What do you think originally triggered your disease?

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snappy
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Date Joined Sep 2005
Total Posts : 675
   Posted 7/20/2010 9:00 AM (GMT -7)   
I was just reading that Crohn's disease lurks until you run across a triggering factor. I've always thought that I triggered mine by running a marathon with the flu, and the resulting pneumonia that came with that. Kind of blew out my immune system, so to speak. Is there any event you want to blame your's on?
 
Thanks.
Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


ZenaWP
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Date Joined Aug 2007
Total Posts : 884
   Posted 7/20/2010 9:20 AM (GMT -7)   
I know exactly what triggered mine.  I had just had a bad break-up, I had a stalker and I was in a car accident all at the same time. 

Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 


MaryS
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Date Joined Jan 2003
Total Posts : 1668
   Posted 7/20/2010 9:31 AM (GMT -7)   
Even though my Daughter suffered from chronic constipation as baby, child and teen and was possibly pre-disposed to IBD, she was healthy as heck until age 16 when she was injured severely as a pedestrian in an auto accident
and also had been seeing a Dermatologist for acne months before that. Dermatologist had her on antibiotics longer than I think she should have been, add that long term use of antibiotics to the huge doses she was pumped with after the accident for surgeries and I think it all blew out her immune system especially by killing off a lot of good bacteria in her gut.

She spent a year recovering and once she was given a clean bill of health from the accident, she was misdiagnosed and then diagnosed with Crohns/Colitis.

I think there are many different triggers for patients. I can't find an exact genetic trigger for it, so I am thinking it might be the above.

GDen
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Date Joined May 2009
Total Posts : 703
   Posted 7/20/2010 9:31 AM (GMT -7)   
I blame enormous stress for both my flares.
Cimzia, Asacol


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 7/20/2010 9:36 AM (GMT -7)   
For me I believe birth control pills was the initial start of my CD (BC pills are considered a trigger for crohns, at least they are highly suspected to being a trigger for it), shortly after I started BC pills the perianal crohn's skin tags appeard and disappeard all on their own, every doc that saw them when they were "active" said they were just hemheroides, they were all wrong. I had no other issues what so ever, pooped normal once a day and had total control over my bowels. Then about a yr and a half after my first child was born, BOOM, it progressed internally with classic symptoms, needless to say I was very easily DX with CD once I saw the right doctor. So hormonal changes from pregnancy also played a role...I was a smoker (still am) as well, though I quit during my first pregnancy and then had a lot of emotional issues right after having my first baby and started smoking again as well (so I was highly stressed at the time as well)...it's believed by researchers that it's likely a combination of triggers that can lead to getting sick with crohn's. BTW, smoking is one known trigger for crohn's and that includes second-hand smoke...I quit smoking for 3 yrs and my CD became worse so I started again and it helped calm things down a bit...my CD is affecting my colon (where UC typically hangs out) so I suspect that for me, this is why the smoking helps some, carbon monoxide from cigarette smoking has an anti-inflammatory affect specifically on the colon.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 7/20/2010 9:38 AM (GMT -7)   
We think I had IBS all throughout high school/college. Then I got pregnant and had gallbladder problems and that's when everything started. My dad also had UC (hasn't had a flare since his 20's) which made me a little more prone to IBD. I really take mine down to the gallbladder issues.
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008
Possible Rheumatoid Arthritis

Medication: Pentasa 6x daily, Imuran 50 mg, multivitamin, Vit B12 1 g, omeprazole. Sulfasalazine


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 7/20/2010 11:05 AM (GMT -7)   
College-related issues.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 7/20/2010 11:28 AM (GMT -7)   
Losing my baby to stillbirth, the subsequent almost dying from ruptured uterus, more surgeries on abdomen and than an incredible amount of stress personally that just pushed it all over the edge---
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


JAB
Regular Member


Date Joined Nov 2003
Total Posts : 351
   Posted 7/20/2010 11:37 AM (GMT -7)   
I can probably credit mine to extreme stress due to several things going on in my life including finals week in college. That's when the Crohns started.

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 7/20/2010 11:45 AM (GMT -7)   
I believe mine was caused by long term antibiotic use to treat teenage acne.
David

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


JAB
Regular Member


Date Joined Nov 2003
Total Posts : 351
   Posted 7/20/2010 11:47 AM (GMT -7)   
I can probably credit mine to extreme stress due to several things going on in my life including finals week in college. That's when the Crohns started.

Stone2067
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/20/2010 11:52 AM (GMT -7)   
Wow, There have been so many triggers! First doc said it was stress, then it was foods.There are so many questions that have go unanswered on this disease. Since my resection in 2003 i cannot count how many joyful returns i have had to the hospital. Basically you have to be cautious about everything in your life. I thought by giving up alcohol 3 years ago things would improve they have not. It seems like every time i have a flare up they just give me prednesone and send me on my way. I feel for everyone who has this awful disease.

Levi
Veteran Member


Date Joined Nov 2009
Total Posts : 1695
   Posted 7/20/2010 1:14 PM (GMT -7)   
This was posted on the UC board last week. Stress was mentioned in the majority of replies over there, or very close to the majority. Either way, stress far outnumbered the other causes people listed. A stressful time at work is when I began having my symptoms.

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 7/20/2010 1:19 PM (GMT -7)   
mental stress wasn't a factor in mine. I was running my best and loving life and my job has never caused too much stress. But I was also running A LOT!!! I think the physical stress lead to mine, though.

Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 7/20/2010 1:22 PM (GMT -7)   
Pregnancy. My acute symptoms began after the birth of my first child. Maybe there were subtle signs before that (GERD, mostly), but after my diagnosis I heard that the whole immune response during pregnancy often triggers autoimmune diseases. Fortunately, I was symptom-free DURING my pregnancies.

WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 7/20/2010 1:24 PM (GMT -7)   
In retrospect I have always had times in my life when I had abdominal pains, and I had even had ultrasounds to check on things which found nothing. It was the stress of my divorce that put me into my first major flare with bleeding, weight loss and frequent uncontrollable BM's. Now I have to manage my stress carefully. I got married last year, and I had to remember that stress can be good stress but still cause problems. A bad ear infection, then antibiotics, a dentist visit while not recovered sparking a viral infection, more antibiotics and my wedding put me into hospital last time!!
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Nexium, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 7/20/2010 1:37 PM (GMT -7)   
I was diagnosed with GERD a few years before my Crohn's diagnosis. I got the flu and then a subsequent, horrible sinus infection. I was put on Augmentin and getting horrible diarrhea from the med, causing dehydration, and blacked out about 3 days after starting taking it, due to low electrolytes. WEnt to the ER, got an IV to replace fluids and put on a different antibiotic. Had stomach issues after that. Think I just killed all the good flora and triggered the Crohn's...
Pentasa- 4 g q day; 1/08; Percocet
Remicade 1st infusion 7/24/08
Ultram ER 200mg; omeprazole 40mg; Xanax-ANXIETY; Effexor ER 150 mg
Hope this clears up soon, I want to start having babies!


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 7/20/2010 2:40 PM (GMT -7)   
I'm not sure that there is ONE trigger for CD. If I look back at my whole life I could go back to the very beginning and the fact that I was not suppose to survive birth. I was always having strep throat or some other childhood illness that required me to take an antibiotic. My doctor was always watching to see if I was growing enough, it was always just barely, so I was probably not absorbing enough nutrients. I self diagnosed when I was a freshman in high school. I don't remember being especially stressed, but I probably was. Of course the doctor thought I was crazy and told me I was lactose intolerant. When I was finally diagnosed I was a new mother whose hormones had gone crazy during pregnancy. So I'm sure that a lot of the same things that everyone else went through all played a part, lots of stresses and antibiotics, Plus I have a huge family history of IBD. My mother, her cousin, my second cousin and a great uncle ( and most of us are only children).
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 7/20/2010 3:06 PM (GMT -7)   
Long term antibiotics as a kid. Probably a bad diet in teen years. Donating blood my senior year of high school (symptoms started right after that). Stress from senior year of high school...and taking Advil for what I thought were cramps made everything about a million times worse!! Probably all added up to an awesome first flare.
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

75mg Imuran, 750mg Balsalazide 3x day, Tapering Pred.

Maybe flaring...maybe not?


Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 7/20/2010 3:39 PM (GMT -7)   
I have absolutely no idea. I was diagnosed at such a young age. I had no problems prior to it or stress or on any other kind of medications.
I wish I knew how it happened.
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently on: Monthly B-12 injections, 6MP, Calcium, Multi-Vitamin, Vitamin D, Prilosec, just starting Humira
Surgery scheduled: August 19 2010 - small bowel resection in TI


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 7/20/2010 4:30 PM (GMT -7)   
My crohns got symptomatic after having appendicitis. They think it could have been a result of my infected appendix or the antibiotics. Though you can't for sure tie the diagnosis to a cause, I know that I'm not the first person to experience onset after having appendicitis. I have a few doctors in my family and one of them was able to find a few reports that examined the link between the two. I've never received a definite between UC or Crohns. I wish I had a better idea because a few of these studies showed that UC symptoms improved for some after an appendectomy but in people with crohns the surgery can actual irritate you and make you worse off.
JAS


Currently taking: started Humira 07.13.10
Recently tried 6MP and developed pancreatitis
Allergic to mesalamines
Developed antibodies to Remicade after 1 year


taste05
New Member


Date Joined Jul 2010
Total Posts : 4
   Posted 7/21/2010 12:10 AM (GMT 0)   
I had been diagnosed with a bacterial infection which I contracted while in Europe and that is what I believe triggered my Crohn's, because before the bacterial infection I did not have any sypmtoms but after losing 25 pounds in less than a month and a hospital stay they finally put me in Children's Hospital in Pittsburg PA, and I was diagnosed with Crohn's Disease.
Diagnosed with Crohn's Disease in 1996.  Take Asacol 400 mg 3 pills twice a day. 


artist guy
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Date Joined Jan 2010
Total Posts : 1373
   Posted 7/20/2010 6:42 PM (GMT -7)   

I believe mine was caused enviromentally, meaning I had an ****** of a father,who had no self estyeme and took it out on his family, mentally. I had an ulcer at 16. then cd when I was 20. i'm 60 now. that is what started it. flares are definatly stress or injury a factor for sure I've had both and had flares of an on. someone posted on this thread that they think they blew out immune sytem. for sure that will cause either flare or cd. a lot of us are predisposed to get cd or ibd just from certain personallity traits. constant worrier will play havoc on our digestive system. grief as well, the loss of a loved one. many many factors,

 

 


artist guy


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 7/20/2010 7:16 PM (GMT -7)   
Was a pretty sick kid..lots of antibiodicts. Took tetracylene (sp?) for acne all through highschool! Mistake!
I think that with a combination of stress, viruses, and possibly immunizations. I'm was also a carrier for TB for many years and didn't know it.
These are my theories... my brother has MS though and well he never took many antibiodicts at all. I think we just inherited bad genes.  WHo knows!
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 7/20/2010 8:27 PM (GMT -7)   
STRESS!!!! I had some bad stuff happen in my mid teens, and started having symptoms at about 17, surgery at 19.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

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