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Regular Member

Date Joined Jul 2010
Total Posts : 31
   Posted 7/23/2010 10:45 AM (GMT -6)   
I'm a UCer for a few years now but am only recently reading up much on my condition. Do many people with Crohns start out being labelled as having UC but then have their diagnosis changed after further c-scopes?
I realise that both diseases are very different and one can't develop from the other etc. just wondering is mis-diagnosis rare and are there any main symptoms that usually confirm Crohns?
Dx with pancolitis 2006
In remission for 2 years but currently in a flare. Back to 1 BM a day after a week of steroids so fingers crossed! Seem to be in remission again
Asacol, Iron, Rectal Meds, Probiotics

Veteran Member

Date Joined May 2010
Total Posts : 8375
   Posted 7/23/2010 11:21 AM (GMT -6)   
I was one. My first diagnosis was proctitis. That was the dumb result of my first GI only looking as far as the sigmoid colon. Annoying as I'd been complaining of bloody diarrhea and mucous for a year before that.

After I changed doctors and had a full colonoscopy & small bowel study, my new GI excitedly told me that I had inflammation in the terminal ileum. Biopsy results were inconclusive.

While I continued to complain about diarrhea and occasional blood what finally drove the Crohn's diagnosis was all over joint swelling and pain, which ultimately led to me changing from Asacol to Pentasa. Suddenly my diarrhea went away. The conclusion (in my mind, anyway) was that there was small bowel involvement, eliminating the UC diagnosis and leaving us with Crohn's.

This took about 5 years. Admittedly, I was pregnant and nursing for a good part of that time, so that limited the diagnostic procedures that could be performed. But it was still very frustrating. Now I'm on my 3rd GI. The 2nd guy got booted after he shrugged at the fact that I had iron deficient anemia, no iron stores, and he didn't really think that was very meaningful.


Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 7/23/2010 11:27 AM (GMT -6)   
I was originally diagnosed with indeterminate or indeterminable colitis because I was told I had symptoms of both and they weren't sure which one I had.  Over the years, I noticed my dx changed to Crohn's, but I was never officially told about the change.  I had a friend who had UC and had the ostomy/ostomy reversal, all of that fun stuff, and was then diagnosed with Crohn's a year or two later. 

Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 

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