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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/12/2010 1:58 PM (GMT -7)   
Basics:

* rehydrate after yesterday's travelling
* eat veggies
* shower and dress
* exercise
* make bed

Optional extras after that (do as many as I can, depending on energy levels):

* work out when meeting is, and keep fingers crossed it isn't today tongue (done! and yay! it's next week)
* read yesterday's mail
* open letter to do with scary-looking paperwork mess, and deal with it
* sort out delivery
* work out what to eat tomorrow
* work out a shopping list
* tlc for feet
* tlc for legs
* write a letter?
* phone someone?
* go swimming
* dishes (yesterday's and today's)
* tidying
* work out where I"m up to with laundry
* ironing???

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/13/2010 1:08 AM (GMT -7)   
* rehydrate after yesterday's travelling - yes; well, tried to
* eat veggies - yes
* shower and dress - yes
* exercise - yes
* make bed - not yet, because I was resting there this afternoon.

Also:

* wrote two letters
* opened and dealt with one scary paperwork mess letter
* made one less-scary paperworkish phone call
* tlc for feet
* about 2/3 of the dishes
* about 2/3 of yesterday's mail, and all of today's.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/13/2010 2:50 AM (GMT -7)   
well done ivy!! hope your appts went well yesterday.

TLC

* do some dishes
* eat
* keep drinking
* do legs
* put ironing away in crammed closet
* wander up to shop for some sweeties (shouldnt really, cant afford it)
* get dressed

Had an appt with my GP last night, she has officially signed me off for a month and has told me to stop being a div and apply for benefits. So last night i began my application. Its as scary as hell, but i must have an income and as my GP pointed out, i cant work right now. So fingers crossed, this will go through quickly and i shall not be so stressed about money!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 25mg prednisolone, calcium supplement,
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/13/2010 2:57 AM (GMT -7)   
Wot's a div, chocholic?

Well done on the disability application. There comes a time when we have to face it... and yes, an income is important. Good luck with it - I hope it is processed and approved quickly.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/13/2010 4:59 AM (GMT -7)   
yeah i know that i'm not fit for work. i think i'm just scared cos this application means assesments and proving myself again. I think i'm just worried that they wont believe me and so i wont get the approval and i'll be forced to go onto jobseekers even though i'm clearly not fit for work! i should hear something back in the next couple of weeks. fingers crossed!!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 25mg prednisolone, calcium supplement,
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 7/13/2010 5:33 AM (GMT -7)   
@Ivy - div = idiot... <_<

@chocolic - Good luck with the benefits application. As you mention depression in your sig, I would recommend including that. I originally got signed off for Crohn's and depression, but my feeling is that the depression has been the weightier factor. I'm just going from occasional interviews I've had with doctors appointed by the DWP to check your entitlement to benefits. My guess is that it's because Crohn's is largely an unknown quantity for these people. They can deal with depression, anxiety, back pain, and other common ailments. But IBD is just obscure and uncommon enough that it can be regarded with suspicion by social security people. Also, for extra advice on claiming within the UK check out the nacc.org.uk site, if you haven't already.

Today's TLC:

- Try to set up self-assembly table, which was delivered today
- Look up and plan a route to hospital; my dad is going in for an operation tomorrow. The hospital is in an unknown town, which I've never driven to before. It could be daunting driving there
- Drive my mum to the local shops; even though the weather is cooler I may treat myself to a litre of some excellent locally produced ice cream... :p
- Start on a new book, The Passage by Justin Cronin

That's quite a lot for one day, so I think I will leave it there. Personally, I can't wait until my memory card arrives so I can begin using my new camera :p

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 7/13/2010 5:52 AM (GMT -7)   
Ivy -- good work. I think I could just copy your basics, but probably won't get them all done (especially the veggies).
Choc -- good luck with the app. I think NCOT had good advice.
NCOT -- get that icecream. Yum.

TLC
shower -- done
outing with the kids (hopefully park)
more thank you notes
fax work leave paperwork

yesterday turned out to be a great despite no sleep. My son slept well last night, so today should be better. Keeping fingers crossed. Still have a nagging worry about a flare, but Ive at least been avoiding known bad foods.
Mom to a healthy Pentasa baby and pregnant with #2. 5+ years remission, woo hoo!


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/13/2010 7:40 AM (GMT -7)   
thanks everyone, i have gotten my depression included. funnily enough they even asked me when i had started taking my anti-depressents? thought that was abit odd, but i answered anyway! I knew they would be funny about the crohn's and i know i need to make up the 'fifteen' points needed to get disability. I'll have a good look at NACC, anything to help it all go easier and quicker would be fab!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 25mg prednisolone, calcium supplement,
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 7/13/2010 8:40 AM (GMT -7)   
I'm not on disability proper. (Assuming you mean Disability Living Allowance.) I think you probably get more money that way, but it's harder to get than income support. Good luck.

TLCs done:

- Route planned to hospital. My dad helped out by printing the maps. If I can face the slow-loading, I will get onto Google Street View and also look at parts of the route from street level.
- Mum driven to local shops; we bought Chocolate Heaven flavour :p

Still yet to sort out the table or start the new book.

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 7/13/2010 10:49 AM (GMT -7)   
Wow, you guys are plowing through.

We got out to a cafe and park. Took over 2 hours and it was a hot walk. Still good for all of us. I also ordered my son's birth announcements. Now I'm cuddling with him instead of writing thank you notes. Can't bear to put him down to go do it. Haven't done the work leave stuff yet either.
Mom to a healthy Pentasa baby and pregnant with #2. 5+ years remission, woo hoo!

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