Ive had Crohns for 11 years, with my right colon removed 3 years ago. since then ive been on remicade and humira, and been on and off the SCD diet for 8 years. i developed rectal ulcers, skin tags, and a rectovaginal fistula.
Over the last month ive had two abscesses drained, one on each labia. one of them is a fistula and isnt healed yet. my doctors are strongly recommending an ileostomy. im worried and scared. my intestines have some strictures but dont give me much trouble, but they gurgle a lot. my BMs are usually mushy, sometimes urgent, sometimes a little blood. im most worried about the fistulas, getting them healed and the fear of getting more.
Anyones comments or experiences are appreciated. thank you.
44 yo female, crohns 11 yrs, UC 10 yrs previous, very anemic
humira, 6MP on hold until abscess heals, following SCD diet