Starting Cimzia

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sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 7/22/2010 5:31 PM (GMT -7)   
Got the go ahead from the new GI to start Cimzia and discontinue Remicade.  I'm crossing my fingers, hope this does not cause more leg pain.  Any advice for a newbie to Cimzia?
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain
 
 


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/22/2010 9:57 PM (GMT -7)   
Not sure about any advice. I have only done the injections myself once (at first it was only nurse that was allowed because it had to be re-constituted.) I was concerned, but they were really quite easy. I've never had any side effects from the Cimzia whatsoever. So I will keep a good thought for you and Cimzia! Good luck!
1 fistula with two tracts, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia. Dx Osteoporosis 10/08 started Forteo 1/27/09
Failed every other drug and about to prepare for ostomy surgery... In the process of gathering info and meeting with ET nurses.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/23/2010 5:29 AM (GMT -7)   
I just switched back to Humira from Cimzia and man, I forgot how bad Humira hurts compared to Cimzia!  No, Cimzia is great.  The medicine is thick, so it takes a little longer to push it in (and you have to push hard).  Only side effects I had were injection site whelps but they were nothing compared to what I get with Humira.  Best of luck!
Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 


twinn-burner
New Member


Date Joined Jan 2010
Total Posts : 6
   Posted 7/23/2010 6:36 AM (GMT -7)   
I take cimzia with so so results.  No where as good as when i was on remicade.
 
Why did you switch back to Humira, did the cimzia work for you?
 
I want to either go back to Remicade or try Humira...but I am scared of a reaction if i go back to Remicade.  (however i have never had a bad reacation with cimzia or remicade)

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 7/23/2010 3:27 PM (GMT -7)   
Thx all for the info. God I hope it works! I really hope it was just the remicade causing all the leg pain. But I think it will take time to get out of my system. I had the infusion 4 wks ago. But I lost responsiveness to it as well. I'm bleeding and having mucuos and just feel like I have 0 energy. Can't wait to start. I hope its not too expensive either.
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain
 
 


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 7/25/2010 8:23 PM (GMT -7)   
Hi,

Are you sure it isn't the immuran causing the leg pain? I wish you well on Cimzia - that is my next step also. Keep us posted on your progress.

Julia

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/25/2010 8:27 PM (GMT -7)   
Is it the lupus like reaction giving you the leg pain?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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