Question for Women

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SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 7/16/2010 2:41 PM (GMT -7)   
Has anyone experienced their crohns/inflammation/etc affecting their vaginal area?  My GI (first time I saw a woman GI because my GI was out of town) said this can happen...Any input would be greatly appreciated.
 
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Have been on Prednisone, Asacol, Entocort, Remicade, and Mercaptopurine (even the lowest dosage was messing up my liver, argh) in the past.
 
Currently on Avalox (well, when I'm not throwing it up...), and a quick power pack of Pred, ugh  

Trying to get on Humira but having insurance issues.. :(


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 7/16/2010 2:44 PM (GMT -7)   
what do you mean by 'affecting'?

Recto/Vaginal Fistulas can happen skull
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


RedSoxGirl85
Regular Member


Date Joined Jun 2010
Total Posts : 265
   Posted 7/16/2010 2:48 PM (GMT -7)   
When the ulcer tunnels into an adjacent organ, a channel (fistula) is formed. The formation of a fistula between the intestine and the bladder (enteric-vesicular fistula) can cause frequent urinary tract infections and the passage of gas and feces during urination. When a fistula develops between the intestine and the skin (enteric-cutaneous fistula), pus and mucous emerge from a small painful opening on the skin of the abdomen. The development of a fistula between the colon and the vagina (colonic-vaginal fistula) causes gas and feces to emerge through the vagina. The presence of a fistula from the intestines to the anus (anal fistula) leads to a discharge of mucous and pus from the fistula's opening around the anus.

Was told by my GI it may affect any part of the gastrointestinal tract from mouth to anus..... Hope that info helps.
RedSoxGirl85
50mg 6MP
10mg Prednisone
1000mg Sulfasalazine 3x Daily
50000IU Vitamin D Once a Week
Zofran ODT As Needed
100MCG/ML INJ, 1ML Cyanocobalamin B12 Every 3 Weeks
 


SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 7/16/2010 3:04 PM (GMT -7)   
I thought it was a yeast infection caused by the antibiotic I was taking. I never had one before so I didn't really know what to expect. My gyno thinks its something else and that something else is really scary. But my GI says it could be from my Crohns and I really, really hope it's because of that. I just don't know what to do. It's really scary. All I can do it sit and wait.
 
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Have been on Prednisone, Asacol, Entocort, Remicade, random antibiotics (cipro, flagyl, avalox, etc), and Mercaptopurine,  (even the lowest dosage was messing up my liver, argh) in the past.
 
Currently on Predisone and (finally!) just started Humira.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/16/2010 3:05 PM (GMT -7)   
We did have someone here a few years ago with the sort of vaginal issues your doctor described (not fistulas, btw; other stuff) but I can't remember her name now.

If you're very patient, you might have some luck searching back through the forum...
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 7/16/2010 3:16 PM (GMT -7)   
http://www.healingwell.com/community/default.aspx?f=17&m=921771

Thanks for the suggestion Ivy, I found someone who sounds similar to my symptoms. I'm going to check out the article she linked.

It's funny, because when I mentioned briefly on the phone to my (male) GI about how that area was hurting he didn't seem to think of any corrolation, then I see the woman GI and dont even think there's a connection 'cause of what my gyno told me the day before and the female GI was the one who said the crohns can affect that area. I mean, it makes sense to me, seeing as the areas are so close, and my crohns is the worst it has ever been and all of a sudden I seem to be getting new symptoms left and right that are unlike my usual out-of-remission symptoms. But who knows? I hate this. I hate not knowing.
 
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Have been on Prednisone, Asacol, Entocort, Remicade, random antibiotics (cipro, flagyl, avalox, etc), and Mercaptopurine,  (even the lowest dosage was messing up my liver, argh) in the past.
 
Currently on Predisone and (finally!) just started Humira.


grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 7/16/2010 3:37 PM (GMT -7)   
This is interesting...I get 2-3 absesses a year in the vaginal area, and my bartholin's gland was lanced so many times in my late teens and early 20's I'm not sure it works any more. I have a lot of vaginal dryness which my gyno attributes to this.

I never connected it to the crohn's though.
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/16/2010 3:44 PM (GMT -7)   
Yes, I'm pretty sure that's her. There might be one other person, too: can't quite remember now.

I reckon most doctors are clueless when it comes to understanding how this disease affects *everything*, not just one set of organs.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 7/20/2010 6:51 PM (GMT -7)   
So it wasn't what the gyno thought it was, but that was the scariest most depressing 8 days of my life. I'm just really happy that I happened to have had that female GI doctor last week because I wouldn't have attributed it to the Crohns. Its frustrating, I mean I know gynos can't know a lot about Crohns and all, but she was 100 percent sure it was what she thought it was but it was negative. And she didn't have the greatest bedside manner. That was awful awful awful.

My GI is having me get a pelvic MRI next week. Though I wonder if it's going to affect it being that I'm on the steroids right now so it's kinda putting a bandaide on everything.
 
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Have been on Prednisone, Asacol, Entocort, Remicade, random antibiotics (cipro, flagyl, avalox, etc), and Mercaptopurine,  (even the lowest dosage was messing up my liver, argh) in the past.
 
Currently on Predisone and (finally!) just started Humira.


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 7/20/2010 9:47 PM (GMT -7)   
My OBGYN said that area can often become inflamed during a flare because crohns seems to manifest itself in the easily agitated epithelial cell areas and that's one of them.
JAS


Currently taking: started Humira 07.13.10
Recently tried 6MP and developed pancreatitis
Allergic to mesalamines
Developed antibodies to Remicade after 1 year


Sarah1116
Regular Member


Date Joined Nov 2004
Total Posts : 55
   Posted 7/21/2010 9:31 PM (GMT -7)   
I also went through something similar. I was back and forth between the GI and OB/GYN. The person who ended up helping me was a dermatologist. She said basically my skin was tired of all the constant activity and wiping back there and everything just kept getting inflamed and irratated. She was able to fix it with a cream, I have to go through my meds to see if I can find the name of it. Feel free to contact me if you have any questions or want any more info, I am pressed for time right now or I would explain further what happened. Best of luck!
Sarah
Diagnosed Sept. 2004 (two weeks before my wedding)
Currently on 80mg Humira weekly, Prevacid
Have also taken Methotrexate, Entocort, Remicade, Pentasa and Imuran

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