first flare? idk! hopefully someone can help me figure this out.

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dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 7/20/2010 7:55 AM (GMT -7)   
 
first off, heellllo strangers!  it's been awhile!  i haven't forgotten about the wonderful people on this forum.  in fact, for anyone i know that ends up with a disease or chronic illness, i recommend they checking out healingwell for amazing support :)
 
i am SO confused!  i have been in remission since december 2009, i was taken off 6-mp in march because my intestines looked great, i was feeling great, all was well.  well now, the past 2 weeks i am having stabbing pains in my upper abdomen & right side!  now, i am not nearly running to the bathroom as much as i was before.  in fact, pretty normal bm's with occasional 3-4 times per week attack.  now, i wanted to come off 6mp badly due to my immune system not fighting off anything.  and yes, i was only on it for 2 1/2 years and my gi said we can try it but if you don't take it long enough, crohn's can come back fairly quickly.  i also have been having massive pain in my si joints along with my shoulders.  occasional pains in wrists, knees, ankles ...WTH?  i have never been so achy in my life :(  my si joints throb with pain, you can feel like, pulsation & burning.  can a flare bring new symptoms?  is there something else wrong with me?  i am so confused :(...  i also have angular cheilitis that i can't get rid of, even on 10 days worth of famciclovir.  my lips keep swelling, cracking, blistering and of course, the corners of my mouth are cracked.  can this somehow be all related?  they want to do a patch test on my because my derm seems to think it's an allergies reaction.
 
any help, in sight, really, really, REALLY appreciated!  i hope you are all doing well!!


.: stephanie :.
35 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, trazodone, iron, calcium, folic acid, b12 injections at home & some other vits

currently in remission! :D


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 7/20/2010 8:41 AM (GMT -7)   
Stephanie, so sorry you're feeling bad. For me, joint pain has gone hand-in-hand with Crohn's flares, so I would conclude that you are starting a flare, too. But maybe it's time to visit a rheumatologist. I did that 5 years ago and while he finally concluded that it was Crohn's related, it was good to eliminate other possibilities, too.

Another issue I've had is that my joint pain seems to be closely linked with my estrogen status - if I'm approaching the start of my period and my estrogen is falling fast, my joints are inflamed and achy. My rheumatologist agrees that among his female patients, the lack of estrogen is associated with more pain. Given that you're 35, is is possible that there's a hormonal issue too?

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 7/20/2010 9:40 AM (GMT -7)   
thank you so much kazbern. oddly enough, i am due for my cycle any day now. it's really been rough the past few days especially. i was really shocked when i read that!

how do they diagnose if you have arthritis? someone told me via x-ray. now, when i had my bone density tests done, they took a picture of my right hip both times. would they have been able to detect anything then? though it is more my si joints.

i am real worried it could be the start of arthritis. i know i keep putting off but maybe i should call my gi and possibly get a referral :/

thanks again!
.: stephanie :.
35 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, trazodone, iron, calcium, folic acid, b12 injections at home & some other vits

currently in remission! :D

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