cramping/charlie horses

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mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 7/25/2010 6:26 AM (GMT -7)   
ok so i know my body is missing some vitamin/nutrient because i am getting horrib;e cramps in my legs and feet daily and sometimes in my hands.  i though it was a potassium deficiency but places i've looked online say that's not the cause...oh well so much for the common knowledge from my youth soccer days...
 
anyone have any suggestions? 
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


mdf34
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Date Joined Feb 2010
Total Posts : 925
   Posted 7/25/2010 6:45 AM (GMT -7)   
I wish I had, my calves and feet could use them.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 


FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 7/25/2010 7:19 AM (GMT -7)   
Once again Mtgeman you and I seem to have the same problems. I had cramps too when I started healing as the Remicade started working. The cramping seems to have diminished. I suggest you stay hydrated and exercise in addition to eating and vitamins that you suggest. I walk everyday in my job and exercise that way. I am trying to drink enough water and thanks to my wife I get an excellent balanced diet. don't over do the exercise though. JUst try to keep things "alive" and gradually improve

Post Edited (FunGuy) : 7/25/2010 10:06:13 PM (GMT-6)


CP64
Regular Member


Date Joined May 2007
Total Posts : 69
   Posted 7/25/2010 7:42 AM (GMT -7)   
When I get bad leg cramps, it is my potassium level that is too low. Try eating one banana a day if you can tolerate it or get a supplement to help.

Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 7/25/2010 9:05 AM (GMT -7)   
I get charlie horses once every few months in the middle of the night! I wake up and it hurts like crazy!!
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently on: Monthly B-12 injections, 6MP, Calcium, Multi-Vitamin, Vitamin D, Prilosec, just starting Humira
Surgery scheduled: August 19 2010 - small bowel resection in TI


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 7/25/2010 3:33 PM (GMT -7)   
potatoes are another good option.
But also you might want to think about having your ANA tested to make sure it is not something else.
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tulipg17
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Date Joined Jun 2010
Total Posts : 113
   Posted 7/25/2010 4:37 PM (GMT -7)   
This was a very common side effect of the prednisone for me.

hendersonjames
Regular Member


Date Joined Sep 2005
Total Posts : 89
   Posted 7/25/2010 7:32 PM (GMT -7)   
I've gotten hand cramps when on prednisone for awhile.

PinkFlipFlops
Regular Member


Date Joined Dec 2008
Total Posts : 73
   Posted 7/25/2010 7:37 PM (GMT -7)   
I get charlie horses in my hands and in the arches of my feet. Quite painful. It happens less often if I eat at least one banana a day and drink lots of water.
38 y.o. F. Diagnosed with Crohn's in 2009.
Never had symptoms until after my daughter was born in 2006.
Currently taking probiotics and digestive enzymes.
Entocort on standby in the event of a flare.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/25/2010 9:19 PM (GMT -7)   
wow- didn't realize they were so common or that there was a corolation between the cramps and prednisone and/or remicade...all i know if they are so darn painful...i will try to eat more bananas- not crazy about mushy foods but maybe i'll try to partially freeze them...not many supplements have much if any potassium in them...i've been getting them daily- if not multiple times a day so i'm game...i bet dehydration is a part of it too- being in az although i drink a lot of water
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/25/2010 10:18 PM (GMT -7)   
Could be that you're deficient in magnesium. If D is a problem for you, try to get magnesium glycinate, which is bowel neutral. Magnesium oxide might cause too much of a laxative effect.

Also, take a look at this "soft serve ice cream" made only with bananas. Everyone says it is fantastic, and it's on my list to try: http://www.comfybelly.com/2010/05/banana-ice-cream.html
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


stella my labradoodle
New Member


Date Joined Jun 2010
Total Posts : 9
   Posted 7/25/2010 11:50 PM (GMT -7)   
I've been getting cramps in my feet as well, which from others' replies, sounds like it may be from pred. That pred has many uniques gifts for us, doesn't it?! My favorite way to eat bananas is in a nutella smoothie (if you can have dairy): Blend 1 spoon nutella, 1 ripe banana, couple spoonfuls of vanilla yogurt, splash of milk, couple ice cubes.
 
 

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 7/26/2010 1:07 AM (GMT -7)   
Sorry, I live in the Uk - what is a charlie horse ?

