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Date Joined Jul 2010
Total Posts : 42
Posted 8/4/2010 5:15 PM (GMT -7)
After having Crohn's for decades, I have joined the ranks of those who have needed surgery for the disease. I have a temporary colostomy, affectionately known as "Colette", and am home from the hospital. Because I live alone, I am having a few challenges. It hurts soooo bad to bend down and pick things up, so I am having to use salad tongs if I drop something on the floor. If that doesn't work, I'm getting pretty good at grabbing things between my toes, too.
The discomfort is still very much with me, and I sure am regretting the fact that all the steroids have added pounds to my short frame, and that the healing is delayed as a result. However, I have made the choice for the temporary colostomy to assist healing of horrific Crohn's in my anal region, and am looking at this episode as a chance to have a better quality of life. Hopefully, being off of steroids will help me lose some weight and improve my overall health.
I admire those of you who have had surgery after surgery and have kept your chin up, and don't mind telling you that I have been having my share of anxiety and pity parties. Having an IV placed in my external jugular vein gave me an anxiety attack I don't care to repeat. I also dealt with residents who wrote the wrong patient order on MY chart, and who wanted to "wait and see" how high my fever of 103 would go. The surgery was a week ago tomorrow, and all of that mess is behind me now. Any words of wisdom you can give me to keep me looking forward and not feeling sorry for my situation are appreciated, as I find myself slipping back and forth between optimism and sheer exhaustion and self pity.
Thank you all for being here.
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Date Joined Sep 2005
Total Posts : 10404
Posted 8/4/2010 5:28 PM (GMT -7)
I haven't had surgery yet, Glori, so can't offer any advice or words of wisdom. I do want to send you lots of good wishes for healing, though, and for happier and healthier days ahead.
The salad tongs sound a great idea!!
Co-Moderator Crohn's Forum.
Medications for Crohn's
Diet and Nutritional Therapy for Crohn's
Dealing with Abscesses and Fistulae
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Date Joined Jul 2008
Total Posts : 440
Posted 8/4/2010 8:14 PM (GMT -7)
Glad to see your home! Sounds like you had a long drive getting there too. I think I always heal better at home instead of a hospital:)
I've had plenty of surgey's (13) not the surgery you've had...but lots of abdominal ones...so I'll tell you a few things I do. Keep on top of your pain med's. This is a must! It's easy to get over tired and think you don't need them. Just take them and try to eat well too. Walk, Walk, Walk, makes you stronger. After surgery I always get night sweats, or just kinda sweaty all the time due to pain meds. I just try not having hot liquids..helps!
It's gonna take awhile for your stomach to heal just having Crohns. Hang in there! Try putting a chair with a high back next to your bed so you can lift your body weight when you get in and out of bed. This helps the ol' back and the stress of stomach muscles. I also pack my stomach with a firm pillow and try to roll on my side for a little while. After being on your back it feels good even if it's for a few minutes.
Are your salad tongs long enough?? This did make me laugh though...maybe you could Magiver them longer?
I really hope this does the trick for you and you are able to heal and they can hook everything else back up again. But just think...you can travel Girl!! Wow! or even go to like ball games without PORTa pottys!!!
You'll have to fill me in on Colette. Is she difficult?
"Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
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Date Joined Apr 2005
Total Posts : 14995
Posted 8/5/2010 7:07 AM (GMT -7)
Hugs Glori!! Here's hoping that this surgery leads to a long long remission for you. I have had two
open resections and got infections in my incisions both times, also had to have picc lines both times. Gave me quite the anxiety too, especially when they re
opened my incisions right there before my eyes and left it
open to be packed with wet/dry packings for about
Stay on top of the pain at all times, it can quickly get out of control. Try to walk a little bit each day, and a little more as you feel stronger. Try to keep to a milder diet for a bit, think easy to chew, easy to digest. Rest when needed, no need to try to be the speed healer. I found that if I turned to my side and used my hands to slowly push myself up helped me to get upright without as much pain. Wishing you a speedy and peaceful recovery.
Co-Moderator for Crohns Disease
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles. We can take hold of it by the handle of anxiety, or by the handle of faith"*
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