my doctors number

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Regular Member

Date Joined Jul 2010
Total Posts : 33
   Posted 7/12/2010 11:19 PM (GMT -6)   
shortly after seeing my doc which i have been seeing ever since i got chorns. my doctor gave me her work email and personal email. i also i have her work office phone number, her cell phone numberand her house number. she texts me about once a week or two just to see how i am doing and we actually talk for about 15-30 when she does. i was wondering if other people here has this type of relationship with there doc?

Veteran Member

Date Joined May 2009
Total Posts : 703
   Posted 7/12/2010 11:26 PM (GMT -6)   
Hmm, I'm thinking maybe you should think about asking her out for dinner or something! ;) That's way, way more communication than I get from my docs and nurses.
Cimzia, Asacol

Regular Member

Date Joined Jul 2010
Total Posts : 33
   Posted 7/12/2010 11:27 PM (GMT -6)   
theres no way i could do that!!!! she knows me inside and out!!!! plus she is married with 3 kids

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 7/12/2010 11:31 PM (GMT -6)   
I wish it was that easy for me to talk to my GI. I usually have to call and leave a message, and hope the nurse actually listens and has the dr call me back instead of the nurse calling and asking questions.

I do have my pulmonologist's cell number in case I need to get a hold of him, but not my GI...I wish it were the other way around.

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Veteran Member

Date Joined May 2009
Total Posts : 506
   Posted 7/12/2010 11:35 PM (GMT -6)   
I have an email for non-emergency messages. Other than that, I just call his office and wait for a reply.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche

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Date Joined Dec 2008
Total Posts : 14021
   Posted 7/12/2010 11:50 PM (GMT -6)   
I email with my dr every couple weeks if I am in a flare. If i am fine, we won't speak as often. I will shoot her an email just to say hi and let her know how I am doing but unless I am having problems, it's not too frequent. I really like my doctor, she is a good-hearted person and I am thankful that I can get in touch with her and that she is responsive and understanding. I don't have her home number and we don't text, we just email or she will call me back if I call her, she will call off hours if I am having problems. We are lucky that our doctors are interested in how we are doing. tongue
March 2007: Diagnosed with Mild Proctitis - Canasa as needed.
August 2008 - December 2008: FLARE & Anemic - Started Asacol!!
January 2009 - December 2009: REMISSION!! Asacol (9) + Canasa 2x Daily
December 2009 - January 2010: FLARE!! Asacol + Prednisone + Canasa
February 2010 - April 2010: Colazal + Prednisone + Canasa
May 2010 - June 2010: Lialda + Cort Enema + Prednisone : Colonoscopy: Mild / Moderate Active Pancolitis
CURRENT: DOING OK! Prednisone, 6mp, klonopin, Canasa + Vitamin D

Regular Member

Date Joined Jun 2010
Total Posts : 265
   Posted 7/13/2010 12:08 AM (GMT -6)   
My GI gave me his email address, pager number and office number. If I need to get in touch right away I just call the pager service and ask for him they don't ask any questions just switch me right over. Then if it's anything non urgent I'll just send him an email and he get's back pretty quickly.
That's amazing that you and your doctor text each other. I was I had that type of relationship with mine maybe not to the extent of texting but were I can just feel free to talk. I always feel weird talking to mine.
50mg 6MP
10mg Prednisone
1000mg Sulfasalazine 3x Daily
50000IU Vitamin D Once a Week
Zofran ODT As Needed
100MCG/ML INJ, 1ML Cyanocobalamin B12 Every 3 Weeks

Regular Member

Date Joined May 2010
Total Posts : 266
   Posted 7/13/2010 8:38 AM (GMT -6)   
crohnsguy: M jealous! that is a GI who is worth their weight in gold! Mine doesn't even call me back have to cyberstalk him . . . .

Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 7/13/2010 8:43 AM (GMT -6)   
I have nurse Ratchet's number but EEEEEUUUUUU. I think she lives in a cave with the other dragons.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 7/13/2010 8:45 AM (GMT -6)   
Holy crap! That's unbelievable. If I want to get in touch with my GI I have to get through to his assistant first. She's not so good about getting in touch right away, so it could easily be a few days and then she acts all put out like I'm an annoyance. I can't imagine a doc giving out a cell phone or an email. Not that I would ever use it, but sheesh - it would be great to have if you really needed it.

You hit the jackpot for sure with your doc!

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 7/13/2010 9:25 AM (GMT -6)   
I have to call and leave a message and normally wait a few days to hear back.  Only once have they put me on hold and actually went and asked him my question while I waited.  Even my rheumy, who is awesome, has never given me any other way to get in touch other than to call the office and leave a message for her assistant. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

Regular Member

Date Joined Jun 2010
Total Posts : 318
   Posted 7/13/2010 10:25 AM (GMT -6)   
Do you  know what it is like to talk to G-D? Impossible-that is the name I call my GI doctor. Unfortuantely, she is the best in town. You are so lucky to have your GI doctor. I would kill for someone like that.
UC 1996
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000
Emergency j-pouch surgery
Multiple complications
J-pouch redo- July 3,  2001
Take down-Jan 3,  2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 7/13/2010 4:58 PM (GMT -6)   
Wow! Are you sure you haven't died and gone to heaven?? Even my family doctor is not THAT accessible!!!
My computer says I need to upgrade my brain to be compatible with its new software.

