Countdown to Surgery

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Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 7/27/2010 8:58 AM (GMT -7)   
I am packing to make the four-hour trip to Barnes-Jewish in St. Louis for ostomy surgery on Thursday.  For those of you who have always feared that Crohn's will result in this, it really is true that when you are ready for it, you will be relieved that it is an option.  I will have the option of having it reversed after healing occurs, but am not sure that I want to take the risk of repeating this little episode.
 
Tomorrow is clear liquids, and so I am going through the "farewell to food" thing today.  I can't decide what I want for dinner tonight!
 
I have decided that I get to choose how I feel about this challenge, and I have decided that I am grateful that this option is available to me and am looking forward to feeling better.  I also have decided that I am going to have fun naming the glad bag, so if you have any suggestions, please let me know.  It was tempting to name it after General Colin Bowel, but that's not very feminine. 
 
Any suggestions on killing time in the hospital would also be appreciated. 
 
Glori

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 7/27/2010 1:17 PM (GMT -7)   
Bring your laptop...and watch movies...I always do that...it helps kill the time...
Good luck and take care! I hope that your surgery goes well!
"The earth laughs in flowers"


RedSoxGirl85
Regular Member


Date Joined Jun 2010
Total Posts : 265
   Posted 7/27/2010 1:21 PM (GMT -7)   
Best of luck to you!! How long do you have to stay in the hospital after having this type of surgery? I'll try and think of a feminine name for it! Wishing you well and a speedy recovery!!
RedSoxGirl85
50mg 6MP
10mg Prednisone
1000mg Sulfasalazine 3x Daily
50000IU Vitamin D Once a Week
Zofran ODT As Needed
100MCG/ML INJ, 1ML Cyanocobalamin B12 Every 3 Weeks
 


Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 7/27/2010 1:41 PM (GMT -7)   
Becoming Undone:  I had planned to bring the laptop - but movies!  What a stroke of genius!  Thank you for the suggestion.
 
Redsoxgirl:  I have been told that it could be anywhere from four to seven days, depending on whether it can be done with a laparascope, or if I have to have open abdominal surgery.  I'm crossing my fingers, for sure.
 
Glori

onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 7/27/2010 7:56 PM (GMT -7)   
Bring your laptop as someone has already said and most hospitals have a TV room with movies and computers 2 check your e-mails and 2 stay in touch with your friends and family.. I just put in 3 months but sometimes the time flies by other days seem 2 go on forever... Get lots of info on the sugery and u will also find there is alot of people in hospital going through the same thing u r and there is a community nurse that comes around 2 show u videos and teach u what life is like after an ostomy they always seem 2 have the disease themselfs which helps just ask the hospital head nurse asking questions after all is something we always have...Another thing that got me by in the hospital is my laptop staying connected with friends and family cause its 2 long of a drive 2 visit and also TV it is expensive but if u got coverage that is great instead of getting flowers that look pretty 4 a few days ask 4 money 4 your TV I think that is the only thing that got me through those long nights lieing awake in pain was the TV even 4 the sound in the background u know what I mean...I hope this helps u a little...))))))HUGS((((((
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 7/28/2010 1:13 PM (GMT -7)   
Gawd I wish I had thought to bring the laptop!

I had a colonoscpy done 2 september's ago, it's not so bad but my stoma retracted so I think I may have a harder time than most at keeping the pouch on.

The after-surgery is very similar feeling as after a C-section, if you've had one. And they are good with the pain relievers, it's just hard to walk for a few days and you have a tendency to slouch when walk,ing so it won't hurt (just like after c-section)

any questions, let er rip!!
You'll do great :) and you're right, when you're "ready" for the procedure then it's not scary/depressing/traumatic. Once you come to terms mentally with it, its a piece of cake.. AND no more pooping in gross public bathrooms! yay!
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 8/3/2010 11:57 AM (GMT -7)   
Glori
Wishing you the Very Best and a pain free life to come! wooo hooo...I really like your upbeat attitude toward this whole event! Good for you!
P.S...I thought you name it Colette? If your up to suggestions though, how about George Clooney? just think He'll be with you all the time:)
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        

Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 8/4/2010 4:38 AM (GMT -7)   
Thank you all for your suggestions, as they did keep me sane during the hospitalization.

Flowery, I did decide on Colette, and she and I are both doing well. I am tired, and will post an post-surgery update after awhile. Just got home late yesterday, and that four-hour ride on the way home was quite a trip!

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 8/4/2010 5:14 AM (GMT -7)   
Rest up Girls! (colette:)))) !! Praying for you and your family. We will be here when you decide to share!
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        
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