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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/1/2010 5:02 PM (GMT -7)   
Still not feeling too brilliant, so am not feeling too enthusiastic about Monday. Plus, big storms over the last few nights = not much sleep for anybody. Even the cats are little zombies this morning.

tlc for me:

* get hair cut
* see dietitian
* go to shops and get basics
* drink water
* make bed (if the cats ever wake up: I don't have the heart to disturb them now)
* shower and dress
* exercise OR stretch


Try very hard to:

* get front room tidy by 2pm
* do the dishes, because I was too tired and sore to do them yesterday
* try to get the rest of the house looking tidier by bed-time
* book bone scan
* unclench jaw
* move & think restfully


I was zonked yesterday, so my tlc for Sunday was to not commit myself to anything in a tlc thread, but if someone else wants to start a Sunday tlc, feel free.

Ivy. redface
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/1/2010 5:42 PM (GMT -7)   
* book scan - done
* front room tidy - almost done
* cats are up; bed is airing
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/1/2010 10:15 PM (GMT -7)   
* see dietitian - she didn't turn up (grrrrr)
* drink water - doing
* make bed - yes
* shower and dress - yes

* get front room tidy by 2pm - yes
* do the dishes, because I was too tired and sore to do them yesterday - almost all of them
* try to get the rest of the house looking tidier by bed-time - doing


Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/2/2010 1:16 AM (GMT -7)   
heya ivy, was thinking about you yesterday. Hope sunday wasn't too bad for you. Stupid dietician, its the worlds most annoying thing when you make all the effort of getting in to see them and they just forget you!

Monday TLC

* clean up after my accident
* rinse out the pj's i was wearing
* let meself have 5 minutes moping over it all
* shower and wash hair
* polish in living room
* put clean clothes away
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2010 1:23 AM (GMT -7)   
Big hugs to you, Choc. It's horrible when that happens, isn't it?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2010 1:51 AM (GMT -7)   
* get hair cut - yes
* go to shops and get basics - yes.
* drink water - yes
* exercise - yes
* unclench jaw - doing
* move & think restfully - did for a while, then forgot.

Also quickly looked at a second-hand book stall, so that's extra tlc for me.

Am super-tired and longing for bed (and it's not even 7pm!) but will try to do at least some dishes and put the groceries away before I get there.

The rest of the house is really cold, though, so cleaning & tidying is :-/ a pretty unattractive prospect just now :-/.

Where are Jeeves the butler and Mary the housemaid when you need them? :-)

Ivy, feelin' nostalgic for 1810... LOL.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 8/2/2010 1:53 AM (GMT -7)   
my TLC of the day is to thank you for trying the help the rest of us! smilewinkgrin
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/2/2010 1:55 AM (GMT -7)   
yeah, but i'm ok! i am able to just clean it all up, which is a good thing. Plus i think i may have brought it on myself. mum baked an apple cake and i had a few slices.

One brilliant thing today is i have taken my last pred tablet!! whoop!!! my spare tyre can finally start to vanish. Its funny, i've only put weight on round my tummy, very little weight has gone on anywhere else.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2010 1:58 AM (GMT -7)   
Aaaaw, thanks, mdf. That's really nice of you.

Hey, if you ask me, accidents can happen for no reason whatsoever, just to wreck your morning. My 2c is that you should enjoy that cake and just blame life for your gut :-). (Mmmm, cake).

Woohoo on the pred! I'm doing a happy dance right along with you?

Guess what, I'm still here, at least partly because I have a nice little fan heater near my feet.

Ivy the wuss.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/2/2010 2:01 AM (GMT -7)   
mdf is right, you give alot to the forum and i know you've kept me going on days when i really could have just given up. so massive thanks to you!! along with a massive (((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((hug))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))

P.S the cake was good........mmmmmmm.........drool!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2010 2:03 AM (GMT -7)   
*sniff* Now I'm teary (truly). Thanks so much.

I've put 19 things away, and am shivering. It really is cold out there.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/2/2010 2:13 AM (GMT -7)   
your very welcome ivy! now go get wrapped up like a fat caterpillar!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2010 2:17 AM (GMT -7)   
Can't do that while walking around, but I think a shawl & beanie might be the go. Brrrrrrrr.

