Align, Calcium, Vitamin D, Centrum, Digestive Enzymes, Thera-tears Omega 3 Supplement, Co-Enzyme Q10
Gluten free since Aug. '03


tez25
Regular Member


Date Joined Dec 2009
Total Posts : 65
   Posted 7/18/2010 1:57 PM (GMT -7)   
thanks for all of the replies- i know can always come here for help! :)
my dr prescribed me a 5 day course of some hydrocortisone pellets that i allow to dissolve in my mouth and it acts as a topical steroid. They seem to be working a little as the pain is alot better, but the ulcers are still there too. I've only got 1 n half days of the hydrocortisone left! Im going back to see him in a few days, and he said that if the hydrocortisone hasnt cleared them, then i need some oral pred. I'm not really sure how i feel about that to be honest!

I'll definatey ask my GI about the deficiencies that people have mentioned as i always seem to get alot of mouth ulcers and so im wondering if it is due to a deficiency rather than a flare up of the crohns- at least some of the time anyway!

Thanks again!

clmbv
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/21/2010 1:47 PM (GMT -7)   
I know I am coming into this conversation late, but my gi thought it was the least of concerns as well. So I sought the help of my dentist. He gave me a gel (Oxyfresh Dental Gel-super relief formula with Oxygene) and it is marvelous. I noticed a major difference within 24 hours. I also use a mouthrinse (Oxyfresh Mouthrinse Patented zinc with Oxygene) in combination when my mouth starts to "flare" as well. I have the bottles for both if you would like to know the ingredients to do more research as well or find cheaper alternatives. I use the rinse first and then apply the gel directly to the sores. Hope you are feeling some relief by now though.
Crohn's finally diagnosed in 1995 at the age of 19
Currently on: Monthly B-12 injections, Humira, Multi-Vitamin, Imuran, Iron
Resection in 2006 for perforated bowel 18 inches removed.
Tests and Meds, you name it I am sure I have tried it except Cimzia and Remicade


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 7/21/2010 4:34 PM (GMT -7)   

I've had horrible, agonising periods where my mouth would be filled with 20+ ulcers, it was excrutiating, I couldn’t talk let alone eat :(

I tried Bonjella, the mouth-ulcer gel, and also this other stuff which is a numbing paint designed for mouth-ulcers. Both were effective but NOTHING worked like salt rinses did. I would make the salt solution as warm and as strong (salty) as possible, and hold it in my mouth as long as I could bear it. Sometimes it would even make the ulcers bleed, but it made them heal faster than anything else did; and provided temporary relief from the pain too. Hope this helps somewhat and they leave you alone soon!

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