Question on Labwork

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Love_Art_Baby
Regular Member


Date Joined Jun 2010
Total Posts : 59
   Posted 7/15/2010 6:06 PM (GMT -7)   
I need to go back to my GI, I don't want to, but I need to.
Last time I went was March 5th, the day after I got Fired from my job. He had started me on 6MP a little before that, and I was supposed to be getting my labwork done every 2 weeks since then.. I havn't gotten it done ONCE... I have cancelled and rescheduled all of my appointments... He is going to be SOO mad at me :( mad
I have been feeling awful this whole time...what's the worst that could happen? I know he will get mad at me and all, nono  
 but how important is that Labwork? Like what all are they actually monitoring?
23 y/o
Diagnosed in 2007
Misdiagnosed w/ Lactose Intolerance @ 11 y/o
Misdiagnosed w/ IBS @ 16 y/o
3 hospital stays in the last 6 months
been on Asacol, Pentassa, Remicaide, Humira, Prednisone on and off (I think it's the devil) and lost more random things.
Right now 6MP ,Monthly B-12,Fish Oil, about to start Cimzia, just went off prednisone AGAIN, just stopped Humira
 
Married with a 3 y/o
~Want to get this back in control so I can try for another baby! :)


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/15/2010 6:21 PM (GMT -7)   
The reason for the initial frequent blood testing when one begins either 6MP or Imuran is to check liver function and the level of ones white blood cells. For instance, when I began Imuran, my WBCs fell to a dangerously low level. The doctor had to adjust my dosage. Some people have trouble metabolizing these meds and can have problems with the liver or pancreas.

Go get your blood drawn and make and keep your appointment with your doctor!
Moderator Crohn's Disease, IBS, and Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


RedSoxGirl85
Regular Member


Date Joined Jun 2010
Total Posts : 265
   Posted 7/15/2010 6:52 PM (GMT -7)   
I'm on that too and have been going once a week since I started taking it. Mine has been checking my CBC w/Diff and a few other things. He said it was very important that I kept all the appts. What is your reason for canceling? When you got fired did you lose your health insurance benefits? I do know here in MA they still have to let you get certain things done even without insurance or if you aren't able to afford it. I was going every Tuesday to get it done and one week I went on a Friday instead of Tuesday. I got a call questioning why and that it was important not to do that. Wasn't sure what the big deal was since what can happen in a few days. So I would just call let them know whats going on and hopefully then he won't be mad!?!
RedSoxGirl85
50mg 6MP
10mg Prednisone
1000mg Sulfasalazine 3x Daily
50000IU Vitamin D Once a Week
Zofran ODT As Needed
100MCG/ML INJ, 1ML Cyanocobalamin B12 Every 3 Weeks
 


Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 7/15/2010 8:08 PM (GMT -7)   
As Ides posted they check the white blood cell count while you take the Imuran and 6mp type meds cause these meds can lower them and if they get too low, well it's one of those things that can initialize (lack of better word) cancer and stuff--low blood cells are associated with Cancer symtoms---so while its completely rare they want to watch it and make sure nothing bad starts up. Liver functions too, last thing you want is your liver to stop and all.

Mine when I do this stuff as added also check my B12 levels which are always low--b12 helps in alot of the maintenance of keeping your body strong, I think bones and spine and all that, some generative stuff your body does. Energy levels too, some people get more energy when they've had thier b12 levels brought up. Vitamin D mine watch now too since its levels are supposed to be an '80' or above and mine tanked to a '14'...it can be alot of things.....if you don't get checked and your white blood count gets low it's dangerous as stated....alot of vitamin levels that can do different things to your body, it's quite a bit they check actually and all do alot of different things for your body.
29 year old Crohns patient of 10 years. Currently on Imuran and Vitamin B12 injections.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 14146
   Posted 7/15/2010 8:28 PM (GMT -7)   
I am on 6mp and I had bloodwork when I started, then 2 weeks later, then a month later, now every month. I am also having a prometheus test in a week or so. I think it is important but usually things are fine. My doctor wouldn't renew my prescription if I didn't get the proper bloodwork and I'd probably end up in an awful flare but that's just me. There are places to get a CBC at resonable prices even without insurance. Someone onces pointed me to personalabs.com, I found their pricing to be fair.
March 2007: Diagnosed with Mild Proctitis - Canasa as needed.
August 2008 - December 2008: FLARE & Anemic - Started Asacol!!
January 2009 - December 2009: REMISSION!! Asacol (9) + Canasa 2x Daily
December 2009 - January 2010: FLARE!! Asacol + Prednisone + Canasa
February 2010 - April 2010: Colazal + Prednisone + Canasa
May 2010 - June 2010: Lialda + Cort Enema + Prednisone : Colonoscopy: Mild / Moderate Active Pancolitis
CURRENT: DOING OK! Prednisone, 6mp, klonopin, Canasa + Vitamin D


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/15/2010 9:25 PM (GMT -7)   

My vote is to burst into tears  . . . docs hate that . . . .and it's not as if you don't have enough to send one over the edge. . . .

Good luck!


Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin.
 
 
 


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 7/15/2010 9:34 PM (GMT -7)   
Because you are on such strong medication, it is important to have labs done to check for the dangerous side effects involving the liver and low white cell blood count. This medication is, after all, chemotherapy. 

Love_Art_Baby
Regular Member


Date Joined Jun 2010
Total Posts : 59
   Posted 7/16/2010 7:00 AM (GMT -7)   
I'm going to make my appointment, and get my labs done. My parents are paying COBRA for me, but going to my GI every week to two weeks with a $40 co-pay on top of the meds etc.. and you know bills I need to pay to live... and I just have been getting tired of this, kind of the mentality of " maybe if I ignore it, it will go away" I've still been taking the 6MP every day, and I've been TRYING to keep up with my B12 injections, but I haven't been doing too good on those either. This just sucks! Chron's took away my Job, my independance, my health, and probably the ability to have another child since I will probably be on 6 MP forever...sorry, I just need to vent a bit, can't you tell LOL
23 y/o
Diagnosed in 2007
Misdiagnosed w/ Lactose Intolerance @ 11 y/o
Misdiagnosed w/ IBS @ 16 y/o
3 hospital stays in the last 6 months
been on Asacol, Pentassa, Remicaide, Humira, Prednisone on and off (I think it's the devil) and lost more random things.
Right now 6MP ,Monthly B-12,Fish Oil, about to start Cimzia, just went off prednisone AGAIN, just stopped Humira
 
Married with a 3 y/o
~Want to get this back in control so I can try for another baby! :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/16/2010 7:09 AM (GMT -7)   
You can still have children while on meds such as 6mp/Imuran, Humira and even Remicade. Many women on this very forum have had successful pregnancies and healthy babies while on these meds. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 7/16/2010 7:23 AM (GMT -7)   
Don't people with a chronic disease fall under the American with Disabilities act? Also, if you get fired b/c you are missing work, it seems like you could file for disability?? I am no expert on these things but thought I would throw that out there. It might be less expensive for your meds and all if you were on disability. I dunno.... But, cost is a huge factor in people not being able to keep up with their health care. Let your doctor know you are having problems. Maybe they can work things out with you on finances. Good luck.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil, nexium for reflux, wellbutrin, 5 mg prednisone/day.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA, LOTS of joint pain followed by a recent set back with the colitis.


Love_Art_Baby
Regular Member


Date Joined Jun 2010
Total Posts : 59
   Posted 7/16/2010 7:43 AM (GMT -7)   
I can't get on disability since I am not underweight, I think with Chron's you have to have a BMI under a certain number to be qualified, which I am not. I also tried unemployment and got denied, the hospital I worked for put me as "unable to work" and you have to "be able to work" to get unemployment. Even though I was flaring and needed meds changed, which they knew, but whatever. I am going to talk to him though about working something out. I can't afford to go to his office every week or two like he was having me. I haven't even gone back to the Rhumetologist since the first visit back in march.
I knew you could get pregnant on remicaide and humira, but I didn't know about 6MP, I thought it was a definite no-no?
Either way I have to get back working before I can get pregnant anyways.
23 y/o
Diagnosed in 2007
Misdiagnosed w/ Lactose Intolerance @ 11 y/o
Misdiagnosed w/ IBS @ 16 y/o
3 hospital stays in the last 6 months
been on Asacol, Pentassa, Remicaide, Humira, Prednisone on and off (I think it's the devil) and lost more random things.
Right now 6MP ,Monthly B-12,Fish Oil, about to start Cimzia, just went off prednisone AGAIN, just stopped Humira
 
Married with a 3 y/o
~Want to get this back in control so I can try for another baby! :)


RedSoxGirl85
Regular Member


Date Joined Jun 2010
Total Posts : 265
   Posted 7/16/2010 1:28 PM (GMT -7)   
Love_Art_Baby - The same thing happened to me. I was fired because I always ended up leaving work early or called in. I tried the FMLA and was told I already used it up. Later the HR lady got fired because I didn't use it and should have been approved. At that point it was too late. But I was told that they are legally not allowed to fire you if they are made aware of your condition they must work with you to figure out a plan. I did end up getting fired and the lady in the MA office was friends with my sister and said what they were doing is ilgeal and I should bring them to court. I felt it wasn't worth my time to bring them to court and sue, etc. But they did let me collect. I ended up not collecting because when someone is unemployed they are supposed to be looking for new work. I would not be looking for new work right away so felt I shouldn't collect. Cobra prices are insane my insurance through Cobra was going to cost almost $500 a month for Aetna. So I went on BCBS and found insurance for myself so I pay $248.63 a month for Blue Cross Blue Shield PPO. You should look into something like that it might be cheaper for you then Cobra. So everytime you get blood work at the GI office you have to pay $40 every 2 weeks? Are you also seeing the Dr at the time of the visit? When I go weekly to get blood work done i do not pay a co pay as I'm just having blood work done. They bill BCBS and what isn't covered I pay but it is never more then $20 in charges. It all adds up and get very expensive after awhile and while not working it sucks! I was told if I plan to become pregnant to let the doctor know so he could change the meds. I was told you cannot become pregnant while taking 6MP. Best of luck and hope you can find some type of insurance that is cheaper. Being as you have a child you might be able to get on state aid insurance. I know in MA you must have a child in order to qualify for welfare or you must have a child to get free insurance through the state as well.
RedSoxGirl85
50mg 6MP
10mg Prednisone
1000mg Sulfasalazine 3x Daily
50000IU Vitamin D Once a Week
Zofran ODT As Needed
100MCG/ML INJ, 1ML Cyanocobalamin B12 Every 3 Weeks
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/16/2010 3:13 PM (GMT -7)   
Unfortunately, I think you are going to have to get back in touch with your doctor and take the risk that he *might* be a bit cranky with you.

