This Is My Story

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whyCrohnswhyme19
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/24/2010 2:10 AM (GMT -7)   
Hello, My Name Is Mike
 
 Symptoms all started in my first Semester in college. Day by day went by and I was experiencing more Bowel Movements, Till One day I got up and I couldnt Move. Everyday for about 3 months I woke up in pain and went to sleep in pain. The Joint Pain Inflated under neath both my feet...That made it vert hard to walk.
 
Than the pain was toped off by 20 bowel movements a day. I was in my worst stage during Finals Week in college. I dont know how I did manage to go and pass those exams but I did. So After The Finals I went to my doctor, He took a stool sample and told me to wait a week. A week has past and my apetite was close to none. The doctor told me there was no sighns of nothing and I probably have gas. So over the next few weeks it got worse....deadly worse....
 
I wasnt eating for more than a week...than boom one night I couldnt move and started shaking uncontrollably. I was rushed into the emergeny room. As the doctors quickly examened me I saw a BLACK DEVIL holding my hand...thats when I thought I was going to die....
 
I can still feel myself trembling on my bed..... I was losing blood by the minute that they gave me blood transfusions. After all the procedures they found out I had a dangerous amount of inflamation in my colon...The GI could not believe how fast it had spread...While in the hospital my poop went to blood to green to yellow back to blood.... I was still not able to eat... Everything I ate, I threw it up. I spent 1 whole month in the hospital(new years eve, I was in there) I lost 60 pounds... Now I'm trying to gain back weight..it's been okay, still trying to manage what I can eat
 
I have dropped out of college... I am hesitate of going back 2 the place where I almost died

whyCrohnswhyme19
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/24/2010 2:16 AM (GMT -7)   
How do you guys handle having this? All I have been feeling is Depression at times. I never felt this way

whyCrohnswhyme19
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/24/2010 2:17 AM (GMT -7)   
I feel like it has a hold on my life

whyCrohnswhyme19
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/24/2010 2:23 AM (GMT -7)   
why is no one responding?

Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 7/24/2010 3:01 AM (GMT -7)   
Relax. It's only been a few minutes since you first posted.

Also, not really sure what to say. I take comfort in the belief that everything happens for a reason, even if it makes no sense at the time. Until those reasons are revealed to me, all I can do is make the best of it.
Diagnosed with Crohn's late December 2004. Narrowly avoiding a full-blown flare using nothing but sheer awesomeness.


MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 7/24/2010 5:17 AM (GMT -7)   
Mike, Freakin Ouch! You got diagnosed the really hard way!! My Daughter was diagnosed right before she headed off to College and even being treated with meds, was not a comfortable experience. In fact the first 4 years she was not in remission and it was rough.
Her final year of College was wonderful thanks to Remicade and remission.

First thing, it won't always be (or possibly ever be) as bad as what you have already experienced. Once a treatment is found for your particular case you will get your life back again. Your life won't feel like it is on hold. After your nasty experience depression is a bit of a given but hopefully will subside as you begin to regain control of your health. You have already proven that you are one tough cookie to survive that semester in College and make it to Finals in the condition you were in. IBDers are known to be really tough cookies!! My Daughter falls into that category.

You WILL return to College. When you do make sure first and foremost that you register with your Campus Disability Services. It requires your GI/Dr filling out some paperwork. This will help should you have some not so healthy days trying to accomplish your degree. It is what saved my Daughter's College Education. She was not penalized for having to leave class to use bathroom, she was not penalized for excessive absences, she able to do makeup work and turn in assignments late, she was able to take makeup tests, she was able to take incompletes (when health was not good) and finish class in another semester. Disability Services afforded her Priority Registration which helped much in her getting the classes she needed at a day time better suited to her health (mornings were always a wicked nauseous time for her).

Hang in there, it does get better! Maybe not always perfect, but better than where you have already been once it becomes controlled and managed by meds, diet or whatever combination that works for your particular case. Hopefully, you have a really good GI on your side.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 7/24/2010 6:45 AM (GMT -7)   
Hi Mike,
 
It sounds like you are on the road to recovery. Which medications are you on?
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past three years. March '09 colonoscopy showed stricture gone but two spots of inflammation in TI. Used LDN to taper off Entocort last fall. (Was on Entocort since April 06.) Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 2000IU vit D3, 1000 mg calcium, 27-54 mg iron, monthly B12 shots, daily oral B12 twice a day (one B complex, then later one B 500), 10mg zinc. SCD diet. 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 7/24/2010 1:54 PM (GMT -7)   
hey mike... i dont know if you realise this , but this is a message board not like IM or chatroom.. our memebers are all over the world so at any one time half are sleeping ;0).. hang in there . the most important thing is to find a good dr that really knows crohn's.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 7/24/2010 2:07 PM (GMT -7)   
Hi Mike and welcome to HW.

You've come to a great place for support and encouragement by people who know what you're going through.
I'm glad you made it through that rough time. Are you doing better now? What treatment are you doing?
People here do all kinds of treatments. Some work for some and not others.
I personally do a combination of medical treatment, natural treatment, and diet.

Take care.

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 7/24/2010 2:42 PM (GMT -7)   
Hi Mike, a really big WAG on my part is that the stress and lifestyle of college probably contributed to such an explosive flare.  But no reason to fear going back now that you know what's going on.  Maybe take a semester off to get some control back.
 
Depressing?!?!? Heck yeah.  Why do you think we all participate in this support group?  You just need to give us a bit of a chance to digest what was written or give people a chance to respond.  Your case sounds pretty serious and since I am not there or have not experienced anything that bad I really don't know what to say since I cannot relate.  My only thought is above.  I know that stress plays a big factor in my problems.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/24/2010 3:13 PM (GMT -7)   
Sorry Mike, you posted at four o'clock in the morning my time. It takes time, and you are going to have to adjust your lifestyle, but it can be done. I strongly believe in a multiprong approach to health and wellbeing, and it takes some research on what is going to be best for you.
Take care,
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 7/24/2010 5:07 PM (GMT -7)   
Hey Mike, i was in your situation a couple years ago. The one thing I would recommend is reading Breaking the Vicious Cycle by Elaine Gottschall. It's basically a dietary program that may get your life back on track. Most people would say that it doesn't work for everyone and that you should be on meds also, but please read this book first because eventually it will fall into your lap. Better sooner than later.
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 7/24/2010 6:35 PM (GMT -7)   
Hello Mike; Welcome to healingwell.

You asked about depression, and how I deal with it?

1.) I see a psychiatrist, he gives me meds (Remeron at the moment) to help. I Have found that an SSRI can help balance out the depression.

2.) I exercise, and lift free weights. I do this consistently most of the time, and I really do enjoy it a great deal. This is the only thing that really works for me.

I have a book suggestion too. It's called kitchen table wisdom by naomi remen.

Take Care

grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/24/2010 7:05 PM (GMT -7)   
Hi Mike:  Sorry your not feeling well but you found a great and helpful tool I think - these discussion boards are pretty interesting -everyone has a different experience and take on life and you get to read them all and pick which things work best for you. 
 
Kudo's on having the guts and determination to finish your school year - don't let this pesky diagnosis keep you from your life goals and plans.  For such a time as this you are here and can make a difference and use what you know and learn to eventually benefit others. 
 
I did see your messages at 5 am ish this morning (was working), just didn't have the energy to respond!  Ivy once said it best - that weekends are slow but someone will come along and respond that has similar experiences or suggestions so patience my new friend!
 
 


Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin.
 
 
 


whyCrohnswhyme19
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/24/2010 8:09 PM (GMT -7)   
Hello, sorry for going little crazy

I have Arthritis and Crohns and Anxiety

I take Humira injections and alot of pills (asacol hd 6xday, potassium 2xday,mercaptune 1xday, multi vitamins, and something else 2xday)

I hate taking pills every morning and eveninng and night

I try working out but my body always hurts from the arthritis than....

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 7/24/2010 8:47 PM (GMT -7)   
There are other medications then the one your are taking, but bear in mind that crohns meds take awhile (sometimes months) to reach an effective dose in the body. I would not suggest going back to school until your disease is sufficantly under control.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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