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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/25/2010 3:49 PM (GMT -7)   
Basics:

* make bed
* spirituality stuff - started, but will try to do more
* exercise
* stretch
* drink water
* eat vegetables
* shower; dress; wash hair
* go to appointment


Try to do at least some of these:

* make hair appt
* ring ISP
* order meds
* contact someone
* tidying
* sort out back room
* go to nursery and look at plants
* tlc for legs
* tlc for bedroom
* get some of my washing properly dry, instead of the half-damp it tends to remain at this time of year
* read (go back to bed for a bit?)


Ivy, not feelin' too brilliant this morning
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/26/2010 12:21 AM (GMT -7)   
(((((hugs))))))) ivy,

monday TLC

* wait for guy from YMCA to arrive and take furniture
* do dishes
* shower and wash hair
* call student finance
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/26/2010 2:38 AM (GMT -7)   
Was too queasy to do much today. Postponed appointment, so at least I didn't have to go out. Sat in sun for most of the afternoon and read.

* make bed - yes
* dishes - most of them; will try to finish before bed
* spirituality - yes, but will try to do more
* go back to bed for a bit - yes
* order meds - yes
* exercise - yes, a bit
* eat vegetables - yes, some
* back room - yes
* dry washing - tried, but didn't have much success
* legs - some. Have to finish them another day though.

On a positive note, our resident gentleman blackbird started his mating call this evening, so it looks as if he thinks that spring is coming. Hooray! This has been the coldest winter I can remember: I'm looking forward to some milder days.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/26/2010 2:51 AM (GMT -7)   
* gets out a box and puts some sunshine in it* have some of ours ivy. Its too much for me!!! i spend all my days inside with a fan on trying to cool off! i much prefer winter even though my joints go so creaky its almost funny!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/26/2010 3:03 AM (GMT -7)   
... And that's really saying something, considering that your winters will be so much colder than ours...

How hot is it there, Chocholic?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/26/2010 4:49 AM (GMT -7)   
we're about 19C about now. i've got sweat pouring off me, it isnt even that hot really!! we have been up to 31C so far this summer. Cant wait for it all to be over!! At least with the cold you can layer up and stay warm.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/26/2010 1:02 PM (GMT -7)   
* shower and wash hair - done
* wait for guys from YMCA to collect furniture - done although they were meant to arrive at 9am, instead they rock up at 3.15pm with no apology.
* do dishes - done
* call student finance - DONE and i wasnt on hold for 45 minutes either!!
* go to doctors appt - done but he wierded me out abit, he kept telling me i wasnt depressed??? and i should start working at a stable yard. Great except within the next 3/4 weeks i'm going to be a walking skeleton again!

whoop very productive day really in means of the phone call. I'm just praying it arrives in time for me to send off for my ESA.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/26/2010 3:22 PM (GMT -7)   
Why do you expect to be a walking skeleton, Chocholic?

I've heard that heat can be really hard to cope with in the UK, even for people who are from overseas and are used to warmer temperatures - something to do with the houses being crowded together and built for cold weather rather than warm?

You must never come here for the summer, though.... :-P You wouldn't cope at all.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/26/2010 11:09 PM (GMT -7)   
Sigh:  you guys are all sleepin and I'm wishing I was/could.  So today . . .take kid to doc appointment and then off to senior pictures.  Guess I should try and sleep but hard - my day is never like you guyis . . . .sigh . . . dust bunnies are multiplyin - I know they are!  Got a few scooped up on Saturday but never moved the furniture out of the garage . . . .husband had truck full of dirt for the pond he is putting in for me so no cars in the garage yet . . . hate yellow stickies with incompete goals . . .have to carry them forward to more. . . .now have 3 in a row.  yikes.  well, sleep tight! 
Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin.
 
 
 


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/27/2010 1:15 AM (GMT -7)   
the crohn's is starting to kick off again and i'm not even off my pred yet. The drugs i'm on just dont hold it enough. I end up in the loo for 3 hours each morning, with zero appetite. when i do eat i tend to throw up. so i loose weight really easy and i'm not fat to start with. My GP was warning me last night about watching my weight on the mirtazapine. i had to laugh, i'm in a size ten which is a 6 USA size i think? I'm also 5ft 8. i should be packing another stone at least.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

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