How to know whom to trust?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 7/29/2010 2:17 PM (GMT -7)   
Hi all,

Just looking for some advice/thoughts on how you all decide if your doctor is "trust-worthy."

I just moved to Pittsburgh and am seeing a new GI at UPMC. After meeting with him today, he essentially questioned EVERYTHING that has been done for me treatment-wise in the past three years. He didn't understand why my previous GI did any of the things he did (which of course I couldn't explain). In a sense, he was confirming some suspicions I've had as I've been feeling frustrated with my previous GI's approach.

The new doctor appears to be very thorough and straightforward, and wants to make sure I understand everything about what's being done. He's already ordered a slew of tests and an endo/colonoscopy and CT scans to completely reevaluate my health. While this is what I wanted, it's making me a bit nervous, and I think this might stem from the possibility that I may not have Crohn's after all (he suggested I may have misdiagnosed UC) and there may be something else entirely different going on.

Overall, what signs/cues tell you your doctor is trustworthy? If you were given a different diagnosis, would you seek a third opinion before embarking on a new treatment plan? How have you all dealt with the change of GIs who have very different approaches?

Thanks for your responses!

beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 7/29/2010 3:11 PM (GMT -7)   
Who are you seeing there? David Binion, recently new head of the department at UMPC, is very, very sharp, so I would think you're in good hands with doctors there.

grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 7/29/2010 3:22 PM (GMT -7)   

Personally, if I switched Dr's, I don't know that I would trust anyone who didn't put me thru new testing. To me, it would show me that while he may value my last dr's opinion, it's always better to have new test results to compare to old and make sure that they come to the same conclusion.

As long as your dr explains what he is doing as he goes along, seems interested in how YOU are doing, not just what the test results show, and is available for any emergencies, then I think I would start to develop some trust for him. Go with your gut feeling...it's usually not wrong.


Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 7/29/2010 3:38 PM (GMT -7)   
I've had 5 GIs. Each one questioned the previous GIs findings and treatments, ordered tons of new tests, and changed my medications. I think it might be an ego thing.
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 7/29/2010 4:20 PM (GMT -7)   
Who are you seeing out there? I just moved from Pittsburgh and saw Dr. Baidoo at Presby. I think the hospital and staff out there is top notch.

I gauge my doctors and health professionals (especially since I work as one) by how well they explain what is going on with my body. They should justify a test to see if there's something going on and they should tell you what they're looking for.

I feel most doctors will question each others work. Maybe it's an ego thing, or maybe it's because they want to see how much was explained to you. But the only time is the present, so you need to make sure they are doing what is best for you.

I remember when I first started at UPMC, my doc asked why I was talking Colazal because it's a UC medication. After explaining that Pentasa made my hair fall out and I'm allergic to sulfa drugs and my Crohn's is in my colon, he understood. But sometimes I don't think they understand when they see something written in a chart until they talk to the patient.

Maybe the new doctor saw something in your chart that makes him doubt the Crohn's diagnosis?
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

75mg Imuran, 750mg Balsalazide 3x day, Tapering Pred (almost done).

Flaring...

Attempting SCD...fingers crossed!


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 7/29/2010 5:03 PM (GMT -7)   
Who are you seeing there?  Every GI at Presby is top notch (in my opinion).  I see David Binion, but I have had appointments with all of the GI's there as well.  I personally wouldn't question any of the doctors in the digestive disorders center, they are a very smart group of men.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

glitterpaws
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/29/2010 5:15 PM (GMT -7)   
I question everything my doctor does. However, I do a ton of research on line and no one doctor has an answer. This illness is basically trying different things to see what works. The most important thing to do is to ask lots of questions. Don't follow your doctors advice blindly. Research research research. And visit as many sights like this as possible. Stay informed of new studies going on. We have to take matters into our own hands to get through this.
Also, humor helps. Check out Ben Morrison. He is my hero. The only comedian that can make us laugh about our ibd problems.

mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 7/29/2010 6:22 PM (GMT -7)   
Thank you so much for the replies! This is all very good advice. I think I'm just giving myself a hard time because when I was initially diagnosed, I wasn't doing enough of my own research (I was only 18 and living out of state from my family), so I wish I had become more proactive when I was first diagnosed, as glitterpaws suggests. Plus it's just intimidating to move to a new city where you don't know anyone as well as go through an intensive round of testing.

tooth-I'm seeing Dr. Baidoo as well. I was really impressed with the first appointment, so we'll see how the all the tests play out over the course of the next month. I know UPMC is highly regarded for GI disorders so fingers crossed I begin feeling better.
21 y/o, diagnosed 6/2007

Symptoms currently under control with Humira and a wheat-free, processed food-free diet. Beginning to have symptoms of GERD...


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 7/29/2010 7:09 PM (GMT -7)   
I'm with glitter paws - take nothing for granted. Ask lots of questions and don't trust blindly just cause they are docs. Remember, the last graduate in medical school is still called "doctor". Any worth while doc should answer all your questions to your satisfaction (not theirs) using language you can understand, explain procedures, labs and outcomes well. I am a strong believer in research, look at literature they have published or been involved in, read message boards that discuss patient experiences and ask around in the community for recommendations. (Kinda like a mini mental poll!) In the 80's military clinics were subcontracted out (as in to the lowest bidder) and my family was the recipient of marginalized care. This all did serve to develop a healthy sense of preservation and developed survival rules that I follow to this day (these are just a select few!). Take care! Barb
Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin.
 
 
 


tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 7/30/2010 3:27 PM (GMT -7)   
mkl - Don't be so hard on yourself about not doing research and things like that! At 18, the last thing you want to be thinking about is researching a chronic illness/what is wrong with you. But the people at UPMC in all departments are topnotch, really easy to get an appointment with and all around great.

I LOVED Dr. Baidoo while I was there. He's very good about being proactive about testing and harassing you when it's time to have something done until you let him do it. I was planning on trekking out to Pittsburgh to see him from Philly, but things just fell through with insurance and I can't afford out of pocket on my student loans. But he was keen enough to order a CTscan before my insurance ran out and caught a stricture (even though I've been in clinically remission for years), which started bothering me a few weeks after I left Pittburgh. So I'm glad we did it. All around, he's a great doctor, on top of his research and really treats his patients with a lot of respect and he actually listens, which I think some doctors forget to. Hopefully, you'll have as good an experience as I had. :-)
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

75mg Imuran, 750mg Balsalazide 3x day, Tapering Pred (almost done).

Flaring...

Attempting SCD...fingers crossed!

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 7/30/2010 3:52 PM (GMT -7)   
Sometimes it must be an ego thing, but it certainly doesn't inspire confidence to hear one doc knock another. 
 
When my daughter was first diagnosed, in our hunt for a good doc, we ran across a top doc (at least per Castle Connolly) who said with raised eyebrows about her Entocort prescription, "ONLY 9 mg??" So I looked up the prescribing information from the manufacturer, which clearly said 9 mg is the absolute maximum dose, because clinical trials had shown higher dosages offer no added benefit. So we crossed him off our "good GI" list. 

mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 7/30/2010 5:42 PM (GMT -7)   
tooth--thanks so much for sharing your experience with dr. baidoo. i got a sense that was his approach and i'm glad you confirmed it. hoping i get to feeling better soon!
21 y/o, diagnosed 6/2007

Symptoms currently under control with Humira and a wheat-free, processed food-free diet. Beginning to have symptoms of GERD...
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 3:49 AM (GMT -7)
There are a total of 2,732,879 posts in 301,067 threads.
View Active Threads


Who's Online
This forum has 151222 registered members. Please welcome our newest member, TAS-MS/lupy.
207 Guest(s), 2 Registered Member(s) are currently online.  Details
delta30, sharron19


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer