People's experiences with Humira - How long til it started working?

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SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 7/20/2010 7:03 PM (GMT -7)   
So last week I was finally able to take the first 4 shots of Humira.  Before my doc knew I was going to do that, she told me to go on 40 mg of Pred (the first time I was so sick I actually wanted to go back on steroids!).  She called me later that night and said that since I started the Humira I don't really need to be on the steroids, but I've heard it doesn't always start to work til after a few times, and I was afraid since I just have been having all these symptons I don't normally get during my usual flare ups (I was coughing up blood, lots of pain/blood when going to the bathroom, etc...usually my symptons just involve lots and lots of stomach/back pain and more frequent bathroom trips...but never this painful!)
 
...So I convinced the GI to have me stay on steroids but she wants me to do it very short term (I was only on 40 for a few days, then 30 for a few days, now 20, and I'll be seeing her tomorrow so she'll figure out the rest.)
 
My symptoms are just so horrible this time around, the worst I've ever been, with all these random symptoms, I'm so afraid to go off the steroids. (Which is crazy coming from me because I'm always the one shouting "Ill never go back on Prednisone again, I hate it, wahhhhh and now I'm begging to be on it!) ...I know it's just a bandaid but I'm afraid to go off of them and go back to how I was, which was in so much pain it hurt just to walk or sit.
 
Am I being crazy?  Should I put more faith in the Humira that it will work quickly?  Only a week til the next 2 shots...  It's a weird concept to take a medication only every 2 weeks and have it work since I'm so used to good old fashion tons of pills everyday...
 
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Have been on Prednisone, Asacol, Entocort, Remicade, random antibiotics (cipro, flagyl, avalox, etc), and Mercaptopurine,  (even the lowest dosage was messing up my liver, argh) in the past.
 
Currently on Predisone and (finally!) just started Humira.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/21/2010 9:06 AM (GMT -7)   
I think when I first took it a couple years back, it took a month or so to work.  I just started it back up last week (after being on Cimzia for a year) and I am desperate for it to work sooner.  I am also on prednisone, which they have said for a year and a half that they will get me off of soon, but we've never been able to get below 7.5 mg/day without me flaring even worse.  But, my biggest problem right now is the arthritis...only gut problems right now are stomach pain any time I eat (and often when I don't eat).  I hope it works quickly for you and that you are able to get off of the prednisone.   

Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 


tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 7/21/2010 4:02 PM (GMT -7)   
Humira works right away for some people. Not for me. I am about to begin month 5 and it has definitely been an overall positive experience but I do still have symptoms. It did help my joint pain right away though...just the digestive issues have taken longer. I hate HATE prednisone, and it sounds like you do too. I do think you are doing the right thing by taking it while waiting for your humira to get going since you don't know how it will work for you.

medieval_peasant
Regular Member


Date Joined Mar 2009
Total Posts : 52
   Posted 7/21/2010 8:46 PM (GMT -7)   
I have been on humira since april this year. Started right after quickly getting off prednisone (I HATE prednisone). The humira does not seem to be working for me yet. I may have to go on a shot every week instead of just every other week. Seeing my doc this friday about it since my symptoms have gotten worse. I think Humira, like all drugs, works differently for each person.
25 year old 
college student trying to get a degree in philosophy
Diagnosed Jan. 2008 with Crohns disease.  Been on solumedrol, flagyl, Pentasa, Rowasa, Prednisone, Humira.
 
Currently on Pentasa and Humira.  Started Humira 4-8-10.
 

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