Teen chat sites for CD?

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MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 7/13/2010 11:15 AM (GMT -7)   
Hi all,
I'm looking for a resource site, chat, message boards for a teen with Crohn's.

Any help you can provide would be greaaatly appreciated.

Hope all is groovy with e1 !

M.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/13/2010 12:38 PM (GMT -7)   
You can google Teens with Crohns Disease and a site will come up. Hope that helps.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

RedSoxGirl85
Regular Member


Date Joined Jun 2010
Total Posts : 265
   Posted 7/13/2010 12:45 PM (GMT -7)   
This is a good site for teens with IBD.

www.ibdu.org
RedSoxGirl85
50mg 6MP
10mg Prednisone
1000mg Sulfasalazine 3x Daily
50000IU Vitamin D Once a Week
Zofran ODT As Needed
100MCG/ML INJ, 1ML Cyanocobalamin B12 Every 3 Weeks
 


DebbieCrohns
Regular Member


Date Joined Nov 2005
Total Posts : 174
   Posted 7/13/2010 1:26 PM (GMT -7)   
Hi,
There is a Teens with Crohn's Disease web site at http://pages.prodigy.net/mattgreen/
There is also Teens with Crohns at http://twcmessageboard79543.yuku.com/
 
Good luck.
 
Debbie

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 7/13/2010 2:39 PM (GMT -7)   
Thanks All,

Nanners, I did google, I was hoping for one that people had some experience with.

Redsoxgirl and Debbie have you used these sites?

Thanksomuuuch
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


RedSoxGirl85
Regular Member


Date Joined Jun 2010
Total Posts : 265
   Posted 7/13/2010 3:28 PM (GMT -7)   
MToronto2 - I used the site I gave. Has lots of info for you, your parents, friends, etc. Also a section and chat/forum for you to meet people your age. Best of luck!
RedSoxGirl85
50mg 6MP
10mg Prednisone
1000mg Sulfasalazine 3x Daily
50000IU Vitamin D Once a Week
Zofran ODT As Needed
100MCG/ML INJ, 1ML Cyanocobalamin B12 Every 3 Weeks
 


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 7/13/2010 3:37 PM (GMT -7)   
lol, ah to be a teen again -- not for me, and thanks
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


DebbieCrohns
Regular Member


Date Joined Nov 2005
Total Posts : 174
   Posted 7/13/2010 3:38 PM (GMT -7)   
Hi,
 
I had looked at the web site Teens with Crohn's Disease a number of years ago when my daughter was diagnosed with Crohns.  The second web site I listed I have never used.
 
Good luck.
 
Debbie

MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 7/13/2010 3:39 PM (GMT -7)   
The Teens with Crohn's (Matt Green/Prodigy.net) is not as active of a board as it used to be back in the early 2000's when my Daughter used to use it. It's a pretty quiet board of late.

I think CCFA has developed a pretty good Teen site.

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 7/13/2010 3:48 PM (GMT -7)   
Wish the CCAC would... sigh
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


RedSoxGirl85
Regular Member


Date Joined Jun 2010
Total Posts : 265
   Posted 7/13/2010 4:26 PM (GMT -7)   
MToronto2- Sorry just realized you weren't actually a "teen" and are 24! So that site I gave you really isn't for a 24yo. The CCFA Site on Facebook seems to have a lot of people in their early 20's.
RedSoxGirl85
50mg 6MP
10mg Prednisone
1000mg Sulfasalazine 3x Daily
50000IU Vitamin D Once a Week
Zofran ODT As Needed
100MCG/ML INJ, 1ML Cyanocobalamin B12 Every 3 Weeks
 


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 7/13/2010 4:50 PM (GMT -7)   
No, lol, try again.. my crohn's is 24... wish it would move the hell out!
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.

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