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tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 8/1/2010 8:17 PM (GMT -7)   
I have been on Humira since April, so about 4 full months. After about a month or two I started noticing my hair was shedding more then usual- I really thought it was my imagination at first. Well, now I know it isn't all in my head and it's starting to make me nervous. Just now my fiance was rubbing my head and then I ran my fingers through my hair afterwards and literally pulled out a small clump. My hair isn't visably thinning (yet) thankfully and I will be talking to my Dr tomorrow but I was wondering if anyone else has experienced this as a side effect? FYI I am also on Entercort and Pentasa but never noticed this before the Humira.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/1/2010 8:22 PM (GMT -7)   

tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 8/1/2010 8:27 PM (GMT -7)   
Well I just got out of the hospital actually, from another obstruction. But I had 5 of these obstruction "episodes" before going on humira and never had any hair loss. Overall I am not really any different than I was before starting Humira. I haven't (for example) lost a lot of weight or anything that would indicate out of control bad health contributing to this.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/1/2010 9:34 PM (GMT -7)   
How is your b-12 and folic acid?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 8/2/2010 12:47 AM (GMT -7)   
I had the same problem two years ago. It turns out that about 1% of people on Pentasa are likely to have thinning of the hair. Its AWFUL. I had all this beautiful curling long brown hair that I loved so much since it was the only super eye catching thing I was egotistical about. Now its cut to my shoulders with long layers. It still curls but I can't let it get too long or the weight of it starts making it come out so much in the hairbrush that a person would feel nauseous about. Hopefully this isn't what's happening to you.
29/f
Allergies and Asthma my whole life: Benadryl
Depression and PTSD after surgeries and illness of 2003 (turned out to be Crohns)
Crohns Dx'd: February 2008: Pentasa, Hyoscyamine
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 8/2/2010 6:56 AM (GMT -7)   
I take a daily multivitamen for b12 and folic acid. I am also on pentasta but I had been taking that for a good ten months with no side effects at all...that's why I attributed this to Humira.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/2/2010 7:35 AM (GMT -7)   
You do know that if you have disease in your teriminal illium oral b-12 has less then a 2% absorbing rate.

I was actually asking if you have had the blood tests to see if you have enough b-12 and folic acid. Oral meds do not always work well with this disease.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 8/2/2010 7:38 AM (GMT -7)   
That's a good point, I can request that they add those test to my next blood work up if they don't check them already (and I doubt they do).

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/2/2010 7:50 AM (GMT -7)   
Yes I think its more than likely the Entocort and/or Pentasa. I take the sister med to Pentasa called Asacol and my hair has been shedding quite a bit more than normal, even my hairdresser has noticed. I had surgery July 6th for something unrelated to my Crohns and I think because the surgery took so much out of me it has gotten even worse. I have heard that extra Folic acid and Biotin will help to slow it down. I tried both before and they upset my delicate stomach, so I think this time I will try just the Folic Acid alone and see how I do with that. Good luck and hugs, I understand how you feel.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 8/2/2010 8:06 AM (GMT -7)   
Thanks for the info, I agree that it very well could be the other medications. I will be talking with my Doctor as soon as possible to get her opinion. I know it's just silly vanity but if there is anything I can do to stop this I want to do it.
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