Have put away another 33 things.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/2/2010 2:30 AM (GMT -7)   
yeah you can!! i have done it whilst camping at a horse trial. it rained alot and was bitterly cold but loo trips were vital so outside we had to go!!! getting dressed was hilarious! we all had so many layers on it took ages plus there was mud everywhere. Aw they were good times, i'm trying to go again next year.

Instead of a shawl try a fluffy dressing gown. i used to wear mine alot in my old uni house. it was usually freezing in my room even with the heating on!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2010 2:35 AM (GMT -7)   
LOL. A newly-arrived British man helps with our gardening here. *We* complain about the cold; *he* is still walking around in shorts, oblivious. You lot are *tough*.

Have been in dressing gown & flannies for hours...

Have done about half the dishes.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2010 2:42 AM (GMT -7)   
You know what? This is stupid. It's taking me a zillionn times longer than it should to get things done because I keep having to come here to thaw (severe Renauds makes housework difficult, clumsy & painful in cold weather).

I'm going to abandon the chores and just go to bed and (hopefully) catch up on zzzs, and with a bit of luck it'll be warmer in the morning.

'night all.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/2/2010 10:38 AM (GMT -7)   
Hope you got some good rest and warmed up Ivy.

Today:
tour possible preschool for daughter -- done
scrubbed kitchen sink-- done
eat breakfast -- done
relax in the bath
eat a proper lunch
dr appt
tidy down stairs
medical paperwork
stay hydrated -- failing on this so far
return library books
pick up rest of Rx

Still feeling off. Was sick Friday and some of the weekend. Got the Dtap vaccine Saturday and ended up achy with a fever yesterday. Still needed Tylenol this morning. Seriously had that flu hit by a truck feeling. Only had a vax reaction one other time and my Crohn's was flaring then. Hope that's not the case now. I have the starving but the thought of actually eating something makes me want to puke feeling. Have to buy a few cases of Ensure to get me through. I'm all out.
Mom to two healthy Pentasa babies. 6+ years remission, woo hoo!

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/2/2010 11:54 AM (GMT -7)   
Heya inflamed, i was wondering how you were getting on. Havent heard much off you. Sorry your not feeling so good. hopefully it will pass quickly and you'll be totally back to normal soon. How's your babies getting on?

* clean after accident - done
* rinse out pj's - done
* 5 minutes moping - done
* afternoon nap - done

i really hope tomorrow isnt a repeat of today. i have to go out for my iron infusion tomorrow night.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 8/2/2010 12:02 PM (GMT -7)   
Ivy, can you send me some cold please? It's about 90 here and I can't function outside because of the heat....where is the lawn boy when you need him?

Today I have:
started laundry

And will:
finish the 2 loads and put all of it away
go grocery shopping
try to cut the backyard (though it's been rainy here and I don't know if I can do it until tomorrow evening)
vaccuum bedroom
steam mop bathroom
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/2/2010 1:37 PM (GMT -7)   
Thanks for wondering choc. Both babes are well. You'd never know how sick my little man started out life. Now I just need to get myself healthy too. Sorry about your day. Glad you got that nap though. Hope tomorrow is a better day.

Update:
shower instead of bath
chocolate mousse instead of a healthy lunch (will probably regret that)
tidy downstairs -- done
bonus-- cleaned 1/2 bath and did the outside of thf living room windows
wrote 2 more thank you notes

now the Tylenol wore off again and I feel like the mac truck passed over me again. Ughh.
Mom to two healthy Pentasa babies. 6+ years remission, woo hoo!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2010 3:12 PM (GMT -7)   
Was the preschool any good, Inflamed?

What's the Dtap vaccine for? I'm really sorry it affected you so badly. My heart goes out to you, battling through while feeling so terrible. You're doing a wonderful job there.

Becky, what sort of steam mop do you have? I'm thinking of getting one myself one day, and am looking for recommendations.

Good luck with your infusion, Choc.

I did a few more dishes after I signed off last night, so don't have too much to do this morning, which is good. And it's not quite so cold, either, which is great too.

On to Tuesday!!

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~
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