compassion fatigue

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MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 7/13/2010 6:03 AM (GMT -7)   
I have to admit I get annoyed when the medical professionals who are treating my disease spell crohn's like this "chrons." It just goes to show you that compassion fatigue extends even to those of us who suffer from the disease. Granted it was just a nurse, but still it freaked me a bit.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8545
   Posted 7/13/2010 6:16 AM (GMT -7)   
I must admit, the misspelling of Crohn's irks me too. It's probably irrational, but I can't help feeling that if you have a disease or treat said disease, you could at least learn how it's spelt. In my last colonoscopy report, the (brief) comments section managed to have several typos, but at least they spelt Crohn's correctly! That made me feel a bit better.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/13/2010 6:40 AM (GMT -7)   
Would a disease , by any other name , smell as bad ?
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


vixen
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Date Joined Jan 2010
Total Posts : 794
   Posted 7/13/2010 9:10 AM (GMT -7)   
I totally agree re spelling and Sniper I am sure it would :)

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 7/13/2010 10:40 AM (GMT -7)   
That's ok Navy, my husband miss says it. Calls it crohms, but coming from the East End of London is his only
good excuse. There, three's become free's and so on. Something only a mother could love (smile)
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 7/13/2010 11:03 AM (GMT -7)   
Actually talking about his mother (muvver), she must have had a hellova sense of humor. She named
him Keith, knowing that the th is not pronounced. So from his birth onward he's been Keif, or as we lovingly
call him Keiffy. I digress....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 7/13/2010 11:11 AM (GMT -7)   
I spelled it Chron's for a week or two after I was first diagnosed.
Cimzia, Asacol


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 7/13/2010 7:55 PM (GMT -7)   
When I first joined this website I spelled it "Chrons" and a fellow HW person corrected me right away and I was so offended.  Then I made sure I spelled it correctly. I have dyslexia and make mistakes sometimes. 
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 7/13/2010 7:57 PM (GMT -7)   
I used to spell it wrong as well. It happens I guess...
4mg LDN- 1x a day
500mg Pentasa - 3x a day
1,000 I/U Vitamin D3 - 2x a day
Nature's Way Primadophilus Reuteri -1 cap 2x a day
Coromega Omega 3 - 2x a day
500mg Propolis 2 caps - 2x a day
----------------------------------------------
Medication prior to taking LDN: 100mg Imuran a day, 1,000mg of Pentasa 4x/day, 3mg of Entocort 3x/day, Librax as needed.


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 7/13/2010 8:35 PM (GMT -7)   
LOL..... Sniper keeps us laughing!! I needed that too. The nurse practitioner I have to see gets IBD and IBS confused. I need a new doc where I can really see a real doc.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil, nexium for reflux, wellbutrin, 5 mg prednisone/day.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA, LOTS of joint pain followed by a recent set back with the colitis.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 7/13/2010 8:38 PM (GMT -7)   
Flowery, I cant blame dyslexia, I just cant spell . I do have reasons but wont go into it . Trouble is sometimes I can spell something right and two minutes later I cant. Weird...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 7/13/2010 8:46 PM (GMT -7)   
Work in healthcare for a week and you'll realize that people can't spell the names of the medicines they take on a daily basis, let alone the parts of their body or diseases! It shocked me at first, but after a while you get used to people filling out forms halfway because that's all they knew. At least most of them knew the parts of their body that had been removed...some people just wanted to show you scars as if that tells you what was done when the scar was made.

I've found that I personally get irked by pronunciation much more than spelling. My ex-bf was dyslexic and spelled horribly, which never bothered me, but when he pronounced words completely wrong (like the word ***, which he added a d at the end of for some strange reason knowing there wasn't a d at the end) I about went mad!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/13/2010 9:31 PM (GMT -7)   
Not everyone has the same level of education so I do not expect your average joe to know how to spell crohns, but I do expect a GI nurse to know how to spell it. Yikes.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 7/13/2010 10:16 PM (GMT -7)   
The nurse at one of my doctors appointments asked me how to spell one of my meds (which that office had prescribed and should have been in my chart already anyway)...and I just handed over the list I keep in my wallet...I'd rather not know how incompetent they are. As long as my doctors know what they're doing, I'm relatively safe. Just goes to show that just because you have initials after your name doesn't mean you're necessarily smart! It also reinforces the need for us to be smart just in case those treating or helping with our treatment aren't.

Oh, and sniper...the only other one that would is colitis...which I'm sure is misspelled quite often, too!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 7/14/2010 12:14 AM (GMT -7)   
Professionals should know but as I age I've noticed my spelling is getting worse, much worse. blush I find it so annoying that words I've spelled correctly my whole life are suddenly lost from my memory.Here's a test, can you spell this without looking at the next post for the answer? My favorite word here in this forum that mostly everyone has trouble with is the word for runny bowel movements. smhair

 

Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 7/14/2010 12:15 AM (GMT -7)   
Diarrhea. Did you get it right? I had to look it up again for probably the 40th time. eyes


Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8545
   Posted 7/14/2010 4:44 AM (GMT -7)   
If you're dyslexic, then that's different, but most people aren't.
If you can't spell some of the long names of the ten different medications you're taking on a daily basis, that's also different.
But if you can't spell the name of your own 6-letter disease (not medications that you're taking for it), then I'm sorry, I just find that weird. It's only my opinion, not proclaiming it as gospel truth, etc. But it is how I feel.

Edit: Oh, and I can spell diarrhoea with my eyes shut ;p

I am good at spelling. I break down long or difficult words into smaller parts and then the whole word becomes easy to spell. I suppose that does help an awful lot with obscure medical terminology.

Post Edited (NiceCupOfTea) : 7/14/2010 5:50:57 AM (GMT-6)


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 7/14/2010 9:23 PM (GMT -7)   
I used to tell patients...if you can't spell or remember the diseases you have or the medicines you take for them, you should keep them written down and carry it with you everywhere, and when needed you just have to hand over your list. You just never know when someone else might need to know these things about you.

(I know this post wasn't about that, but thought I'd add that)
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 7/15/2010 1:08 AM (GMT -7)   
I love this post. For so long I have thought the same thing. I agree with the premise that people that are not in the medical world or have the disease would probably spell it wrong but there is no excuse for the medical professionals or crohnies. I give you a 2 week grace period after diagnosis because we are all a little nuts and confused by the whole mess but after 2 weeks you should be familiar with the spelling. This site should be the easiest place to get the spelling right because it is at the top of the page and several other places for you to see.

GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 7/15/2010 8:23 AM (GMT -7)   
Nowadays I usually omit the apostrophe and write Crohns, just cuz. But when I really want to show off, I refer to it as Burrill Crohn's. But to truly give credit to all its discovers, Crohn's-Ginzburg's-Oppenheimer's is probably most proper.
Cimzia, Asacol


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 7/15/2010 8:32 AM (GMT -7)   
I was guilty, IN THE BEGINNING, of spelling Crohn's as Crhon's. 
 
I don't expect the average person to know how to spell it.  However, I DO expect those in the medical profession who DEAL with Crohn's patients to know how to spell it.  I also expect parents of kids who have Crohn's to know how to spell it.  I have a coworker whose daughter has Crohn's and when she writes me about it she always spells it in every way possible EXCEPT for the correct way! tongue   Bless her heart...
Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
38/F/SC
Current Rx's: Imuran; Colazal; Librax; multivitamin; Probiotic; Omega-3 Fish Oil; V-D; Cranberry pills; Slow Fe 
Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
4/7/09: Gall bladder removal laproscopic surgery (gall stones)

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