can it be crohn's

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mouth
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Date Joined Jul 2010
Total Posts : 29
   Posted 7/20/2010 4:37 AM (GMT -7)   
New to the forum just registered here is some info 55 year old mum 2 grown children 3 grandchildren live in northern ireland. Have had stomach probs all my life Nissen Fundlipication at 6 weeks old rare in a girl so i'm told, couldn't eat certain foods without pain wind and the big C so i avoided them never weighed more than 7 stone couldn't seem to put weight on. about 5/6 years ago pain started getting really bad ended up in A and E often told i had IBS, stress or depression told to go away and deal with it after many tests also told at 1 time had overflow diarrhea. Pain constantly in LRQ and gallbladder area now they say they will check 4 Crohn's but are also trying to blame my operation after 55 years, had a SBS approx 3 weeks ago going for Catscan in 3 weeks time wouldn't tell me if they could see anything on SBS. i get the impression they are only doing these as i dropped to 5 stone 9 and they want to shut me up and get rid of me as i am not physically sick and do not have diarrhea, tried telling them cannot be sick with my Nissen Fundlipication just dry heaves. Any thoughts or help very much appreciated. confused

njmom
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Date Joined Apr 2006
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   Posted 7/20/2010 5:55 AM (GMT -7)   
With LRQ pain yes, it could be Crohn's. My daughter never had diarrhea - instead, she had constipation. I'm glad they are testing for Crohn's and hope you get a diagnosis soon of whatever it is, so that they can treat it effectively and you can feel better.

mouth
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Date Joined Jul 2010
Total Posts : 29
   Posted 7/20/2010 3:08 PM (GMT -7)   
Thanks for the reply really appreciate it. the doctors here aren't very clued up on Crohn's try there best i suppose. The Gastro I have now seems nice enough but only saw him for about 10 minutes he's the one that ordered the tests, dietician i have is lovely young girl very understanding, consultant surgeon isn't very nice implied i was anorexic or bulimic just kept me in huspital for two weeks and monitored everything i ate. Asked why i had disappeared for 3 years and hadn't seen anyone didn't like it when i said was sick of being told it was all in my head

MMMNAVY
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Date Joined Jul 2006
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   Posted 7/20/2010 3:17 PM (GMT -7)   
pill camera? it is less invasive then a scope
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

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mouth
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Date Joined Jul 2010
Total Posts : 29
   Posted 7/21/2010 12:38 AM (GMT -7)   
Don't know whether or not they have that here or not slightly behind the times, but the plus side is very quiet lovely people and beautiful country, might have to go to England or Scotland for that.

LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 7/21/2010 6:38 AM (GMT -7)   
Hiya,

I see you are in Northern Ireland. I had the pill cam done in Dublin (Tallaght Hospital) so i'd presume they do it in Northern Ireland also. If not, Dublin is only a couple of hours away. You could ask for a referral from your GP, that's what i did. Plus it was the only test that showed up my inflammation. The other tests can miss it if it's in the small intestine.

Best of luck,
Lila

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 7/21/2010 1:19 PM (GMT -7)   
Thanks Lila will ask GP if i can't get any joy here wait to see if the CT scan shows anything. I love Dublin the shopping is great.

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 7/22/2010 6:43 AM (GMT -7)   
Just a few questions i wolud like to ask anyone here as you seem more knowledgable than most Docs
1. is it possible to suffer constipation instead of diarrhoea ?
2. is it possible Crohn's will not show up on blood tests ?
3. can you suffer pain every time straight after eating ?
4. i always itch and scratch after eating especially on legs and arms.
5. is a sign of Crohn's not digesting food properly sorry to be gross but certain foods coming out totally undigested ?

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 7/23/2010 10:12 AM (GMT -7)   
I'll take a shot at your questions -
1. is it possible to suffer constipation instead of diarrhoea ? Yes, a lot of people here complain of constipation and/or slow bowels.
2. is it possible Crohn's will not show up on blood tests ? Yes, you can have pain and not show inflammatory markers on blood tests.
3. can you suffer pain every time straight after eating ? Yes.
4. i always itch and scratch after eating especially on legs and arms. Sounds like an allergy to me.
5. is a sign of Crohn's not digesting food properly sorry to be gross but certain foods coming out totally undigested ? could be, but some foods are just like that, and that happens to everyone occasionally, I think.

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 7/24/2010 2:05 AM (GMT -7)   
Thanks for reply kazbern suppose i'm just fed up being told its all in my head or its related to the op i had as a baby my question is why should it start playing me up after 55 years. Pain most days is unbearable all they gave me is paractemol doe's nothing at all, can't take antispasmodics due to the pyloric stenosis. All they have found so far is an overactive gallbladder dumps bile all at once and the starts of oestporisis (sp) on left hand side and athritis in right ribs. SBFT came back normal have to wait another 3 weeks for CT scan don't think i will last that long. Can it occur in the large colon only as the pain is always under right ribs and low right groin next to pelvis/appendix area at times there is a lump in this area which is extremely painful to touch, did break my pelvis in a bad car accident 16 years ago.

