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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/4/2010 4:59 PM (GMT -7)   
Pain continues, and kept me awake for much of last night. I actually had an hour where I started to think about maybe going down to the hospital, but that has passed now, thank heavens.

Basic tlcs:

* give legs some more tlc, just in case I do end up needing to go to hosp (it's been too cold to do this lately!) smurf tongue
* make bed
* try to be showered and dressed by 10.45
* do some exercise or stretching
* drink water
* try to be happy
* spirituality stuff
* dress nicely
* go to appointment
* ask about postal voting


Try to do at least some of these:

* shake tablecloth and wipe ornament
* more tlc in the kitchen
* some / all dishes
* work through some of the papers that are mounting up
* return library books
* return videos
* ring someone
* watch World's Worst Parents
* do the ironing
* do some more mending?


Might add more later, when I'm more alert.

Have a good day everyone,

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/4/2010 5:39 PM (GMT -7)   
* work through some of the papers that are mounting up - Yep. Done the easy ones. Have left the ones that are in the "too hard" pile for another time.

Showering by 10.45 won't happen. Oh well.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/4/2010 9:57 PM (GMT -7)   
We made it. Thurs:

Sleep, eat
take care of myself and son so we can help the fam
Mom to two healthy Pentasa babies. 6+ years remission, woo hoo!

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 8/4/2010 10:12 PM (GMT -7)   
Honey, on the day after I work, I lay and do basically nothing. My body needs the downtime b/c of the day before when I did work. You'd think a 4 hour shift shouldn't cause so much pain but my goodness it sure as heck does.

The days after I recover from working, I do little things around the house or I end up at my mom's (giving myself unneeded stress) helping her around the house. She's got a twisted knee that's got fluid on it and they're going to give her a cortisone shot on Friday. Oh buddy, everyone's warned her its going to hurt something fierce. She also got her dentures but she won't wear them b/c she won't use fixodent since all the stuff about the zinc causing problems. She's never going to get used to wearing them. But that's all the stressy stuff that I'm not supposed to think about when I don't have to.

What I'm saying: You're doing plenty more than I am. You rock.
29/f
Allergies and Asthma my whole life: Benadryl
Depression and PTSD after surgeries and illness of 2003 (turned out to be Crohns)
Crohns Dx'd: February 2008: Pentasa, Hyoscyamine
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/4/2010 11:36 PM (GMT -7)   
Joie, you WORK. You're amazing yourself!!!

Anyway. I'm starting to think that this is DEFINITELY not my week. After hanging around all day on Monday for an appointment that didn't turn up, all day on Tuesday for a tradesman who only worked 90 minutes, I dragged myself to today's appointment, only to be told, "oh, sorry, she's gone on leave. Didn't anybody tell you?". Argh.

Anyway. I decided to make the most of it and popped across the road to the second-hand bookshop, to see if I could find myself something cheap & fun to read that would make me forget my woes for a few hours. Browsed a while, finally found something that looked remotely readable, and then got so disgusted at having to stand and stand and stand and wait while the shop keeper nattered on to another lady about her recent holiday to Bulgaria (or somewhere) that I finally pointedly put the book on the sales desk, pocketed my money, and stalked out. Hmph.

Returned library books, had a gut spasm and then an unusually heavy fistula leak. Lovely.

Anyway. Leak didn't make a big mess, fortunately. I've watched World's Strictest Parents and done a bit of mending, and have phoned a few people. Also shook the table cloth and dusted the ornament before I left for the appt, so that's done.

I haven't been able to ask about postal voting, but will try to do that on Monday when I see my gastro doc. I still have all the housework to do, but I think I might do that later.

Grrrrrrrr. None of these are big woes, but they're aggravating enough anyway.

Ivy, trying hard to think happy thoughts.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/5/2010 1:17 AM (GMT -7)   
I HATE shopkeepers that natter on when your waiting to be served. Its one of my pet hates!! I'd have walked out as well.

I keep getting some pain, its almost like twinges but it lasts just abit too long for a twinge. I've never had this pain before, but it hasnt gotten any worse. Plus i have to 'hold' my tummy in otherwise its hurts. It rather odd! still its all good really!!

Thursday TLC

* get dressed
* try not to get annoyed with mum as she saw fit not to bother going into work today
* do dishes
* mop floors?
* finish cleaning the loo
* do some tidying in my room
* chase uni for my letter
* ring benefits office to explain my evidence is all running very late and i have no idea if it will arrive in time
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/5/2010 1:21 AM (GMT -7)   
Gosh, hasn't uni written that letter yet? You phoned them *ages* ago.

Got to love bureaucracy. It's never important or urgent, unless it's something *they* need from you...

So, what are you going to do with your weekly afternoons of freedom now that you don't have infusions?

It's nice you're here, Choc.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/5/2010 2:11 AM (GMT -7)   
i have no idea, i actually loved going for my infusions. it was nice to get out of the house and talk to people.
Tell me about it, stupid uni. they did send me a letter, but it had the wrong dates on it. so its useless. I've been pestering but havent heard anything back from them. I have to ring the benefits office cos its all supposed to be in by the 12th otherwise my claim is denied. then its back to the begining all over again.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/5/2010 2:30 AM (GMT -7)   
Grrrrrrrrrrr. That REALLY isn't good enough. You need an advocate with an important-sounding title to hassle them, dear Choc. Can you think of someone who might be able to advocate on your behalf? Your gp maybe?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/5/2010 4:20 AM (GMT -7)   
I managed to get the lady dealing with my letter from uni to recheck my records. I then got a grovelling email back stating she'd mis-read my return date and she's resent the letter. So i still have a chance of getting my evidence in on time, but its now down to royal mail actually delivering the letters.

One thing sorted anyway!!!

*get dressed - done
* chase uni for letter - DONE (hopefully for the LAST time)

I'm not going to ring the benefits office today to see if i get the letters either today/tomorrow/saturday or monday. if i still havent gotten them by monday i'll have to ring and ask if they can extend my deadline so i can get it all in.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/5/2010 5:52 AM (GMT -7)   
* mop the floors - done
* do dishes - done
* empty recycling box - done
* mail the evidence off to the benefit office - done

now to watch lots of tv while the floors dry!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/5/2010 3:14 PM (GMT -7)   
Choc, obviously you know the system better than I do, but I'd be inclined to ring the office now, just to let them know that the paperwork may be a little late. That way, they won't think you're bludging or conning them if you ring on the due date.

As I said, just my opinion, and an ignorant one from the other side of the world at that.

Blush time - what did you watch?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~
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