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tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 8/2/2010 1:50 PM (GMT -7)   
Finally made it to the doctor's today! Though I got some bad news that I was expecting...he thinks the stricture I have is from scar tissue instead of inflammation since the course of Prednisone I just finished didn't really help with the pain/problems with appetite. He decided against trying biologics at this point because he doesn't think they'd be much help for me with the stricture. So we're looking at a scope sometime soon to see how bad the stricture is and probably surgery in the next year or two. cry Yikes! He put me on Flagyl in hopes that it might help, but isn't too optimistic.

Guess my question is how long do people usually go before needing surgery from this point? Anyone have any relief from Flagyl or am I wasting my time?

I'm still doing pretty good with the SCD/low residue diet. Still working. Just have no appetite. Pain on sitting up in lower right quadrant and extreme fatigue. No blockages yet (knock on wood).
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

75mg Imuran, 750mg Balsalazide 3x day, Tapering Pred (almost done).

Flaring...

Attempting SCD...fingers crossed!

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 8/2/2010 1:53 PM (GMT -7)   
The scope may also help them better determine whether it is scar tissue or inflammation, or a combination of the two, which are causing the stricture.  

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/2/2010 2:01 PM (GMT -7)   
It isn't all doom and gloom. A scope can tell you a lot more. My TI is nearly scarred closed, but I've never had surgery and have been mostly in remission for several years. For me the stricture itself isn't the problem, it's inflammation on top of the stricture that causes issues/blockages. By stopping the inflammation I've been able to lead a normal life (sans peanuts and popcorn) w/o surgery. They biopsied the area my last to scopes and found no inflammation at all, so we know what's there is scar tissue.

Good luck!!
Mom to two healthy Pentasa babies. 6+ years remission, woo hoo!

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 8/2/2010 2:41 PM (GMT -7)   
My daughter had a stricture in 2006 that was so bad the scope couldn't get in to see the terminal ileum. A Mt Sinai doc suggested surgery.
 
Three years later, in 2009, the stricture was gone due to treatment by meds and diet. (Just one pill a day of Entocort and a mostly-SCD diet.)
 
Good luck with the SCD! 

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 8/2/2010 4:19 PM (GMT -7)   
I had a stricture at the TI that was scar tissue. I opted for surgery because, 1. Eating the wrong thing caused blockages, 2. I wanted to have surgery while I was in relatively good shape (and could recover quickly) rather then wait until it was an emergency and risk greater complications, 3. I was on SCD for almost a year, and felt that with the stricture gone, I would be able to eat a wider variety of legal foods.

The surgery was laproscopic (only 3 incisions), and they took out about 6 inches. I was out of the hospital in 2 1/2 days. I had always hoped that I could avoid surgery, but I'm happy I did it and got it over with.
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 8/2/2010 9:08 PM (GMT -7)   
I was having partial obstructions due to inflammation on top of stricture, then finally went on Humira, and haven't had 1 since, so even if it's mostly scar tissue, meds can help.

Though I would have chosen to have surgery at one point, because I was in the hospital because of obstructions every 2-3 months, I'm glad I gave meds a try first.

Whichever you end up doing, I wish you luck and many healthy days ahead !

Let us know what the dr says after your scope.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Djin
Regular Member


Date Joined Jan 2010
Total Posts : 265
   Posted 8/3/2010 12:52 PM (GMT -7)   
Surgery is an option to living with stricture limitations. The surgery process is hard but it ends, while a stricture...

I removed mine almost two years ago, and hope por another half a dozen years without other one.

Had my fisrt surgery when I was about your age, to remove a stritcture. It was an emergency one. I don't recommend it. :P
Male, 35 (lovely family of wife and two daughters)
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage (popcorn!!) - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 75mg Imuran + Iron (doc said i'm in remission, but I'm not sure at all)
 

jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 8/3/2010 1:48 PM (GMT -7)   
When i was first diagnosed I was put on prednisone 65 mg for 2 and half months, didn't help at all so we discontinued that. However, my stricture was 12 in. in length; just saying, just because the prednisone didn't work doesn't necessarily mean it isn't a stricture. Hopefully, you get that scope soon!
Pentasa- 4 g q day; 1/08; Percocet
Remicade 1st infusion 7/24/08
Ultram ER 200mg; omeprazole 40mg; Xanax-ANXIETY; Effexor ER 150 mg
Hope this clears up soon, I want to start having babies!

Emoney12
Regular Member


Date Joined Mar 2004
Total Posts : 100
   Posted 8/3/2010 3:49 PM (GMT -7)   
Before surgery the doctor may try dilate the stricture back open.

tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 8/3/2010 4:47 PM (GMT -7)   
Thanks for the replies everyone! You guys made me feel a lot better. :) I guess it's just living with the stricture until living with it becomes too much of a pain in the butt until surgery seems like a better option. I can function pretty well now...I'm relatively pain free and working a 9-5 job without many problems, so I'm not sure how much any more meds would help at this point. Probably just enough to stop the inflammation, but if the stricture's already there...

Though emoney thanks for the suggestion...I'll bring that up to my doctor. Hopefully he could do that and help. Though I'm getting married in the fall and if that seems like a viable option, I might have to postpone the scope just in case something goes wrong with that...
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

75mg Imuran, 750mg Balsalazide 3x day, Tapering Pred (almost done).

Flaring...

Attempting SCD...fingers crossed!

Emoney12
Regular Member


Date Joined Mar 2004
Total Posts : 100
   Posted 8/3/2010 7:39 PM (GMT -7)   
Congrats on the marriage. I am actually getting married as well in October. I had a syricture due to inflammation about 2 months ago. Colonscopy showed inflammation and the doctor dilated it. I didn't know about the procedure until my fiancé told me on the way home. A month later I went for some radiology tests and the inflammation and stricture are gone. I am pretty sure the procedure is pretty safe and may by you sometime to get through your bachelor/bachlerotte party,wedding, and honeymoon.

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 8/3/2010 10:46 PM (GMT -7)   
When my stricture go fairly bad, it took only about a year before I had my resection.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 8/4/2010 8:56 AM (GMT -7)   
I waited about a year after the CT scan showed my pain was due to a stricture. Colonoscopy also confirmed it was TIGHT. That's the exact word my GI and the surgeon used. Mine was from scar tissue so diet and drugs weren't going to help, they ended up taking about 5 inches out. Been doing great since other than now I'm taking a bile salt binder to deal with the D.

Hey are you in Pittsgurgh? For the life of me I can't remember -- if you need surgery Watson at UPMC is my choice.

Good luck -- have a great wedding!!!!
 

tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 8/4/2010 3:27 PM (GMT -7)   
lamb - Wish I was still in Pittsburgh!! Just graduated from grad school out that way so I moved back to Philly and am finding a GI and maybe a surgeon out here. redface Guess I'll have to see how that goes....hoping I make it at least a year. I'm in a year long residency so I'm trying to keep myself going until next summer. Figure if that's the time to have surgery I'll do it before I get a job.
How long has it been since your surgery??
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

75mg Imuran, 750mg Balsalazide 3x day, Tapering Pred (almost done).

Flaring...

Attempting SCD...fingers crossed!
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