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Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 7/18/2010 2:44 PM (GMT -7)   
I have lurked here for awhile, and decided it was time for a proper introduction.  I was diagnosed in 2001 after 20 years of a "bad stomach".  After going to the ER in excruciating pain, and undergoing x-rays, the ER doc asked me how long I had suffered with Crohn's.  The scarring was so extensive that it showed up on the x-ray.  Since then, I have been hospitalized with numerous obstructions, but have always responded to IV steroids and flagyl.  For the past 18 months, I have been dealing with a painful bout with Crohn's in my perianal area, as well as a flare up from hell.  Because the perianal area refuses to heal, I will undergo "fecal diversion" surgery on the 29th.  Isn't that a nice phrase for rerouting poop? smilewinkgrin
 
Hopefully, this will be a temporary measure, but at this point I am just looking forward to feeling better.  Thanks for taking the time to read my introduction, and thanks for being such a supportive and informative group.
 
 

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/18/2010 3:14 PM (GMT -7)   

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8550
   Posted 7/18/2010 3:17 PM (GMT -7)   
Welcome to HW, Glori :p

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 7/18/2010 3:38 PM (GMT -7)   
Welcome to HW Gloria! Glad you decided to join us! Sorry to hear your having surgery. Hopefully this will make things better for you.
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 7/18/2010 10:21 PM (GMT -7)   
Hi Glori and welcome! Please feel free to join in whenever you can. Sounds like you have been through a lot and we always welcome another opinion!
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 7/19/2010 9:42 AM (GMT -7)   
Hello and welcome...
"The earth laughs in flowers"


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 7/19/2010 10:27 AM (GMT -7)   
wow glori, 20 frieking years with a bad stomach. thats really sad, I feel for you. I feel almost lucky that my stomach got reallybad and with in 3 months of bad stomach I was obstucted undergoing major surgery. now how lucky is that??????? that is also really sad. several remission's, that was surgerically induced. I've had cd for 40 years, I started posting after terrible flare landed me on pred and immuran. now rem. immuran was horrible side effects, as well as is pred for me. rem is not helping so much, just a little. good luck to you glori. this is really great forum. super smart people and very knowledgable, I get lot's of info here, I never go to internet to look up anything regarding my med's or cd. just post it here you will get answered. for me hw is a lifeline of sorts.

artist guy


Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 7/19/2010 3:16 PM (GMT -7)   
Thank you all for the welcome.

Artist, I can relate to the side effects from Imuran, as it elevated my liver enzymes to a dangerous level. I have also used Remicade with some success, but switched to Humira in January of this year. I have a love/hate relationship with Prednisone, and have managed to stay off of it since March. It wasn't really doing anything to help the Crohn's for me, but I was steroid dependent after being on it for almost a year this last time. Hopefully, your health will improve soon!

I am currently seeing physicians at Barnes-Jewish Hospital in St. Louis, which is about four hours away from home for me, and am a little anxious about undergoing surgery without my family and friends near me. At least it is just a little over a week away now, so I don't have to think about it for too much longer!

Thanks again to everyone for the welcome,

Glori
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