Remember, if he is cranky, you will probably only have to deal with it once. Complications from neglecting your health can last years... or even forever.

In all seriousness, though, I think you'll be surprised at how understanding he may be. I think most of us who were diagnosed young went / will go through a period in our twenties where we feel the need to detach from the medical system and test our independence. I know I did (and paid for it, big time), but my doctor understood. He jokingly told me off, explained what the repercussions were, then said "Now Don't Do it Again!!" and then we were back on a good footing again.

Really, try not to worry too much. This is a common situation - he'll have seen it dozens of times by now.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Love_Art_Baby
Regular Member


Date Joined Jun 2010
Total Posts : 59
   Posted 7/17/2010 9:51 PM (GMT -7)   
Yeah, when they fired me, they knew the next day I was getting a colonoscopy to figure stuff out so I could work, and fired me the day before I had it, which was just mean on their part. I was also told I could take them to court on this..being I actually didn't have enough "occurences" of absence to get fired, or any tardies, and my job I was doing fine. So they had no place to legally fire me..but whatever, I didn't pursue that, I didn't have the money, or even wanting to deal with all that stuff... It just sucks..period.
He has me get blood work every two weeks, and every time I go in for an actual appointment, he always wants me to follow up in one or two weeks. so completely seperate. thank goodness I don't have a co-pay for labwork, lol.
I will go get my labwork early this week, and go back to my doctor..
and on better news...I just got offered a F/T permanant Job, so YAYY there...maybe things will start looking up from here.
I guess I was just hoping that ignoring all of this would make all this go away...
I'll obviously get my self in trouble that way :)
23 y/o
Diagnosed in 2007
Misdiagnosed w/ Lactose Intolerance @ 11 y/o
Misdiagnosed w/ IBS @ 16 y/o
3 hospital stays in the last 6 months
been on Asacol, Pentassa, Remicaide, Humira, Prednisone on and off (I think it's the devil) and lost more random things.
Right now 6MP ,Monthly B-12,Fish Oil, about to start Cimzia, just went off prednisone AGAIN, just stopped Humira
 
Married with a 3 y/o
~Want to get this back in control so I can try for another baby! :)


Love_Art_Baby
Regular Member


Date Joined Jun 2010
Total Posts : 59
   Posted 7/17/2010 9:52 PM (GMT -7)   
I may also try the tears thing ;) maybe he won't get so mad at me then..haha
I HAVE had a lot of stupid stuff go on in the last few months :(
23 y/o
Diagnosed in 2007
Misdiagnosed w/ Lactose Intolerance @ 11 y/o
Misdiagnosed w/ IBS @ 16 y/o
3 hospital stays in the last 6 months
been on Asacol, Pentassa, Remicaide, Humira, Prednisone on and off (I think it's the devil) and lost more random things.
Right now 6MP ,Monthly B-12,Fish Oil, about to start Cimzia, just went off prednisone AGAIN, just stopped Humira
 
Married with a 3 y/o
~Want to get this back in control so I can try for another baby! :)


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 7/17/2010 10:11 PM (GMT -7)   
Always talk to your doc when you can't afford the co-pays. Some docs will work something out with you.

If the new job doesn't work out, you should be able to collect unemployment by having your doc write a letter that you are now medically able to work.

Good luck with the new job.

Love_Art_Baby
Regular Member


Date Joined Jun 2010
Total Posts : 59
   Posted 7/18/2010 5:26 PM (GMT -7)   
I Hope so! Thanks everyone!!!!! :)
23 y/o
Diagnosed in 2007
Misdiagnosed w/ Lactose Intolerance @ 11 y/o
Misdiagnosed w/ IBS @ 16 y/o
3 hospital stays in the last 6 months
been on Asacol, Pentassa, Remicaide, Humira, Prednisone on and off (I think it's the devil) and lost more random things.
Right now 6MP ,Monthly B-12,Fish Oil, about to start Cimzia, just went off prednisone AGAIN, just stopped Humira
 
Married with a 3 y/o
~Want to get this back in control so I can try for another baby! :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 1:41 AM (GMT -7)
There are a total of 2,732,866 posts in 301,064 threads.
View Active Threads


Who's Online
This forum has 151217 registered members. Please welcome our newest member, antknight.
208 Guest(s), 2 Registered Member(s) are currently online.  Details
holo100, MarcCrisp


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer