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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/21/2010 4:04 PM (GMT -7)   
Basics:

* think about what to discuss at appointment
* shower and dress
* go to appointment
* drink lots of water
* eat vegetables
* exercise
* stretch
* spirituality stuff
* make medical phone call (this is important, Ivy! nono )
* make bed (evict my indulgent cat from it first. She loves the electric blanket on cold winter mornings tongue )
* plan something fun for tonight
* think happy thoughts


Try to do at least some of these:

* put on makeup
* give my body some tlc (nails & legs?)
* do dishes - done! except for one dish that's soaking yeah
* do some more tidying
* do a bit more flood / storm cleanup (almost done)
* post letters
* errands?
* think about fridge
* give my room some tlc?
* contact someone
* knock another thing off the to-do list
* spend time outside, weather permitting


Have a good day, everyone.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/21/2010 4:07 PM (GMT -7)   
ps. Oh! I forgot to add:

* wash towels, because it's Thursday
* try to do some ironing, because ditto
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 7/21/2010 6:55 PM (GMT -7)   
Ivy -- good luck at your appt and with your phone call. Do you have a day of the week chore schedule? What does it look like? I've been thinking about doing one. I think it would help me keep on top of things better.

TLC
- mail the announcements I finished
- add thank you notes to the other announcements
- medical paperwork
- bathrooms
- show the kids off at Daddy's office
- enjoy girl's night!! Another mom with 2 under 2 and I are getting out for a couple hours.
Mom to two healthy Pentasa babies. 6+ years remission, woo hoo!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/21/2010 7:24 PM (GMT -7)   
My basic chore schedule, which is going to have to change soon because my life has changed so much:

* Thursday - Wash towels, do ironing, do mending
* Friday - change sheets
* Saturday - do paperwork
* Sunday - spiritual renewal
* Monday - family home evening (I'm not Mormon; I just think it's a really cool idea)

Tuesday and Wednesday are looser now. I think Tuesday used to be bathrooms and Wednesday used to be floors (vacuum and mop) but I don't have to do that so much now that I have home help.

I don't stick to the schedule all the time, and some jobs get done a day or two after they're meant to be done, but scheduling it in means it's done approx every week.

My basic rationale is that I tend to flag by Thursday or Friday, and ironing, paperwork etc can be done sitting down :-).
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/21/2010 7:27 PM (GMT -7)   
Anyway, it's lunch time. I'm not feeling too brilliant today (antibiotics), so haven't made much progress.

* shower and dress - done
* make phone call - done
* wash dishes - done
* make bed - done
* exercise - done
* wash towels - yes. Still have to hang them, though.
* washed a few fridge shelves

Hmmmm. I suppose that's not too bad...

I'm having a cup of tea now, and trying to decide whether I can stomach lunch, or whether I should just fast until dinner :-/

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 7/21/2010 9:33 PM (GMT -7)   
Ivy -- that's what I was thinking about the schedule, it'd ensure at least getting things done weekly. Hope the tea helps. It's still barely Weds here and I'm just really eating. No app all day and when I'm most tired I decide I need to eat or I can't sleep.
Mom to two healthy Pentasa babies. 6+ years remission, woo hoo!


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/22/2010 12:37 AM (GMT -7)   
Thursday TLC

* Get dressed
* do some tidying in my room
* do humira shot
* eat plenty
* keep drinking
* do dishes
* finish my book
* look into student finance, i need a letter stating what financial help i got over the last three years. I'm hoping i can just print something off without having to call them otherwise it will be at least 45 minutes on hold then i'll probably get the wrong thing anyway!
* relook at wallpaper samples - does anyone know how to get wallpaper samples books? no-one seems to do them anymore!
* check appt time for tomorrow
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/22/2010 12:47 AM (GMT -7)   
You shouldn't resent being on hold, Chocholic. Remember, "your call is important" to them :-) :-) LOL.

No idea about the wallpaper samples, sorry. It seems odd that they don't do them in books anymore...

Me:

* put on makeup - done
* went to appointment
* do something fun tonight - done. Went for a drive.
* hang towels - done (five minutes ago, LOL)
* more tidying - doing
* errands - yes. Bought petrol and a few extra groceries

Still trying to decide whether I can face dinner tonight. Blergh...
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/22/2010 1:40 AM (GMT -7)   
he he he!! that is true!! course my call being so important to them might have something to do with the fact i'm being charged through the nose for the call!! It is very odd no-one does sample books for wallpapers. There doesnt even seem to be many 'nice' wallpapers around. We went into Homebase and B & Q, they had maybe 6 nice wallpapers and they weren't even THAT nice. Especially at £20 a roll!! I want something fabulous cos i only need 2 rolls as i'm doing a feature wall.

Ivy you should try to eat even if its just toast or something bland like crackers. I'm trying to work up to breakfast, but my horrible diarrhea has come back i'm not even off the pred yet. flipping typical. Only been to loo once, but its almost liquid so the urgency will be back with a vengance soon enough. bleurgh. i agree with you Ivy!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/22/2010 1:51 AM (GMT -7)   
Could your Mum paint you a fabulous mural or something, Chocholic? We actually have a painting painted onto one of our walls, and it looks fabulous. I don't know who did it - it's been there for decades.

btw, have you read "Talk to the Hand"? Might be a good one to read while you're on hold... :-)

You're right about food. I might zap a bowl of porridge - nutritious, but also liquidy enough to (I hope) not cause too many problems.

Hmmm... I've had no veg today. And guess what? I don't have the energy to make any at this time o' night, either.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/22/2010 2:01 AM (GMT -7)   
that could work, but me and mum would never agree on what to paint!! we dont agree on anything really, so redecorating is turning into an interesting conversation!! i haven't read 'Talk to the Hand' i shall have to pick up a copy. Any kind of distraction right now is fabby! Just eaten a sandwich so can now take my tablets. yay.

Have to add to my TLC's

* poo pick the yard
* clean the loo

god bless my mother, so organised!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/22/2010 2:05 AM (GMT -7)   
Wot, are these assignments sent by SMS, Chocholic?

How's the fatigue, btw?

I think you'll enjoy Talk to the Hand... and it really would be a fab one to read while on hold, because it would make you nice and cranky (but make you laugh too). I'm pretty sure you can get it on audio nowadays, too.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/22/2010 4:27 AM (GMT -7)   
yep, sent by text by 9.30am every morning. they used to arrive by 7.30am but i kept kicking off that she would wake me up and i never got back off to sleep.

Fatigue is abit better, but i'm thinking i will have to up my dose of mirtazapine. dont really feel any better, but not sure i want the fatigue to get any worse. Although i dont actually have to be anywhere or do anything 99% of the time.

* Clean the loo - done
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/22/2010 4:35 AM (GMT -7)   
I upped my Mirtazapine dose and ended up like a zombie, so be careful :-).

Forget about justifying yourself abut doing anything or being anywhere - just being home while so fatigued is miserable. :-(

How many more iron infusions do you get to have?

I'm sitting here immersed in family history but MUST go to bed. (I've been putting it off 'cos I feel like I'll have nightmares tonight).

Well done on the loo.

'night.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/22/2010 7:43 AM (GMT -7)   
I have 4 more iron infusions left to have, my iron is on 274 and they want it up to 500 so we're definatley getting on up there. I'm going to talk to my GP before i do anything for sure. We might just swap anti-depressants, rather than upping the dose. Not too sure yet. I feel so much more awake and normal now. i seem to be really fuzzy up to about 3pm.

* do some tidying in my room - done but loads more to do!!
* check appt tmie for tomorrow - done
* finish my book - done
* get dressed - done
* eat plenty - done kind of, should really eat more though
* keep drinking - doing!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

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