Lactose Intolerant??

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 8/3/2010 12:12 AM (GMT -7)   
I was wondering about this.  I was tested for lactose intolerance back in 88 just after my diagnosis of CD in 87.  At that time it was shown that I was not lactose intolerant.  After my recent surgeries tho (07/08) I have noticed increased gas and pain when I eat certain things especially ice cream.  I use to eat Ice cream all the time after my diagnosis to try and gain weight.  I asked my GI about doing another test a cpl yrs ago but the answer was skirted around.  any thoughts?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 8/3/2010 3:15 AM (GMT -7)   
Dragonfly, I've never been tested but I can't digest milk products without taking a lactase supplement. Ever since my first big flare and subsequent resection I've been intolerant. The brand name supplement is Lactaid, but there are store brands out there that work just as well for me.
 

WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 8/3/2010 6:12 AM (GMT -7)   
My GI told me to avoid lactose when I was diagnosed. I think that a lot of people with CD find that dairy bothers them. It may not be that you are lactose intolerant, but that dairy is a food that bothers your intestines. It is like gluten and other things that people talk about here. You just have to work out what you feel good eating and what doesn't feel good. I get my dairy through lactose free milk, yogurt and some cheeses. You have been suffering with this DD a long time, so I am sure that you have found your happy foods and trigger foods! I think we sometimes know better than the tests.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Pregnancy Vitamins for iron etc., Salofalk suppositories as needed.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/3/2010 7:57 AM (GMT -7)   
I cannot drink a glass of milk without a increase in gas and diarrhea. But I can eat some ice cream and cheeses. Boy do I miss a bowl of cereal now and again. They say I am not so much lactose intolerant but more likely an allergy to the cassien(?) in milk. I became like this after my resections and sounds like its the same as you. I am with writermum I think you have had this disease a longtime and just need to figure out what you can and cannot eat. And I agree we seem to know better than tests. Hugs!

PS: Have you tried drinking the Lactaid milk? Maybe that will work for you.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

liebes
New Member


Date Joined Mar 2009
Total Posts : 3
   Posted 8/3/2010 5:13 PM (GMT -7)   
I have had crohn's disease for 6 years now.I have been tested twice for lactose intolerance and both times have come back negative.I need to stay away from dairy products as it causes me problems.When I do sneak a little I know that I will be in trouble but sometimes I just crave dairy.I drink lactose free milk and found an ice cream that is lactose free too.That helps when I have my cravings.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 8/3/2010 10:32 PM (GMT -7)   
I always drank/ate lots of dairy products with no problem. However, about 2 years ago, I noticed that I felt kind of bad after drinking a glass of milk (especially if I didn't eat anything with it). I'm pretty sure I was becoming lactose intolerant, and dropped lactose. I can eat lactose-free dairy though.

Nanners, why not use a dairy alternative for your cereal? There's almond milk, coconut milk, rice milk, etc.
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/4/2010 7:34 AM (GMT -7)   
Spooky, I love rice milk but it sounds yucky "to me" in a bowl of cereal. LOL
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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