2nd worst hospital expeirience EVER!

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appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 7/21/2010 8:26 AM (GMT -7)   
ok, well I got discharged from the hospital yesterday afternoon, THANK GOD! It was the 2nd worst expeirience ever. All I wanted was my surgeon called, and the GP dr that had been assinged to me refused, he kept telling me my surgeon (whom is the only doctor i trust and whom i call ALL the time with questions and such) did not want to see me and that I am a waste of his (my surgeons) time. The GP really didn't seem to give a crap about what I wanted and or needed. I am just very discouraged right now, I used to rave on & on about how much I loved this hospital. I was there for a day and a half, they gave me one dose of prednisone, one dose of oxycodone(percs) after I told them over & over again that Dilaudid is the only pain medicine that works AT ALL. They tried to give me potassium(sp?) in pill form, and I had to inform them that I am not supposed to take them in pill,(if they read my medical sheet they would have known all of this) and then the proceeded to push four bags of potassium in FOUR hours, that hurt sooo much. I found out the next day that your supposed to push a bag that size in maybe two and a half to three hours. I received no antibiotics, or nausea meds, or acid reflux meds. I have always gotten those when I have been admitted to the hospital in the past. I Just feel like they didn't want me there at all. Even though I was not ready to be discharged, I am releaved that I am out of there. My surgeon is going to be getting a call and I will be making an appt with him, and I will definatly be letting him know that I asked for him repeatedly, and what they said about him.
 
They also did not send me home on any medications, they started me on prednisone and then stopped, I checked and thankfully one dose of prednisone is not enough to  have your adrenals stop producing steriods.
 
I am no officially sick, 2 1/2 days in the hospital while on pentasa and no anti-biotics, I now Have the worst cold I have had in a long long time.. ughhh
 
 
I also have a question, any of you that are on Pentasa, I have been on it for three years, and I have noticed when I am on them they make me very nauceaus(sp?) and really dizzy, Like I feel like the room is spinning. Does this happen to anyone else?
thanks for listening.
and sorry about the storybook of a post!
 
hope everyone is doing well.


26 years old.
Diagnosed 11/06, suffered for 9 years undiagnosed.
large family history of Crohns. resection surgury 3/07.
currently on 1000 mgs Pentasa 4xd
also have horrible anxiety & constant sinus infections.
 -- imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death --

Post Edited (MissAnonymous) : 7/23/2010 10:27:13 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/21/2010 8:42 AM (GMT -7)   
Yikes, I am so sorry! That really sounds like it sucked. I do hope you feel better soon.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


susans53
Regular Member


Date Joined Jun 2010
Total Posts : 318
   Posted 7/21/2010 9:42 AM (GMT -7)   
I hope you never have to go to the hosptial again but if you do, the next time just pick up the phone and call your surgeon from the hosptial and tell them you are in and want to see them. I sort of had a similiar experience just recently where my GI was out of town and her team ( this is a teaching hosptial ) switched teams in the middle and no one had any idea what to do with me. I just sat there for a day like ok now what. Threw a hissy fit the next day, called every office I could think of, and got some where fast. Every hosptial has a social service/advocate office. I have used them twice.

Yes, I was on pentassa long term and the only side effect I had and had to stop was that it was causing polyps in my nose and I was getting chronic sinuitis.

PS Shame on the GP for being so insenitive! and even saying those things!
UC 1996
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000, Emergency j-pouch surgery
Multiple complications, J-pouch redo- July 3,  2001.
Take down-Jan 3,  2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Gall bladder out-Oct 1997
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?
Adhesions


appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 7/21/2010 10:18 AM (GMT -7)   
thank you, I have had to call my surgeon from my hospital room once before and he took care of everything rather quickly, I don't know why I didn't try calling this time, I think I was just overwhelmed and actually believed the GP for alittle while and was rather hurt.
 
I also forgot to mention in my first post that I had a CT scan in the ER before being admitted, they told me that everything was perfectly fine. Didn't really make sense to me then as to why I was being admitted. After the GP told me He was discharging me because I was "fine" and "rather difficult to deal with" (well I wouldn't have been if he hadn't been such an ass!) that where my resection was well resected together is starting to narrow and its a cause for concern.. shouldn't they have told me that when I was admitted?
another thing I don't understand.. when they fed me, they had me eating Broccoli and a salsbury type steak with sald?? I didn't eat really any of it, because well, who gives this to someone who is in the midst of a flare??!! ugh just soo disgusted!

I have HORRIBLE sinuisitis that started a couple of years ago.. maybe thats connected to the Pentasa too.. something to think about. Thank You Both!


Jessica, 26 years old.
Diagnosed 11/06, suffered for 9 years undiagnosed.
large family history of Crohns. resection surgury 3/07.
currently on 1000 mgs Pentasa 4xd
also have horrible anxiety & constant sinus infections.
 -- imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death --

Post Edited (MissAnonymous) : 7/21/2010 11:22:47 AM (GMT-6)


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/21/2010 10:34 AM (GMT -7)   
MissAnonymous:  I'm glad you are home now and "safe".  My recommendations, go the the hospital web site and fill out a grievence form.  You can also call your state and discuss your experience with them, the sooner the better so that you can remember names and details.  Another alternative is JACHO -just google the numbers.  personally, if I wanted to talk to a doc and a professional or professionals were standing in my way, I would call the doc myself and tell them who, what and why.  Heads should role over your treatment - and shouting these issues from the roof top are the best way to prevent it from happening to anyone else.  Thankfully you are off the floor, and away from the incompetence.  Keep us posted as to the results! 
 
http://www.jointcommission.org/aboutUs/ContactUs/
Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin.
 
 
 


tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 7/21/2010 3:56 PM (GMT -7)   
I'm really sorry about this. I have had uneven hospital experiences as well at my hospital, which I really feel comfortable with for the most part. In fact, my worst experience was when my CT scan in the ER didn't show anything either, but I was still in severe pain and I had already had 4 obstructions in the past year (went on to have 2 more). They siad oh well you look fine now and sent me on my way. I was really upset and sure enough ended up back in with another full obstruction 2 weeks later. It's just that every time I go in, I end up being treated by different people and some have more empathy than others. My advice is to definitely call your Dr yourself next time, that is insane. Oh and dilaudid is the only thing that works for me too. I hate when you speak up about your condition in any way but the person treating you asks like you have no idea what you are talking about! I mean honestly, at this point I have a good idea how this situation is going to go when I have an obstruction and I wish the Drs/nurses would listen to me (and dont get me worng, usually they do). Like I said, some have more empathy than others.
Oh and no I have not had that expereince on pentasa.
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