I was on Remicade for a year and a few months. At that point my crohn's was so bad I was ending up in the hospital about 3 times a week. I'd lost my job. So I started Remicade and it worked wonders..put my crohn's into remission almost. I was able to add to my diet like corn on the cob... then 8 months into I started waking up in the middle of the night crying of pain in my toes,fingers,elbows. One night my husband thought it'd be a good idea to take a bath but I couldn't even get into the bath tub. The pain had continued so I went to the E.R. I was told it was Arthritis, and from then on out I went crippled from the pain. I had lost my life, yes the crohn's was under control but nothing else. until finally my crohn's was no longer stable. So I did my own research (especially on this site and the amazing people) I realized because remicade has rat DNA in it, CD patients end up getting high anti-bodies from it which of course attacks the joints. Doc took me off of it and started a course of imuran, with in a week I was arthritis free!!! I did not gain a single pound on this med (and I am the type to gain 50-60lbs on the steroids which is why they wont treat me with it anymore since I have such a small frame)
I don't want to say Remicade is bad don't take it. All I am saying is make sure your telling your doctor to take anti-body tst every 3 months along with liver tst. I also suggest speaking to your doc about taking imuran or something of the sorts (I don't suggest MTX imuran would be a lot better IMOP) to avoid anti-bodies. some patients are able to stay on this for long periods of times, others like myself get use to a med and then must stop. Like I'm on Humira for the last year and it's now lost the effeteness and now causing arthritis again. But I say I got 2 years almost (granted I lost 8 months of my life due to arthritis) and was able to eat things I forgot what the tasted like. So if you have a chance for pain free CD for even a year, take it!! Just follow up with the doc often and do your own research.
Good Luck!!! Keep us posted
Post Edited (tsitodawg) : 8/1/2010 4:44:18 AM (GMT-6)