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 7/26/2010 1:14 AM (GMT -7)   
Sorry, I live in the Uk - what is a charlie horse ?

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 7/26/2010 6:28 PM (GMT -7)   
A charlie horse is the sudden painful knotting and cramping of a muscle, particularly the calves.  I have had them so bad at times if feels like there is a baseball, looks like it as well, under the skin where my calf muscle is supposed to be.
 
mtgman, I feel like I am having a tough time processing the amount of water needed to stay well hydrated.  How about you?  I have been mixing it up with a bit of gatorade on the days I really need to get work done outside.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/26/2010 10:13 PM (GMT -7)   
If you want to avoid the sugar in gatorade, Trader Joe's sells an electrolyte drink without it (in the water aisle).

I've heard that one should drink half their weight in ounces (I'm 100 pounds, so drink 50 ounces of water per day). However, if you suffer from D, I'm sure you would need to drink more.
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/26/2010 10:46 PM (GMT -7)   
thanks for the banana tips- i'll give them a shot- sounds more appetizing that a plain banana!  getting enough water is tough!  i drink gatorade and powerade also- we stock up why fry's or safeway has them cheap- i think we bough 20 bottles for 49 cents each a couple of weeks ago! 
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/26/2010 11:55 PM (GMT -7)   
Banana with nut butter (I use almond) is also great!
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


hedster
New Member


Date Joined Dec 2008
Total Posts : 16
   Posted 7/26/2010 11:56 PM (GMT -7)   
Banana dipped in chocolate and then frozen. Yum. I get the cramps too - alot lately - and I'm not on pred. However - I do know I've been deficient in potassium and vit D of late. I take D tab daily, and I've taken potassium supplements in hospital, but never sent home with them, just told bananas and such. I understand it's one of those vities that we need JUST enough of; too much is a problem too. We can't win sometimes huh?

I'm also an ostomate, so dehydration way more of an issue than when I had my colon --- I do the electrolyte drinks on hot days, figure water alone doesn't cut it.

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 7/27/2010 2:37 PM (GMT -7)   
Too much water gives me D. Peanut butter and banana sandwhich=great!
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 7/27/2010 4:50 PM (GMT -7)   
I didn't mean to imply that remicade gave me the cramps. I meant only to say that as I was getting healthier, due to Remicade, I was having cramps. I don't think the Remicade caused it I think it might have more to do with how far down I was health and nutrition wise and then as I got better and more active the cramps began. Not sure really on the cause though????????
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 14165
   Posted 7/27/2010 8:54 PM (GMT -7)   
I get them more often than I would like and I also get cramps in the arch of my foot. I get those every few days and they last quite a while. It's not the type of cramp you can walk off either, it's like my fot gets frozen in a position and I can't move my toes around or it's extremely painful. What is this??
March 2007: Diagnosed with Mild Proctitis - Canasa as needed.
August 2008 - December 2008: FLARE & Anemic - Started Asacol!!
January 2009 - December 2009: REMISSION!! Asacol (9) + Canasa 2x Daily
December 2009 - January 2010: FLARE!! Asacol + Prednisone + Canasa
February 2010 - April 2010: Colazal + Prednisone + Canasa
May 2010 - June 2010: Lialda + Cort Enema + Prednisone : Colonoscopy: Mild / Moderate Active Pancolitis
CURRENT: DOING OK! Prednisone, 6mp, klonopin, Canasa + Vitamin D


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/27/2010 10:20 PM (GMT -7)   
I used to get cramps in the arch. Talk about painful! I have no idea why I used to get them so much, but luckily, I haven't got them in awhile. The way I got rid of these cramps (at least temporarily) was to stand on the ball of my foot to stretch out the arch/toes.

Thought of another good way to get electrolytes: coconut water (http://en.wikipedia.org/wiki/Coconut_water). I wish I could drink this, but it's not SCD legal.
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 7/28/2010 3:33 PM (GMT -7)   
It's all about having some imballance between water, potassium, (more of it), sodium (salt) less of it, and magnesium/calcium. Potassium is in a lot of different nutritions, so is sodium. If you're having a hard time with much D, and not drinking so much water, your electrolytes will be disturbed. We who have Crohns often need to keep an eye on this, specially if you're sweating because of excerzise or hard work and so. If I have been walking around a lot (shopping or so)...I am guaranteed full of cramps in my calves, thighs, feet by night...
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