From Remi to Humira back to Remi question

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S.A.Crohnie
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/26/2010 1:23 PM (GMT -7)   
Yes this sounds strange but I was on Remi for +/- a year and a half I then moved to Humira purely because it was more convenient and cheaper .(Bad Idea because Remi was working wonders , again don't try and fix something that's not broken) I have been on Humira for 10 months and it seems that it's not that effective anymore.I discussed it with my GI and he recommended to first up the Humira from once every second week to injecting every week.Has anyone here gone back to Remi from Humira?
29 years old male.
Crohn's disease for 9 years
Resection in 2002
Current Meds: Imuran,Flagyl,Humira.


hedster
New Member


Date Joined Dec 2008
Total Posts : 16
   Posted 7/27/2010 12:21 AM (GMT -7)   
I've done remi twice. The big concern is risk of antibodies having built up in your system from your first session. When I started the second time on Remi, I had my first infusion with no problem. But - with my second I had the big reaction - shortness of breath, heart palpitations, nausea. Now, it's not a given it will happen by any means - but it was in my case, so doc took me off. Good luck to you - I hope it does the trick.

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 7/27/2010 4:08 AM (GMT -7)   
There is a member here, "Tsitodawg", who has gone back to remicade. I think he's having success. Hopefully he will come along soon and answer this post.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 7/27/2010 5:18 AM (GMT -7)   
I stopped Remicade due to allergic reactions and lose of response and now that I have exhausted all of my other options to treat both the Crohn's and arthritis, my GI has suggested going back on Remicade.  I voiced my concern and he said some people are able to do it successfully.  I asked my rheumy about it and she acted like it was not a good idea and too much of a risk, since I'd had allergic reactions to it.  Everything I find online about it says you are more likely to react to it the second time around, but I think there has been some people who handle it just fine.  I'm not willing to take the risk, since I already had reactions, but I would be willing to try it if I hadn't had the reactions. 

Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 


Emoney12
Regular Member


Date Joined Mar 2004
Total Posts : 100
   Posted 7/27/2010 7:45 AM (GMT -7)   
It can certianly be done.  Try and find some articles about Mount Sinai Hospital and infusion reactions.  They developed special protocols for patients who are prone to reactions and difficult remicade cases.  My doctor said he would put me back on remicade before goign on Cimzia as Cimzia is no where near as effective.  I am sure the situations are different for everyone but it is definitley a possibility.
 
 

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 7/27/2010 8:45 AM (GMT -7)   
I was on Remicade for two years. I never had a complete response - had to get infusions every 6 weeks. At the end, 6 weeks still wasn't enough so we tried Humira for about 4-5 months. When it didn't work, I went back to Remicade. The first infusion went fine. The second infusion I got hives in my mouth and it didn't work at all -- could well have been a saline drip. But, as others have said, some people can go back to it! So, just talk to your doctor about doing pre-medication (Benadryl or steroids for a few days) to help prevent a reaction.
1 fistula with two tracts, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia. Dx Osteoporosis 10/08 started Forteo 1/27/09
Failed every other drug and about to prepare for ostomy surgery... In the process of gathering info and meeting with ET nurses.


S.A.Crohnie
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/27/2010 2:06 PM (GMT -7)   
Thanks for the info and insight guys I just hope that if I have to go back it will work as before, really having a bad flare and the old fistula is back with a vengeance :(
29 years old male.
Crohn's disease for 9 years
Resection in 2002
Current Meds: Imuran,Flagyl,Humira.

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