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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/14/2010 2:52 PM (GMT -7)   
Basics:

* keep drinking lots of water (500mL so far)
* start the day with green tea instead of black tea (done)
* exercise
* eat vegetables
* meds
* make bed
* exercise
* spirituality stuff
* appointment

Try to:

* do more dishes
* do tidying (preferably, lots of tidying)
* wash towels etc - Thursday's job - though I may put this off because of the weather. We'll see.
* At least *start* the ironing (also Thursday's job)
* do one thing involving scary paperwork mess - either level one mess or level two


And as many of these as I can:

* clean inside windows affected by yesterday's rain storm
* check inside wicker chest that was directly beneath some drips to make sure the contents aren't wet
* if contents are wet, deal with them eyes
* add to shopping list
* do shopping
* do pharmacy errands
* start antibiotic skull
* get in touch with another of the people I've fallen out of contact with
* tlc for the body
* post letters
* parcel K's book
* and post it too
* find what's making the fridge smell bad skull tongue nono and get rid of it


Bah. I'm having one of those months where I feel like it doesn't matter how hard I paddle: I'm still sinking.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/14/2010 2:59 PM (GMT -7)   

grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/14/2010 6:11 PM (GMT -7)   
Ivy:  so . . .can I come over?  Seems your house gets way more attention than I give mine!  Dishwasher leaking again . . . new parts in tomorrow . . . .bought groceries, swam for 20 minutes without drowning and now working tonight.  Soooo the dust bunnies get another night of reprieve.  Hope you get your dream sheet done!  Dream big!  Personally my list would have lunch with a friend and shopping each day if it was really up to me. 
 
Have a good day/night,  whatever!  barb
Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin.
 
 
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/14/2010 8:50 PM (GMT -7)   
Twenty minutes swimming - I'm impressed. You are right, though: more life and less housework would be good. I'm working on it...

I can see that this list isn't even going to get half done. Oh well.

Completed so far:

* tidied one room (woohoo :-/ )
* had more than 1.2L water
* eaten lunch
* showered, dressed, put on makeup (!) and (!!) received compliments for looking good, which is nice :-)
* washed towels, but haven't hung them yet

Next: I think I'm going to watch the repeat of "All Saints" and do the ironing, with random bits of tidying in the ad breaks.

Really, so what if errands don't get done today, right? And it's not the law that I have to start antibiotics tonight. Tomorrow or Saturday will do just as well...

Ivy (who doubts the need for antibiotics anyway).
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/14/2010 8:53 PM (GMT -7)   
Went back to work today after going straight to the er from work June 6. I did ok for 4.5 hours. Then I had to leave because I was so weak. Boss was not amused. I was pretty embarrassed. I hate being unreliable. Slept for a few hours then did my TLC--working in my prednisone-induced garden. Everything is blooming and growing. It was very peaceful to just spend some time helping things grow. My dog has decided he likes to eat lavender flowers and rose petals, very strange but happy Siberian Husky. My teenage sons came out and oohed and ahhed over all the growing vegies. That was the best tlc of all.

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/15/2010 12:08 AM (GMT -7)   
Thursday TLC

* shave legs
* shower and wash hair
* get dressed
* take humira delivery and remember to hand over sharps bin
* lay out clothes for tomorrow
* go to bus stop and check time of bus for train tomorrow
* pack bag ready for tomorrow
* do some dishes if i can
* get an early night ready for MRI tomorrow
* keep drinking - i feel really dehydrated and think i have some thing going on with my kidneys. They throb in the mornings.
* start to read through the questionaire sent to me by DWP so i can claim ESA.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 25mg prednisolone, calcium supplement,
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/15/2010 12:23 AM (GMT -7)   
Good luck with your MRI, Chocholic. How far do you have to travel for it? (Mine are nearly 300km away, so I can relate to what you're doign tonight).

Mambo, being sick does not equal being unreliable. It sounds to me as if your boss needs an attitude readjustment :-/

I ran out of steam today. This week caught up with me, plus I've increased the dose of one of my meds, and it has made me sleepy.

