SCD and stricture??

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tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 7/14/2010 4:09 PM (GMT -7)   
So I've been doing a lot of research about SCD, finally got and read my book, and I've decided that I'm ready to "take the plunge." Right before I moved, I was diagnosed with a stricture (don't know if it's inflammation or fibrosis) on a CT scan and got put on a prednisone taper while I wait for a new GI appointment...currently on 15mg and still have 2 weeks to wait for the GI appointment.

So I decided to try SCD, in case the stricture was from inflammation and try to get the other symptoms under control so I can get off pred and maybe put off Remicade for a little while longer...

But anyway, I have a bunch of questions.

- What's the best way to start SCD? Cold turkey on sugar/carbs or wean yourself off of other foods?
- What should I avoid with a stricture? (I've been eating raw veggies for years and just started to have problems)
- Is it possible to get obstructions with this diet?
- WHat kind of vitamins do you take to replace what you're missing?
- How long do you wait until you introduce the "advanced foods?" like nut flour, etc.
- What can you use for sweetners, aside from honey? My Crohn's HATES aspertame/nutrasweet and all that stuff.

I really, really want to do this because I think it might help. But I have NO idea what I'm doing and I kinda don't want to mess my body up...so any insight from experienced people on getting started would be beyond helpful. Thank you!!
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

75mg Imuran, 750mg Balsalazide 3x day, Tapering Pred.

Maybe flaring...maybe not?


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/14/2010 4:47 PM (GMT -7)   
1. Cold turkey or gradual both work. If you do it gradually, you will reduce the severity of the die off symptoms, but on the other hand, you also prolong them. I sort of did it gradually. I decided in late October that I would start the diet on December 1st, because I needed time to learn everything I could about it. Over that month, I started dropping things (Boost, ice cream, pop, etc).

2. I'd avoid anything raw for the time being. Cook, peel, and deseed all of your fruit and veggies. You may even want to puree them in the begining. I'd avoid real fibrous foods as well (like celery and spaghetti squash), even if they are cooked. You can still put celery and whatnot in your soup to flavor it, just pick it out before you eat. If you have really bad issues with fiber, you can run your cooked fruits/veggies through a foodmill. It pretty much removes all the fiber, and you're left with a smooth baby food consistency. Stay away from nuts too (except in butter form).

3. Yes. If you have a stricture, and eat something that doesn't agree with you, you could obstruct. The key is to not eat advanced foods until the inflammation is healed. In the case of scar tissue, you may never be able to eat certain foods (raw celery, raw grapes, a lot of raisins, spaghetti squash, peels of veggies and fruits, whole nuts) unless you get the scar tissue surgically removed (I did this last fall).

4. You don't need to worry about vitamin supplements too much. For starters, if you have a bad gut, you probably aren't absorbing them much anyway. Also, it shouldn't be too long before you have enough foods in your repertoire to have a balanced diet. I'd say the most important supplement to take in the beginning is vitamin D3, and you can also look into taking a multivitamin and b-complex.

5. I waited a long time, just to be cautious. People tend to rush the advanced foods (especially almond flour), and then have setbacks. At a 1 1/2 years on the diet, I'm still on my first bag of almond flour. I stick to almond butter for the most part. I also don't eat much raw yet. My intestines are in good shape, but my stomach sometimes has issues (probably due to low stomach acid, which is probably due to hypothyroidism). I'm hoping that once my thyroid is fixed up, I'll be able to enjoy more raw foods. I did have raw cucumbers last night, and raw strawberries today, and was okay. I just try not to overdo it.

6. Honey and saccharine (the pure stuff) are the only legal sweeteners. I love honey! People that don't usually sweeten things with applesauce or something similar.

One other thing to look out for is additives in meat. Always look at the ingredients. Chicken and ground meat (turkey, chicken, beef) or the most likely culprits to have something illegal in them (natural flavors, broth, etc.).

I was very lost at first too! Now, it's all second nature. You'll get there :-). When you officially start the diet, do at least 2 days of the intro diet. Then, only add one new food at a time (at least 2 days apart). If you add 3 new things and then feel bad, you'll have no idea which of the 3 is the culprit. Keep a food journal to keep track of your symptoms and BMs. You'll be able to figure out which foods work for you and which ones don't a lot easier that way.

Good luck! If you have questions, Emom, David, and I are 3 SCDers (there are others too) at this board that can help. There is also a very active yahoo group at http://health.groups.yahoo.com/group/BTVC-SCD/ that has many SCD veterans.
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 7/15/2010 4:06 AM (GMT -7)   
Thank you SO much for all the information! Makes me feel a lot better that it's okay to be lost. Had a pretty bad pain flare up last night, so I decided to start it earlier and see. I've been working in SCD safe foods and weaning off my regular diet to see how I feel.

But one more question for you, how long did you do the diet before you started to see pain decrease??

Thanks again! You've be such a great help! THough I'm sure I'll still have lots of questions for you in the future. :-)
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

75mg Imuran, 750mg Balsalazide 3x day, Tapering Pred.

Maybe flaring...maybe not?


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/15/2010 10:42 PM (GMT -7)   
EVERYBODY is lost when they start SCD, so you're definitely not alone. It can take a long time to figure out all the illegals that are sneaking into your diet, such as inactive ingredients in supplements, and illegals in places you wouldn't expect (like spices & meats).

I didn't really have pain when I started (except cramping during BMs). I saw improvement fairly quickly though, especially in my constipation issues and acid reflux. I had a setback at around 3 months (something most people go through), but then started improving again. My fistulas healed at around 4 months, and my fissures healed around month 6 or 7 (no more blood in stool). That was around the time that I stopped getting cramping.

Some people see results immediately, but not everyone. You should see something in the first month though. I've seen a lot of people mention that the first thing they notice is that they're sleeping better and that they no longer have night sweats, or that their joint pains are better. So be on the look out for improvements in non-gut related areas as well :-).
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

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