Regular Member

Date Joined Jul 2008
Total Posts : 440
   Posted 7/13/2010 5:29 PM (GMT -6)   
crohnsguy...Wow that is Amazing! The only time my GI has called me is when my c-diff tests came back abnormal and I had already been released from the hospital.  When he called I thought WOW this is pretty cool.  I tried to save his number but..haha it was not traceable. Ususally, same as  the others... I call  and wait the  whole day to hear back. bothersome!
Oh...and I read your other post about the "Looking for Love" I've always thought that if (I'm married now) I  was ever in the "dating world" again..I'd tell people straight out that I had Crohns...Actually, look for another Crohnie. That's just me.  I'm pretty straight forward.  Thought I'd share cuz' who else know's a Crohnie like a Crohnie right;) ? It's hard enough to feel intimate with Crohns and for me I think... it would be nice to know someone else was dealing with it also...
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!

Regular Member

Date Joined Jul 2009
Total Posts : 417
   Posted 7/13/2010 6:17 PM (GMT -6)   
that is awesome! I sometimes wish my dr would at least call every once in a while. But usually if I need to tell them something I'll talk to his nurse and then she'll call me back within an hour. There's been only once when he called personally but that was when my wbc was really really low and he was really concerned. I haven't been in to see them in several months, but I kinda would at least like a phone call to check up. I love the staff though, they are wonderful. :)
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008
Possible Rheumatoid Arthritis

Medication: Pentasa 6x daily, Imuran 50 mg, multivitamin, Vit B12 1 g, omeprazole. Sulfasalazine

Regular Member

Date Joined Apr 2010
Total Posts : 232
   Posted 7/13/2010 6:55 PM (GMT -6)   
I just fired another GI. I swear I've never met a more unfeeling group of people in my life. I get along with all my other doc's, with occasional exceptions.. but .. buuuut...

I just got a new GI, he is younger and let me talk so long without interrupting me I actually thought I might have been babbling.

My friend who came with me, who also has a chronic illness (yay buddy system) is in love with him.

I'm just so grateful I could cry. 24 years of not having a GI ( I went through at least 5 of them) who treated me as a human being was too long.

Good thing too, cuz my body is in a bad way...
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 7/13/2010 7:32 PM (GMT -6)   
I had that relationship with the GP who diagnosed me with RA.

I have a great rhuematologist if I call the office and leave a message she will call back herself the same day. Every single time-even when I just wanted her to tell me I did not need an EMG that another doctor ordered. (she convinced me to have the test).

ski bum
Regular Member

Date Joined Jan 2007
Total Posts : 451
   Posted 7/13/2010 8:58 PM (GMT -6)   
My doctor is in the office I go to 2x/week. So I know whenever I leave a message, he'll call me back at the latest on one of those two days. No email, text, etc. If I need to speak with him urgently, I have to go thru the answering service and get whomever is on call. If it's a question he needs to answer the on call doc will get me in touch with my doctor. I'm happy with this arrangement, but it sure isn't as spiffy as yours. He has called me on his cell, but I've respected his privacy and never saved his cell phone number. Your doctor sounds like a gem.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 7/13/2010 9:32 PM (GMT -6)   
I don't think my doctor likes talking to me. I always talk to the nurse who relays information back to me. Then if they want me to come in they set me an appt. with the nurse practitioner and I have the same $30 co-pay to see her!
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 3x/day, 1,000 I/U Vitamin D3 2x/day, 1 Nature's Way Primadophilus Reuteri in the morning and 1 at bed time, 1 Coromega Omega 3 pack 2x/day
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 7/13/2010 11:51 PM (GMT -6)   
my doc gave me his private office #
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.

Regular Member

Date Joined Mar 2008
Total Posts : 155
   Posted 7/15/2010 10:45 AM (GMT -6)   
i have my dr's. beeper number and his cell phone number. and of course, the office number.  he always answers or returns my call if i use the beeper and cell numbers.he always tells me.. we are in this together for the next fifty years.
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001..Diabetes,,Sleep Apnea,,Silent Heart Attack,,Blocked Kidney Artery after the Bypass..Bulging Disks, Pinched Nerve..MEDS--,Purinethol,Folic Acid, Fish Oil,Humira,,Bentyl,Anamantle Cream, .and many more. 25 meds..

Regular Member

Date Joined Nov 2003
Total Posts : 351
   Posted 7/15/2010 11:53 AM (GMT -6)   
You are very fortunate! My GI is very interested in helping me feel well and has told me that he's willing to do what ever it takes. I'm grateful for that but your relationship is golden.

Regular Member

Date Joined Oct 2009
Total Posts : 111
   Posted 7/15/2010 12:05 PM (GMT -6)   
I have a direct number for the nurse practitioner at my GI's officer. She is beyond awesome about calling me back and helping me with things.

I have to say I'm jealous though, what you have is above and beyond for any doctor, much less a GI doc!
chronic active colitis/unspecified IBD - still awaiting a PillCam
Lialda 1.2 mg 2x/day
Prednisone 10 mg taper in progress
Remicade - 2 infusions so far
Darvocet or Lortab as needed for pain

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 7/16/2010 9:32 PM (GMT -6)   
I have this with my VA GI and psych, but I agree it is rare. (The GI only after he screwed up.)
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Regular Member

Date Joined Oct 2009
Total Posts : 157
   Posted 7/16/2010 10:18 PM (GMT -6)   
Oh, you're so lucky! I'm on my fourth GI within two years now (two because of moves...I actually liked them). I have that relationship with my GP, I have his personal cell phone number, and he calls me about once a week in the evening to make sure I'm doing well. Unfortunately he's in the military and will be leaving for Afghanistan soon. I'll miss him dearly.
I wish my GI was like him.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Off every med while the doctors contemplate my diagnosis.
Been on: Entocort, Pentasa, Prednisone, Humira, Imuran

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