Done:

* tidied one room
* made my bed
* showered and removed makeup, hopped into pjs
* drank 2.4L water
* ironed for an hour, and put a big dent in the pile that needed to be done
* done a teeny bit of mending
* made contact with someone, if leaving flowers and note on a doorstep without actually talking to them counts
* done appointment
* hung towels on line

Only one serve of veg today, cos no energy to prepare a proper meal. Had lots of ground up seeds etc though, and fruit. No exercise yet either - may just have to make do with a bit of stretching or something.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/15/2010 1:19 AM (GMT -7)   
I have to travel about 30 miles. which isnt very far really but i dont drive so am relient on buses and trains. It should take me about 2 hours to actually get to the hospital. Normally i wouldnt be so organised but i have to be there for 10.15 am and my anti depressant is still making me really groggy in the mornings. Think i may have to change it next time i see my GP. I think its just a sleepy day for everyone today!!!

I'm hoping mum will be able to collect me from the hospital cos i will be totally wiped after the MRI. Not sure i can rely on mum though. Still whatever i have to do, i can do!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 25mg prednisolone, calcium supplement,
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 7/15/2010 1:19 AM (GMT -7)   
Oops
 
Just reading your 'to do' list Ivy and got to the 'meds' part and have just realised that son has gone off to school without taking his!!
What can I say!!!!

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/15/2010 2:06 AM (GMT -7)   
grrrrrrr, just had a text off my mum. she wants me to do all the dishes, tidy up the whole kitchen (which is foul) and unload plus fold the clothes in the dryer. I specifically told her last night that i wouldnt be able to do too much in the house cos i have to get sorted for my MRI. Do i just talk to myself??? its like i'm either really really sick or else i'm totally fine. i've been up 3 hours already plus had breakfast and i'm still groggy from the anti depressant. Sometimes i could just scream.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 25mg prednisolone, calcium supplement,
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/15/2010 2:54 AM (GMT -7)   
(((chocholic)))

Hmmm. There has to be some way to achieve better communication with your Mum. Do you have a counsellor or anyone you can talk to about this, or are we (the forum members) it?

Would it help to actually have a couple of formal chores that you think you can do, no matter how ill you are (hard, I know), and make that the baseline that you're prepared to commit to, but make an effort to do more when you're feeling stronger?

It doesn't seem helpful (to me) that your Mum is dumping these chores on you by text at the last minute - it speaks to a certain lack of routine & organisation & tidiness & communication at the parental end too.

Kitchen work is *hard*, with all that standing up and moving around. I know I find it one of the most draining and exhausting of all my household jobs. What about a deal: the parentals take major responsbility for the kitchen; you do some of the other main living areas and help out in the kitchen with some of the lighter jobs until you're stronger?

Me:

* done enough dishes that I can go to bed without feeling completely guilty
* cleared a few surfaces, so things look a bit tidier
* cleaned teeth
* fed the cats

Ivy, grrrring with you.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/15/2010 6:46 AM (GMT -7)   
i'm on the waiting list to see a psychologist, but its a long waiting list!!
Mum is living on cloud cookoo land at the moment cos she's just got herself a fella. She's let everything at the house slip and its now a HUGE job to get caught up. If it was just a matter of keeping up to the housework i could do that happily. But now its a day job to get one room straightened up. i just cant do it alone and mum gets back from work then doesnt do anything. She thinks that cos she's working and i'm at home, its my job to keep the house tidy. which is fine, if the house was tidy to begin with!!

Its just been a sucky day, my humira went to my old uni address instead of my current address so no delivery! I rang and rearranged but its still really annoying! Felt pretty rough this morning but am feeling better now. Rang my old uni to get a letter confirming i'm no longer a student there and got told to email them.

Here's hoping the rest of today gets better and tomorrow goes well!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 25mg prednisolone, calcium supplement,
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/15/2010 3:04 PM (GMT -7)   
Yeah, I thought it might be something like that. I read the FLYlady forum sometimes and hear that spouses can behave in a similar way sometimes - I work; you're at home; therefore it's your responsibility to do everything at home no matter how crook you feel.

All I can suggest is just plodding away at it a little bit at a time, because you need a sanitary and nice place to live too... but, mentally, it might help to remember that you're doing it for *yourself* because you deserve clean surroundings, not because someone else has told you to.

I hope you get your Humira soon and that you get to the MRI without any probs.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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