Imuran induced pancreatitis question

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junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 7/15/2010 3:39 PM (GMT -7)   
I have to ask those who have been down this road... how did you feel after you were released... my pain is not completely gone and I keep getting really nauseous..the doc checked my numbers and they are good but than why do I feel the same way I did when I was admitted? Is it normal to feel off for awhile? I see the doctor tomorrow and plan to ask him but know that there are several here who have had this. I do not feel pukey with my crohn's.. nor have I ever had that weird pain in the middle of my gut.

I would like a gastro organ donation..I am done with mine rolleyes

thank you!
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1277
   Posted 7/15/2010 4:55 PM (GMT -7)   
Well, mine happened 10 years ago so the details are a little fuzzy. I was in the hospital for a week and when I went in the pain was so bad I was doubled over. I do remember not having much of an appetite for awhile after, but my pain was gone when I left the hospital.
Diagnosed with Crohn's in 1998, father has UC we were diagnosed at the same age.

Currently on 10 mg Prednisone, 4g Sulfasalzine, VSL#3, Vitamin C, Calcium, Magnesium, D3, Chlorophyll, and LDN. Previously on Remicade, just stopped Humira after 9 months, wasn't working.

No surgeries so far.


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 7/15/2010 7:43 PM (GMT -7)   
I just got pancreatitis from 6MP at the beginning of june. Even after my amylase and lipase got back to normal it took more time than that for my body to recover. I loaded up on zofran and stayed on a liquid diet. Wish I could offer you more advice but there isn't much you can do for it and it's really painful. :(
JAS


Currently taking: Remicade
Recently tried 6MP and developed pancreatitis
Allergic to mesalamines


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 7/15/2010 7:52 PM (GMT -7)   
so maybe the nausea and pain do stick around after numbers return to normal? i am so sorry you are right there with me...i have zofran, maybe I will take it tonight. =(
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 7/15/2010 8:05 PM (GMT -7)   
Hope you have an 8 or 12 mg tabs of zofran that dissolves in your mouth. My symptoms definitely stuck around for a longer than what the docs said they expected. At one point I kept those ice pops in my feezer ( the kind you buy liquid and then freeze) and used them as a way to help lower my nausea.
JAS


Currently taking: started Humira 07.13.10
Recently tried 6MP and developed pancreatitis
Allergic to mesalamines
Developed antibodies to Remicade after 1 year


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 7/15/2010 8:17 PM (GMT -7)   
I would suggest that if you continue to have these symptoms, that you ask your doctor to check for any
permanent damage that may have been caused by this acute attack. They can do this by performing a
MRCP. I went a year or so feeling bad, following my acute attacks,and it wasn't until they did this test that I found out why.
I now have chronic pancreatitis and I'm being treated accordingly. They do keep a close eye on things.
Hopefully, this is not your case, but I'm a firm believer in listening to what your body is trying to tell you.
If you don't feel good, don't let the matter drop.... Wishing you lots of luck for a good outcome (((Hugs)))
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 7/15/2010 8:20 PM (GMT -7)   
I have pills they gave me but not dissolving. The gi seems to think that since the imuran was stopped, the symptoms should be stopped but for some reason the pain and nausea keep returning. That was one of the reasons he ran my numbers again but they were normal. The problem is that i don't feel like I did before the pancreatitis.. uggg.. oh well... thanks jas
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 7/15/2010 8:22 PM (GMT -7)   
they ran an mrcp the second time i was in the hospital and said everything was okay...do you think we should run another one? I see him tomorrow so I will definitely say something...thank you.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 7/16/2010 10:31 AM (GMT -7)   
Good luck!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 7/16/2010 10:44 AM (GMT -7)   
thanks..I am so freaking nauseous today. I had to take another zofran... I talked to the dr at the mayo and he said that symptoms can last for a couple of weeks but that I should share with the gi today in case he wants to run more tests..

thanks again.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 7/16/2010 3:40 PM (GMT -7)   
So my GI doesn't agree with mayo... and said there is no way the pancreas would be causing issues. He wants me on reglan because he thinks that having the pancreatitis caused me to have stomach issues. He sits there and tells me how complex my case is. That he can't figure out how to treat my joint pain and my bowel issues and now my tummy issues...I am frustrated..

Mayo mentioned me using methotrexate (sp) but my GI has no experience with that and didn't like that. He is going to do the entocort for now with the prednisone and see what happens.

I am confused.. upset and frustrated...and now on reglan for severe nausea.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 7/16/2010 4:27 PM (GMT -7)   
June, watch that Reglan, it is known to cause Tardive Discanesia (sp). It's an awful affliction causing the patient to have
uncontrollable tics, sticking out the tongue and other awful aflictions. There are a lot of law suits pending on this drug right
now. I personally wouldn't take it. But that's just my opinion. Research for yourself and see what you think!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 7/16/2010 8:59 PM (GMT -7)   
My pancreatitis was 6mp induced in 1998. Digestive enzymes and soft food helped a little.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 7/17/2010 8:55 AM (GMT -7)   
June, every one's CD is complicated..

I had a bad time on Immuran too, it took months for me to recover from it fully. I was also flaring so that didn't help, and my doc didn't believe the drug made me so sick, and that didn't help. I slept a lot, and ate very gently for months.

I'd suggest finding a new GI...

I hope you feel better soon.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 7/17/2010 4:59 PM (GMT -7)   
sorta running out of GI's...and living in rural iowa...but thank you for sharing with me about the imuran..I will take your advice..
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 7/17/2010 7:34 PM (GMT -7)   
June, I really hope things take a turn for the better. I've been thinking about you....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 7/17/2010 8:09 PM (GMT -7)   
thanks so much Vicky.. I do too.. the reglan has helped the nausea... I am hoping not to take it long term...will talk to the mayo again on monday and just take one day at a time.. started the entocort along with the prednisone today... just feel really icky and tired tonight.. but its okay...I am breathing again today... spent some nice family time..

hugs
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Peace08
Regular Member


Date Joined Sep 2008
Total Posts : 28
   Posted 7/18/2010 6:51 AM (GMT -7)   
i felt nauseous for a long time after they stopped Imuran, I also developed pancreatitis. But with time the nausea fades away and i was able to eat again, although i remember that I was on prednisone, very soon after stopping imuran. If you are concerned you should definately bring it up with your GI. I wish you well :)
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