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Lori M
Regular Member


Date Joined Aug 2010
Total Posts : 65
   Posted 8/4/2010 2:12 PM (GMT -7)   
Hey all,
 
Glad I found your forum!  I was diagnosed with Crohn's just yesterday after being really sick for the last 2 months, although I wasn't surprised given my family's history with IBD.  My GI said that my colonoscopy showed "significant" inflammation and said that I must have some kind of tolerance to have waited so long before getting treatment.  I'm 46 years old and if I'm honest and look back in time, I know there were times when I was having Crohn's flare-ups but just chocked it up to being the flu or something bad I ate.  Not so this last June, when I got so sick and realized that something was definitely not right.  So two months of many doctor's appointments, and many lost work days later, here I am.
 
The inflammation has not restricted itself to my colon, oh no.  It has attacked my shins, ankles and shoulders.  Before being diagnosed with Crohn's I saw a rheumatologist because of the inflammation.  He put me on 600 mg ibuprofen that totally killed the pain in my legs and shoulders.  It was awesome.  Until yesterday.  My GI ordered me off the ibuprofen - didn't realize it could be so bad for me!  So I stopped taking it and in the middle of the night last night I thought I would die from the pain.  I woke up this morning and just wanted to end it all from the pain I was in.  I took my new Crohn's meds at about 6:00 this morning, for the first time.  40 mg predisone (40 for first week, 30 for 2nd week, 20 for 3rd week and 10 for final week), and 3 x 400 mg Asacol (to be taken 3 times a day for a total of 3600 mg per day), plus a calcuim and Vitamin D supplement.  It only took about 3 or 4 hours before the pain in my legs subsided.  Yay!  The only other things I notice is that I am sweating like a pig and am a little nauseous, but not horrible.  Side effect from the predisone?
 
Speaking of side effects....boy I wished I hadn't looked them up.  From the sounds of it I can look forward to sporting a big fat bald head with lots of acne all over.  Good times.  Praying I will be one of the lucky ones, but not that optimistic.
 
Anyway, thanks for letting me vent.  I look forward to reading your stories and hearing your advice.
 
Lori

tes82
Regular Member


Date Joined Jul 2010
Total Posts : 23
   Posted 8/4/2010 7:22 PM (GMT -7)   
Welcome Lori,
I was diagnosed recently and have found this forum sooooo helpful. It helped me realize some of the things I didn't think were related to the crohn's actually were. Everyone is very helpful.
Good Luck,
t
Diagnosed with Crohn's in April 2010. Currently on Pentasa, trying to find diet and stress relief that works for me.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/5/2010 7:12 AM (GMT -7)   
Hey Lori,

And welcome to the best Crohns forum out there. You will find alot of love, support and understanding here. Not all get the side effects of the meds you mentioned, so don't get ahead of yourself. Yes, Pred can cause you to feel overheated, it can also make you kinda grumpy, so warn your family members its the Pred not you. As for the nausea make sure you take your meds with a little food, that should help. Looking forward to hearing more from you.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 8/5/2010 4:37 PM (GMT -7)   
When I am on a short burst of prednisone like you are on I don't get the moon face or the acne. Hopefully you will also be that lucky. Once I get below 30 mg I feel normal or have very little side effects. Good luck and keep us posted.
Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol,  Imuran, Folic acid, and Enalapril.
 

Lori M
Regular Member


Date Joined Aug 2010
Total Posts : 65
   Posted 8/5/2010 6:20 PM (GMT -7)   
Thanks for the responses and support! I'm still just sort of trying to wrap my head around this whole thing. I'm in the middle of a pretty nasty flare-up, probably brought on by all the stress! But the meds are helping. No pain at all anymore in my shins and ankles, thank the Lord!! Still got a lot of cramping and probably 6-8 rushes to the bathroom a day, but it seems to be getting better. The Asacol is really upsetting my stomach, even though I've been taking it with food. It's tolerable though, I'm not vomiting or anything. Maybe it's a good thing actually, since I understand that the Pred gives you quite an appetite! I'm trying to keep hydrated and eat as much as I can, although I'm getting a little sick of white food. The food thing baffles me. I guess it's just a process of elimination. I do know that coffee bothers me. Boy I'm going to miss that! Had a glass of wine the other night for the first time in like 3 months and felt pretty rotten the next day. Don't know for sure if it was the wine, but it seemed a little coincidental, so I think I'll be cutting that out too. Good God, no coffee and no wine! I've turned into my parents!

Anyway, thanks again. Reading your posts really does help when I'm in the middle of one of my pity parties!
46 years old. Diagnosed with Crohn's August 3, 2010
Started predinose on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week)
Asacol 1200 mg 3 times a day

Lori M
Regular Member


Date Joined Aug 2010
Total Posts : 65
   Posted 8/5/2010 6:23 PM (GMT -7)   
Oh, and on a very positive note, I got all the bloodwork back from my Rheumy today. All negative for Lupus and other autoimmune problems, thyroid problems and arthritis. The only problem was a pretty low vitamin D level, so I'm now on 50,000 units a week for 8 weeks.
46 years old. Diagnosed with Crohn's August 3, 2010
Started predinose on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week)
Asacol 1200 mg 3 times a day
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