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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/28/2010 5:01 PM (GMT -7)   
Basics:

* spirituality stuff - done some already; will try to do more
* exercise - eight minutes already; will try to do more
* stretching - done a bit; will try to do more
* make bed
* drink water
* eat vegetables
* shower and dress
* go to appointment
* inject Humira


Try do do at least some of these:

* get more rest - done
* get even more rest?
* wash towels - doing now
* hang towels
* keep trying to get the washing dry - doing
* get blender working
* make shopping list
* do at least some of the grocery shopping
* wash / finish dishes - doing now
* tidying
* a bit of extra cleaning
* more phone calls off the list
* anything else off the long-term stress / to do list
* contact someone
* ironing?
* mending?
* tlc for legs
* return library books
* any other errands?
* check bank

Bonus:

* go to nursery? :-)


Enjoy your Thursday, everyone.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 7/28/2010 7:29 PM (GMT -7)   
Gorgeous weather expected, hope to enjoy it. First need to:

Visit with elderly family friend (we try to go biweekly and haven't been since the end of may)
meet hubby for lunch
pick up Rx
carpets up and down

bonus:
get out for a walk, daughter to the park
round 2 of thank you notes
baby book or journaling

Ivy -- I'm starting a chore schedule. I've just listed the chores I want to do each week and have already made more progress than normal. I've done at least one every day since Sun. It feels good to do it. Otherwise I'm more of a binge cleaner. That can allow things to pile up, which is too frustrating for me.
Mom to two healthy Pentasa babies. 6+ years remission, woo hoo!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/29/2010 1:18 AM (GMT -7)   
I'm glad it helps, Inflamed. I know it does me - makes life seem a little less overwhelming, when I follow it properly.

Still struggling to get the pain under control here, so not feeling too happy. It's "only" moderate pain, but is enough to be slowing me down and making me feel pretty grouchy and teary, so I'll be glad to go to bed.


Basics:

* spirituality stuff - done some already; will try to do more
* exercise - yes
* stretching - done a bit; will try to do more
* make bed - yes
* drink water - yes, some. Not heaps though.
* eat vegetables - yes
* shower and dress - yes
* go to appointment - yes
* inject Humira - yes


Try do do at least some of these:

* get more rest - done
* wash towels - yes
* hang towels - yes
* keep trying to get the washing dry - doing
* make shopping list - started
* do at least some of the grocery shopping - yes
* wash / finish dishes - an ongoing process...
* tidying - yes, but this is also an ongoing process...
* a bit of extra cleaning - yes. Did a quick vac of a few floors
* return library books - yes

I hope you were able to enjoy the weather, Inflamed. It's cold again here.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/29/2010 1:29 AM (GMT -7)   
Thursday TLC

* do dishes
* do some tidying in my room
* read some of my book
* remember to take all the penicillin tablets
* cut down the climbing plant that has hung itself over the front door
* try some of the yoga on my new dvd
* maybe have a nap? seem to be rather tired today

A chore list sounds like a really good idea. I should write one. Course it might help if mum would not have to use our hoover and mop ect for her work. We need a second lot of cleaning stuff so i can do bits when mum's at work.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/29/2010 1:34 AM (GMT -7)   
I reckon that would help too. I don't know about you, Choc, but I find it hard to do all the floors at once. If I have to do it, I tend not to do more than one or two at a time. Any more would put me back into bed the next day. Best to do it in small chunks, I think.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 7/29/2010 1:00 PM (GMT -7)   
Ivy -- sorry about the pain today. You're right about the floors. I really only have 2 rooms and a hall of carpet. I can do those easily at once. The wood's another story one room at a time if I mop.

Chocaholic -- only my first week, but the list is helping me stay on top of chores better. I keep up with the daily things okay, but the others were slipping through.

So far:
visited friend, met hubby and took a short walk outside. Need ymti vac the carpet when my little guy sleeps, then the park when my daughter is up. Need to come up with something healthy for dinner. Have no meat, pasta has been banned from over use and eggs were last night. Maybe grilled cheese and soup?
Mom to two healthy Pentasa babies. 6+ years remission, woo hoo!


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/29/2010 1:40 PM (GMT -7)   
* wait for my IBD nurse to call - done
* do dishes - almost all done
* read some of my book - done
* have a nap - done
* remember to take all my penicillin tablets - done

My IBD nurse called me. she told me not to take my humira shot until i speak to my dentist and he comfirms that i dont have any more infection in my gums. She wasn't unduly worried since i had penicillin, but i did get a lecture about how i need a dentist and it was vital since i was on the humira and basicly they never would have put me on it if they had known i had no dentist. She asked me about my MRI scan i had done. No report through as yet and my GI plus her are on holiday for the next two weeks as well. So i'd better not get sick!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/29/2010 3:24 PM (GMT -7)   
Wot, no Humira until the 11th at least? Will you be ok, Choc?

You inspire me, Inflamed. You make more room for other people in your day than I do. I need to work on that...
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/30/2010 1:31 AM (GMT -7)   
I doubt i'll be ok. I'm not ok on the meds so who knows how i'll be. Still, my GI and nurse are on holidays so its all fine! There maybe an A & E visit in my near future to get patched up.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/30/2010 1:40 AM (GMT -7)   
(((Chocholic)))

It stinks, doesn't it? :-(
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/30/2010 1:44 AM (GMT -7)   
very true, i explained the symptoms where coming back on the pred and she wasnt that interested. i know my symptoms aren't that bad yet, but i'm due to come off the pred on monday.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/30/2010 1:55 AM (GMT -7)   
Yeah. They need to LISTEN and act proactively.

I've had time off Humira: I don't envy you :-(

Why are they cutting back the pred if you're still unwell?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 7/30/2010 3:18 AM (GMT -7)   
oh cos it isnt the drugs that arent working. i just need better coping strategies! I've been on every drug they have and none of them have worked for long. humira is barely working now, but its ME thats wrong, naturally!!

I mean i want to be off the pred, i dont like the idea that it depletes your bones even though i'm taking my calcium supplement. i have a huge family history of rhumatiod arthritis along with every other arthritis thats known to mankind so i'm really keen to try to preserve my bones.

I only got down to about 10mg and it started back up again. They wont increase the humira cos its too much paperwork, but to be honest i doubt that would do any good anyway. It was the same with the infliximab. once the loading doses were done it started to wear off earlier and earlier. increased the dose and within 3 treatments at double dose i had a massive reaction. It seems that no matter what drugs i throw at this, it just steps up the symptoms.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

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