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jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 7/14/2010 1:27 PM (GMT -7)   
I just got my loading doses of Humira yesterday and frankly it made me feel like a wimp. With all the procedures and pain we deal with I thought it would be a breeze...but it didn't go as well as I thought it was going to. I am hoping part of it was just the anxiety because my doctor administered the first 2 doses and gave my nerves plenty of time to get worked up. The second 2 that I did actually hurt a lot less. Hopefully it will be much easier from here on out since that's the only time I will get 4 doses. Has anyone used both the syringe and pen and found one to hurt less than the other? Anything that lessens the sting? Or finds one area that is less painful to inject in?
 
Any info would be greatly appreciated.
 
Jenn
JAS


Currently taking: Remicade
Recently tried 6MP and developed pancreatitis
Allergic to mesalamines


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 7/14/2010 2:12 PM (GMT -7)   
I find the lesser of 2 evils is the syringe since you can stop the plunger when it burns however getting the needle in takes a bit longer for me as well as the administration of the meds. I prefer the syringes even tho the pens are over so much faster...well at least the injection itself is my nerves and being a chicken are higher with the pen therefore taking me longer to click the button
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 7/14/2010 2:15 PM (GMT -7)   
Sorry it didn't go very well. You are NOT a wimp. I consider my tolerance for pain pretty high and I HATE getting my shot. It burns so bad!!! I haven't tried the syringe, but my theory is that it would probably hurt less because you can control how slowly you push the medicine in. With the pen you get what you get. I've had pens that shoot super fast and burn like the devil and I've had pens that shoot super slow and you can hardly feel the meds going in. The only trick with the syringe is then shooting yourself so that the stick of the needle doesn't hurt so badly. I know some people have tried the syringe, so I hope they come along and post their experiences for you.

grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/14/2010 2:33 PM (GMT -7)   
Hi, have you thought about pre-dosing yourself with pain meds?  Can be something simple like tylenol, aspirin or whatever prescribed product for pain.  Icing the spot seems to work, but knowing me -I would forget exactly where I iced -so maybe ice in a big bag!  Good luck! 




Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson


tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 7/14/2010 3:21 PM (GMT -7)   
Nope you are not a wimp- the pens burn so bad! I don't mind then except I have to work myself up to clicking the button every time. At least its over in just ten seconds and I don't have to think about it for 2 weeks. Yeah with all the pain I've been through (and we all have been through) you'd think it would be no big deal. I was really really suprised the first time how painful they are. Never tried the syringe though- but I like to ease and quickness of the pen. I try to focus on the postives about it.

JulieFrances
Regular Member


Date Joined Sep 2009
Total Posts : 63
   Posted 7/14/2010 6:04 PM (GMT -7)   
I have the epipen Humira and I give my shot in my stomach.  I have gotten use to the sting.  I have had no side effects (knock on wood).  I hope it lasts and I still hope I see more improvement.  Good luck!
Melinda
 
Diagnosed with UC/crohns
Humira
Proctofoam


SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 7/14/2010 6:22 PM (GMT -7)   
I had the first dose today too and thought the same thing. I'm pretty good when it comes to pain but man did they sting like hell. But at least as soon as it's over the pain is gone but it sure hurt all 4 times. At least later on it will just be only 1 injection so it won't be as bad. Can't believe how much it burns! I hope I can do it all right without the nurse there with me!

I heard the syringe hurts less but the pen is easier.
 
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Have been on Prednisone, Asacol, Entocort, Remicade, and Mercaptopurine (even the lowest dosage was messing up my liver, argh) in the past.
 
Currently on Avalox (well, when I'm not throwing it up...), and a quick power pack of Pred, ugh  

Trying to get on Humira but having insurance issues.. :(


sweetnakira
Regular Member


Date Joined Apr 2010
Total Posts : 119
   Posted 7/14/2010 6:40 PM (GMT -7)   
Hello, I am suppose to start Humira or remicaid on the 27th of this month after I finish antibiotics. They took a TB test and basically the doctor wants me on remicaid but said I could start Humira (she's leaving it up to me). I believe she wants me on remicaid because of the rectal problems as far as drainage and fitulas (I have 3 senton drain in right now). I am woried because I read that if you have a open wound or infection you are not suppose to take those medications but the doctors don't know what else to do as far as treating the crohn's and rectal problems.

Sorry, for the long story. I wanted to ask a question about the humira. Does everyone get 4 shots the same day in the beginning because the doctor didn't mention that to me at all. I know I have my own post up asking some questions about Humira but I also wanted to know if you or anyone else ran a fever and had flu symtoms or other symtoms?
37 year old female and a proud mother of 8 kids (5 still living at home) and a very supportive Husband
Found out I had crohn's disease about 3 years ago, I haven't had proper treatment since :-(
Have had rectal abscess and now a rectal fistula, Medications I have taken for crohn's is..... Asacol and Entocort EC......Currently taking....Asacol
Suppose to start Remicaid or Humira when I go back to GI July 27th.....I'm so scared :-(
Seton drain was put in on May 4, 2010....Two more Seton drains put in June 15th :-(
I also suffer from very bad anxiety and panic attacks for over 10 years (after my father passed away)
I have tried almost every medication for it but nothing worked or I had a bad side effect so for the last 6 years have been on xanax 1mg., 3x's a day
I started having joint pain about 7 months ago :-(


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 7/14/2010 7:10 PM (GMT -7)   
Sweetnakira- According to my doctor everyone is on pretty much the same schedule and dose. While Remicade is usually infused every 8 weeks with a dose that depends on weight, Humira comes in a pre-filled syringe and everyone gets the same dose. You get 4 injections the first time, 2 two weeks later, and then 1 every two weeks.

I did have side effects on remicade, mainly a skin rash which is why I was taken off of it. Humira is supposed to be much less likely to develop any severe reactions like some people get wth . I've also heard that remicade is more effective on healing fistulas faster though.

Hope that helps! Let me know if you have any more questions.
JAS


Currently taking: Remicade
Recently tried 6MP and developed pancreatitis
Allergic to mesalamines


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 7/14/2010 9:09 PM (GMT -7)   
It's amazing the procedures we go through, and yet we get nervous about humira. I remember standing in the doctor's office with shaking hands....just holding the pen. It does get easier though...at least I think so. I just take in a huge breath, then push the pen and focus on my breathing until the med is all in...that's pretty much how I deal with any pain though, by focusing on breathing and nothing else, so I don't know if it helps anyone else to tell you that.

I've injected in both my belly and legs, and won't inject my leg ever again. I don't know if it's because I have more fat in my belly and more muscle in my upper leg, but it hurt much more in the leg.

Good luck, and I hope it helps you as much as it has me!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 7/14/2010 9:18 PM (GMT -7)   
As for loading dose yes you recieve 4 the 1st day then 2 weeks later it is 2 shots. THe nurse did 2 of the 4 and made me do the other 2 in the office. I also had reactions to Remicade however it took a few years of me on it to develop. the loading dose ONLY comes in pens now a days and if you want syringes you need to make sure you specify that to your doc
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 

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