Anybody else have fissures for 5 years straight? Or am I just lucky?

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snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 7/29/2010 8:18 AM (GMT -7)   
Remicade keeps me sane, but I'm really tired of this daily pain. and some days are worse than others,like this one!
Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/29/2010 1:46 PM (GMT -7)   
Do you suffer from constipation? I had fissures for a really long time (I'd say at least 5 years) due to this. Once I got the constipation taken care of, the fissures finally healed.

Do you have anything to put on them? Proctofoam and HC Praxomine can really help the discomfort.
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 7/30/2010 5:46 AM (GMT -7)   

Never had constipation, never had diarhea. Never even had to strain. Just lucky. I have no idea why I keep getting fissures and can't get rid of them.

 

As for medication, I tried absolutely everything under the sun while trying to avoid Remicade. That was one awful 1 1/2 years of pure misery. Remicade got me to a reasonable state of pain but I still have fissures. Surgery doesn't seem to be an option. I'm all out of options, so it seems.

Even tried religion. Thinking about witchcraft now. sad


Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 7/30/2010 8:31 PM (GMT -7)   
no. I've had fissures before, and while the pain was ungodly during bm's and right after , the rest of the time I was fine.

But I have 3 fistulas, one of which I've had over 7 yrs. Nothing will heal it and it hurts like heck. I have to wear a huge pad and I get lots of drainage that smells bad. I just wish it would go away.
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.

nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 7/31/2010 7:35 AM (GMT -7)   
I've had a fissure for 7 years straight! I spent a whole year with the colorectal surgeon, who tried treating it with everything in his arsenal and was initially very hopeful that it would heal. But after a year, he told me that I'd just have to live with it. He said that he could repair it surgically, but that then I would be incontinent--and we both agreed that I'd rather live with the discomfort (ouch!) than with Depends. The pain comes and goes; it seems to get worse when I have days of endless diarrhea (which is most of them). I use some topical analgesics when it becomes unbearable. But I'm reconciled to the fact that this is the way it's going to be--and I've learned to live with it. I hope you won't have to.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 7/31/2010 7:45 AM (GMT -7)   
Snappy I know that you have said in the past that you really exercise alot, I wonder if your work outs are straining that area and causing your fissure problem. Sorry just a guess, I hope you feel better soon.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 7/31/2010 8:09 AM (GMT -7)   
I also get them. On and off for years. I use cortisone cream to relieve the pain and inflammation. Could you possibly have crohn's in the rectum? I know this can cause fissures in the anal area too.

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 7/31/2010 7:20 PM (GMT -7)   
I've had them since I started this forum...sometime in 2007 and probably before...one heals and then BAM! another one appears...I have a script from my doc to take to a compounding pharmacy...it is Nifedipine(0.3%)/Lidocaine(1.5%) ointment...and then I use the Lidocaine GEL 2% (gel is the key word, you want the aqueous stuff, not the petroleum product...it works better, this is what the GI docs use) for when it get real bad...
And me...no I did not ever really have C...it is mostly D...but I think there is just so much inflammation in my poor bum... sad shakehead
"The earth laughs in flowers"

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/31/2010 10:06 PM (GMT -7)   
To give you guys some hope, I used to have really bad perirectal disease: fissure, fistulas, abscess, hemorrhoids, perianal skin tags (elephant ears), and inflammation for many years. I practically lived in an epsom salt bath every every single night. But it's been healed now for about a year *knocks on wood*. All that is left is the floppy skin remnants from one hemmie and one elephant ear. Hang in there!
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 8/1/2010 3:12 AM (GMT -7)   
most of the last 20 years
randynoguts 



     http://www.geocities.com/randynogutsweb/

JulieFrances
Regular Member


Date Joined Sep 2009
Total Posts : 63
   Posted 8/1/2010 7:56 AM (GMT -7)   
I have had fissures and hemmies for years.  The first one due to severe constipation. I had surgery for the first one. It was before I was dx.  After I was dx, I had sever hemmies and fissure.  I had surgery again.  Then last Sept., I had another flex sig that showed another fissure.  I have had leakage mainly before or after a BM causing me to wear a pad.  Do you think my leakage is from disease, hemmies, or fissure?  I am tired of the leakage and wearing pads.  It is hard to wear pads when you want to go to the pool.
Melinda
 
Diagnosed with UC/crohns
Humira
Proctofoam

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/1/2010 10:56 AM (GMT -7)   
I find the same thing as Becoming Undone, the petroleum products don't work. I find the cream products help way better. I tried proctysedyl and it did nothing to help. I also tried glycerin suppositories but I'm pretty sure they made me bleed more, so now I just stick with the Cortate Cream, which is .5% cortisone cream. The ointment version is petroleum and doesn't help the same at all.
I've had fissures and hemmies non stop for years too, but once in a while, they'll go away for a few days or even a couple of weeks, then more develop.
I think eating sugar and some spicy foods sometimes makes my stool more acidic (depending on how bad I'm flaring) so I watch eating this when I have bad rectal/anal pain.

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 8/2/2010 9:11 AM (GMT -7)   

WOW! I was out a few days and came back to all these replies! Thanks, peeps!

Know what's funny? I kind of hope they don't completely go away, because if they did I'm afraid a relapse might just be totally devastating to me. Like I'd think "oh boy, 5 more years.". For now I live with it and should be thankful that this is it for now. I have discovered that some foods make it worse and luckily those are mostly junk foods, so I am at a good weight and feel healthy.

But, I do hate the changes in my schedule to accomodate the pain, not wanting to travel because my schedule would be hard to keep at someone's house, and having to make sure the hotel is gonna have a bathtub so I can put out the flames each morning!

Oh, didn't mention my schedule: wake up 3:30, use bathroom by 3:50. Take bath (to quench most pain), eat breakfast, go back to sleep from 4:30 to 5:30 (sleep off the pain). Crazy, huh? But it beats sitting at my desk with fresh pain every day.

 


Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.

mzimmy
New Member


Date Joined Aug 2010
Total Posts : 6
   Posted 8/2/2010 4:16 PM (GMT -7)   
I have them as well, the pain during and then for awhile after going diarrhea hurts. I feel for you. I have learned to just deal with it and know that it will go away ten minutes after...i just tell myself that while i am having my BM's and sometimes it helps me feel a little better. Best of luck to you!

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 8/2/2010 4:50 PM (GMT -7)   
seems there are a few of you that mention the pain lasting a few minutes. Mine lasts for at least 4 hours. wonder why? oh well, still count my blessings.
Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.
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