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 8/9/2010 4:16 AM (GMT -7)   
Well going for CT scan this Thursday, SBFT came back as normal beginning to give up again, still in pain right hand side pelvis and under ribs all the time, don't know what i can take for this given no info at all. Any help with pain relief that you can offer greatly appreciated, really fed up and down now. cry cry

DaveF
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Date Joined Jan 2010
Total Posts : 1109
   Posted 8/9/2010 9:10 AM (GMT -7)   
Mouth
I went for every test and they all came back either negative or completly wrong. I then went for a pill cam becasue all else was inconclusive and doc thought it might be in small bowel. It came back 100% and was very easy to see. If your doc thinks it might be small bowel please consider the pill cam. If you have this crazy thing you need to start treatment.
All the best
David
 
Was on Kapidex, and Pentasa, multi Vit, Vit D. Started on Predisone and my legs started paining with loss of control. Doc stopped all meds until I can figure out was is happening with my legs. Off meds for 4 weeks and have returned about 75% to normal.

artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 8/9/2010 12:03 PM (GMT -7)   
hey mouth just say what a great country you live in. can cd cause c. you bet it can depends on where your cd is mine is way up high in small bowel so narrowing and c is big concern, i can have both c and or d.

artist guy

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 8/10/2010 3:39 AM (GMT -7)   
I get both as well artist boy sorry to be gross yellow d this morning pain terrible in right groin and heartburn is killing me, if they run out of gas in the north sea i can donate some as its really bad today, don't know whether or not to go back to A + E or not there Friday night just given co-codomal not doing a darn thing told to go back if it didn't get any better the only problem is i feel as though i am wasting there time. yes it is a lovely place amazing scenery if your an artist.

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 8/10/2010 6:33 AM (GMT -7)   
My GI just told me the other day that only about 30% of people with CD actually have it show in their blood work.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 8/10/2010 9:04 AM (GMT -7)   
Had blood tested loads of times told it showed nothing so couldn't have it, sometimes think Docs are a bit thick and go by a text book and then look at you as if you have 2 heads when you tell them the symptoms. Only had 1 colonoscopy 5 years ago not that i want another so no doubt it's out of date. Complained at by Consultant for not going back before but when i read my file it stated IBS, Dysfunction of the Oddi Sphincter or Bilary Dyskenisia couldn't make up there mind so went away for 3 years. at the end of the notes it said invasive surgery not recommended so i just gave up and tried to deal with it.

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 8/12/2010 8:31 AM (GMT -7)   
Well went 4 CT scan 2 day not as bad as i thought just the horrible drink looked like water tasted like c**p told to phone and ask the Consultants secretary 4 results in 2 weeks time if i had not heard anything by then, staff were lovely as it was only a small hospital out in the sticks a lot more welcoming and put me at my ease thank god. The last one i had 5 years ago the nurse wasn't the best with the dye injection think she was digging 4 gold. :-) :-)

LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 8/13/2010 2:19 AM (GMT -7)   
Mouth,

I agree with mdf34 - i have a definite diagnosis of crohns yet never once have blood tests showed up any signs. And if it's in the small bowel, chances are nothing will show up on the other tests unless you have the pill cam test. I really feel you should push for this as it will end the doubt for everyone - not to mention your frustration!

Doctors & even consultants can be very dismissive if they do not have a definite diagnosis on paper so i think the pill cam will end all the doubt and get you on the road to recovery, which you deserve.

One thing i learned from this disease is to stand up to doctors/consultants when they try to dismiss me and insist that they refer me for the necessary tests etc.

Best of luck and be strong.
Lila

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 8/13/2010 4:38 AM (GMT -7)   
I am just so fed up being fobbed off and you get to the stage where you don't want to bother, i don't know how you have all managed to cope over the years it must be soul destroying at times, just hope i hear someting soon. "Question" After the CT scan with dye did anyone else suffer terrible D along with cramps and gas is this normal ?

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 8/22/2010 2:11 AM (GMT -7)   
As you all know am being looked at for Crohn's and had to go for Abdo/Pelvic scan well in so much pain and being sick the other day green no less sorry to be gross went back to A + E pulled up results and they have found something they don't like the look of in right illiac quadrant by my ovary so mad rush loads of blood taken so they sent down a young woman gynea doctor to talk to me still trying to work out why gynea took my phone number and said she was putting me down as urgent and will get me in to see someone this week. Couldn't give me any painkillers only paracetemol or co-codomadal so went to the chemist and bought paramol seems to be helping a bit better at the moment so keep your fingers crossed i hear something this week.

mouth
Regular Member


Date Joined Jul 2010
Total Posts : 29
   Posted 9/22/2010 3:24 PM (GMT -7)   
Back in hospital again 4 6 days did a transvaginal ultrasound told it was nothing to do with them. now back 2 Gastro down 4 colonoscopy and upper endoscopy only no idea when told waiting list very long. Told by own GP down 4 lapro then told by hospital no i am not don't think the right hand knows what the left hand are doing still in pain all the time in right hand corner so fed up with all this carry on just living on pain killers all the time and they constipate me all the time which makes it worse, the joys of the NHS and just found out my sis in law died on Tuesday due to hospital negligence not diagnosing her properly really instills confidence "NOT".

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 9/23/2010 12:59 AM (GMT -7)   
So sorry about SiL, that doesn't help much.
Hope you get a proper diagnosis and answers soon
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