New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

steve_rd
Regular Member


Date Joined Jul 2010
Total Posts : 31
   Posted 7/23/2010 8:45 AM (GMT -7)   
I'm a UCer for a few years now but am only recently reading up much on my condition. Do many people with Crohns start out being labelled as having UC but then have their diagnosis changed after further c-scopes?
 
I realise that both diseases are very different and one can't develop from the other etc. just wondering is mis-diagnosis rare and are there any main symptoms that usually confirm Crohns?
 
Thanks,
Dx with pancolitis 2006
 
In remission for 2 years but currently in a flare. Back to 1 BM a day after a week of steroids so fingers crossed! Seem to be in remission again
 
Asacol, Iron, Rectal Meds, Probiotics


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 7/23/2010 9:21 AM (GMT -7)   
I was one. My first diagnosis was proctitis. That was the dumb result of my first GI only looking as far as the sigmoid colon. Annoying as I'd been complaining of bloody diarrhea and mucous for a year before that.

After I changed doctors and had a full colonoscopy & small bowel study, my new GI excitedly told me that I had inflammation in the terminal ileum. Biopsy results were inconclusive.

While I continued to complain about diarrhea and occasional blood what finally drove the Crohn's diagnosis was all over joint swelling and pain, which ultimately led to me changing from Asacol to Pentasa. Suddenly my diarrhea went away. The conclusion (in my mind, anyway) was that there was small bowel involvement, eliminating the UC diagnosis and leaving us with Crohn's.

This took about 5 years. Admittedly, I was pregnant and nursing for a good part of that time, so that limited the diagnostic procedures that could be performed. But it was still very frustrating. Now I'm on my 3rd GI. The 2nd guy got booted after he shrugged at the fact that I had iron deficient anemia, no iron stores, and he didn't really think that was very meaningful.

grr.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/23/2010 9:27 AM (GMT -7)   
I was originally diagnosed with indeterminate or indeterminable colitis because I was told I had symptoms of both and they weren't sure which one I had.  Over the years, I noticed my dx changed to Crohn's, but I was never officially told about the change.  I had a friend who had UC and had the ostomy/ostomy reversal, all of that fun stuff, and was then diagnosed with Crohn's a year or two later. 

Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 10:14 PM (GMT -7)
There are a total of 2,735,740 posts in 301,326 threads.
View Active Threads


Who's Online
This forum has 151429 registered members. Please welcome our newest member, terrance.
221 Guest(s), 11 Registered Member(s) are currently online.  Details
terrance, soniya, Mews2much, Job_the_Phoenix, Scaredy Cat, TitusNana, LG13, ASAdvocate, Sheeks175, Sarakt, Peter A


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer